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I'm 26 Years Old And I Was Diagnosed A Month Ago...
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I'm 26 years old and I was diagnosed a month ago. I went gluten free the minute I fould out I had Celiac Disease and have been very careful what I eat and I read every label (I have been accidentally been glutened 2 times since diagnosis). What I am struggling with is when I will see and feel results from my diet change.  I am the Celiac who has suffered from gradual weight gain over the years, itchy scalp and body, debilitating stomach cramps and joint pain, extreme fatigue, and many other quentessential Celiac symptoms. I have struggled over the last couple years trying to figure out why I have been gaining weight with the inability to lose it and it has been emotionally and physically draining.

 

With all that said, my older sister has been gluten/lactose free for a year now and has dropped close to 30lbs by just going gluten/lactose free. I see her results and I am excited to have the same for myself in a year. I have seen small changes in myself such as less brain fog (I always thought I was just scatter-brained!), reduced swelling in my abdomen and face, and a slight change in energy levels.  For those of you who are the overweight Celiacs, when did you notice your weight began to decrease? I have lost 5lbs, but I'm guessing that is just water weight and reduced swelling.  When my digestive system begins to repair, will it start to work more efficiently to help me lose weight?  Since my energy levels are still low, it's hard to do workouts without completely draining myself of my sacred energy reserves.

 

I would love to hear your stories and when you all began to see your weight loss results as well as when you started to feel better! Also I would love to hear some remedies incase I accidentally get "glutened", and how to speed up my results to be a healthier me.

 

Thank you in advance!

 

Katie  :D

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If all the other stuff that got better with me,( since I had such bad ataxia and neuropathy,) post switching to a gluten free diet, meant that I still ended up gaining weight, I'll still take the trade, any day, because I can do so much more now, even if I've gone up a few sizes.   Of course, I'm over twice your age, and at this stage, I don't really care that much anymore, I'd rather be happy, because my happiness does not depend on having a certain appearance. I have all this auto-immune crap, but I'm not medicated to the gills, at all.  I just worked out for over an hour, finally cracked my old time record on the bike for the distance I went, and now I have to go out and do evening chores late (had to take a gap in the weather to do something, because I really don't like the risk of lightning strikes w/ thunderstorms and this has been hit and miss here all afternoon) because my spouse called earlier and said he's going to be really tired by the time he gets home, but this beats the heck out of being nearly confined to the house and having to use a cane for balance.  We are all different, there is no way with my bone structure that I'm going to be "thin," may as well be setting other goals.  B)

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Unfortunately, which my pituitary tumor and possible hypothyroidism, I haven't been one of the many lucky people to lose weight after going gluten-free. Crossing my fingers I will start losing weight if all of this hormone therapy starts to work. I'm 26 as well, and I was diagnosed last April, and have been gluten-free as soon as I got the diagnosis. Hope all goes well with the weight loss and feeling better soon :)

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    • Hi Kasia2016, Yes, celiac disease symptoms can vary widely.  Some people have no symptoms, we call that silent celiac.  Other have difficulty walking (gluten ataxia), skin rashes (dermatitis herpetiformis), and thyroid disease (Hashimoto's thyroiditis).  The list goes on and on.  GI symptoms can vary widely too, from mild symptoms at times to severe symptoms.
    • Hi egs1707, Welcome to the forum! Irene is right, you should not be gluten-free until all testing is completed.  The celiac disease tests are checking for immune system reactions and damage, and when you go gluten-free that starts to decline.  So the tests may not show the true immune reaction that is going on or the normal damage.  They may not show any damage in fact and you could get a false negative diagnosis.  You body starts healing and out the window go the test results.  Your doctor gets an "F" grade if they told you to go gluten-free now. But you aren't alone in having a doctor who doesn't understand the celiac disease testing process.  Many of them are woefully ignorant of proper testing for celiac disease.  That why the current estimate is somewhere in the range of 85% of celiacs in the USA are undiagnosed.  It doesn't help when doctors screw up the testing themselves.  Or refuse to test people.  Which is also far too common. I was vegetarian for 5 years.  I am not anymore and don't recommend it.  It is hard enough living gluten-free and finding safe food to eat and adequate nutrition for healing a damaged body.  I used to eat a lot of soy products when I Was vegetarian, but now soy makes me physically sick.  We can sometimes develop reactions to foods we eat a lot of while our guts are inflamed IMHO.  Soy is not a healthy food anyway from my reading. I can't do dairy now but may people who start out lactose intolerant end up being able to eat dairy after they have recovered. The best advice I can give is to avoid as much processed food as you can, and eat mostly whole foods you cook yourself at home.  When you do cook, cook big, and freeze the leftovers.  That way you can quickly take a small portion of food out of the freezer and reheat it.  Being celiac it is more important to learn how to cook.  Unless you are wealthy all those gluten-free processed foods add up quick.  Plus gluten-free processed foods often are lacking in fiber and vitamins. You'll want to watch out for vitamin deficiencies also.  Since celiac disease damages the villi in the small intestine, the vitamins and minerals etc are not digested and absorbed well.  So celiacs can be low on vitamin D, calcium,  and one other one I forget.  Vitamin B-12 may be low also ( it is important for nerve health).  Then there are some vitamins that vegetarians tend to have problems getting enough of also to consider. Adjusting to living with celiac disease means adjusting to a new diet and some lifestyle changes.  There's lots of us that make that change every year though, it's not impossible.  You will most likely end up eating better, more nutritious food than many of your peers.  And you will avoid a pletora of additional health concerns that can come along with untreated celiac disease. Learning to cook can be an adventure and you may enjoy it once you start.  you may find your taste in foods changes once you have been gluten-free for a while too. Recovery from celiac disease can take some months.  The immune system is very serious about protecting us and doesn't give up quickly.  Also it always remembers so it will react to even small amounts of gluten.  I live with gluten eaters at home and I do fine.  I just am careful about rinsing dishes off and so forth before using them. There is a Newbie 101 thread at the top of the coping with forum subsection.  It may provide some helpful info.  
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