Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cheese Again
0

17 posts in this topic

Other opinions on cheese requested :D

My nutritionist doc (a new one) has just told me never to have cheese again as I am celiac. She said being celiac I will never completely heal my gi tract, and that cheese or dairy more specifically was detrimental to the absorption of vits and mins! Ok, kind of get her... But! Really??!

I know of celiacs that eat cheese... Would that be because they were not so damaged perhaps? .

Any personal opinion welcome. I've been df for 3 months. Tried introducing 1 month ago but got tummy pain.

Thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

All my biopsies were as flat as possible. I eat cheese. Some people without Celiac can't eat cheese because of lactose intolerances. Give it 6 months or a year and try it again.

0

Share this post


Link to post
Share on other sites

Where do they find these people ?   <_<  :angry:  :blink:  :huh:  :o  :ph34r:   

 

No, really, is this a licensed medical professional, or a registered dietician, what state, what affiliation ?  Don't have to give a name, just curious.  Do they promote a vegan diet, in general ?  There are some real whack-a-doodles running around the internet right now, and they're hooked into the various lobbies for promoting higher grain consumption or bogus health care related concerns, not whether or not one wishes to consume animal products on personal ethical grounds. 

 

2 bad misinformation statements:

 

1. Being celiac, you will never totally heal G.I. tract

2. cheese/dairy prevents absorption of vitamins & minerals 

 

You could still be a person who cannot handle dairy, as an adult, whether or not you are celiac or gluten intolerant.  This depends mostly on your genetics.  Some herding/agrarian  people evolved to be able to handle cow milk products, and they then moved up out of the "cradle of civilization" in the middle east thousands of years ago, to Europe and western Asia, and spread worldwide.   You could be reacting to the trace contamination of antibiotics in non - organic dairy, for example, and do better with organic or 'grass- fed only' milk products.  You may be sensitive to lactose, the milk sugars.  Or you can be reacting to casein, the milk proteins from cows.  You might be a person who can only handle goat's milk products.   You could still have ongoing damage and not have completely healed up yet, and still have to wait a while to attempt to reintroduce non lactose dairy, to see what happens. 

 

But to issue a blanket statement that "celiacs cannot do dairy, forever," is not accurate, in the least bit.  :angry:  It really depends on a whole host of other factors. 

0

Share this post


Link to post
Share on other sites

I am pretty sure you and I have had this discussion before, but I'll pipe in again.

 

Most celiacs can tolerate dairy, soy and everything under the sun ONCE THE VILLI regrow and the GI tract is healed.

 

My doc recommended 6 months DF, then give it a go. I waited 10.

 

I could not tolerate many foods, dairy included, at first but now, I enjoy it just fine. 

 

A blanket statement such as "NO celiacs can ever eat dairy"  is categorically incorrect.

 

Read the book Real Life with Celiac Disease for some honest, accurate info, including nutritional guidance.

 

http://www.barnesandnoble.com/w/real-life-with-celiac-disease-melinda-dennis-ms-rd-ldn/1023352792

0

Share this post


Link to post
Share on other sites

All my biopsies were as flat as possible. I eat cheese. Some people without Celiac can't eat cheese because of lactose intolerances. Give it 6 months or a year and try it again.

Thanks, that's what I thought! I am just interested because of all the conflicting advise ! Ugh! I was marsh 3, dunno what I am now... I tried once then decided to leave it for a year, but this nutritionist doctor stumped me!

0

Share this post


Link to post
Share on other sites




Where do they find these people ? <_<:angry::blink::huh::o:ph34r:

No, really, is this a licensed medical professional, or a registered dietician, what state, what affiliation ? Don't have to give a name, just curious. Do they promote a vegan diet, in general ? There are some real whack-a-doodles running around the internet right now, and they're hooked into the various lobbies for promoting higher grain consumption or bogus health care related concerns, not whether or not one wishes to consume animal products on personal ethical grounds.

2 bad misinformation statements:

1. Being celiac, you will never totally heal G.I. tract

2. cheese/dairy prevents absorption of vitamins & minerals

You could still be a person who cannot handle dairy, as an adult, whether or not you are celiac or gluten intolerant. This depends mostly on your genetics. Some herding/agrarian people evolved to be able to handle cow milk products, and they then moved up out of the "cradle of civilization" in the middle east thousands of years ago, to Europe and western Asia, and spread worldwide. You could be reacting to the trace contamination of antibiotics in non - organic dairy, for example, and do better with organic or 'grass- fed only' milk products. You may be sensitive to lactose, the milk sugars. Or you can be reacting to casein, the milk proteins from cows. You might be a person who can only handle goat's milk products. You could still have ongoing damage and not have completely healed up yet, and still have to wait a while to attempt to reintroduce non lactose dairy, to see what happens.

But to issue a blanket statement that "celiacs cannot do dairy, forever," is not accurate, in the least bit. :angry: It really depends on a whole host of other factors.

Thanks takala!

You made me smile, thank goodness for people like you!!

I am in the UK. I personally believe we are a little behind on the times with regards to celiac. I lived in London until recently, I had a great doctor, but useless gastroenterologist. This consultant told me I should have healed in 9wks! I was gluten free for 9 weeks before biopsy then told I was not gluten free compliant as my biopsy results showed severe damage.

I have since moved. Again, completely useless doc. Changed again. This last one told me that my allergies (since bring gluten-free) are nothing to do with leaky gut and that leaky gut was a debatable condition.

So. I went privately. A classically trained medical doctor, knew all about leaky gut. Spoke lots of sense, agreed that a lot of my recent allergies were probably to do with leaky gut and an over active immune system etc... Then progressed to tell me that my gut would never heal completely. That I would never be able to eat gluten again (er, hello?!!) and that cheese was off the menu due to celiac being a malabsorption disease. The argument being that cheese 'coats' the mucosa and hinders the absorption of other vits etc.

She tried the old story 'what other animal drinks milk from a different species?/as adults we do not produce as much lactase' blah blah, usual contra dairy arguments. Having been veggie for 25 years I've heard about every possible theory argument on moral and ethical reasons for consumption of dairy or meat etc! I want hard facts! She seemed quite sure and confident that dairy was of no real use in our diet and must be avoided for sure being celiac! I kinda get her point in a way... But can't see that assuming that every meal wasn't a lump of cheese, that it would inhibit vit and min uptake?!

I really missed cheese to start with, dreamt about it too. I'm getting over cheese now slowly, but I must say I agree with you. Makes FAR more sense.

Thanks again :)

0

Share this post


Link to post
Share on other sites

I am pretty sure you and I have had this discussion before, but I'll pipe in again.

Most celiacs can tolerate dairy, soy and everything under the sun ONCE THE VILLI regrow and the GI tract is healed.

My doc recommended 6 months DF, then give it a go. I waited 10.

I could not tolerate many foods, dairy included, at first but now, I enjoy it just fine.

A blanket statement such as "NO celiacs can ever eat dairy" is categorically incorrect.

Read the book Real Life with Celiac Disease for some honest, accurate info, including nutritional guidance.

http://www.barnesandnoble.com/w/real-life-with-celiac-disease-melinda-dennis-ms-rd-ldn/1023352792

I will order the book tomorrow thanks for the link. Yes, I know we touched on the subject before, it's just that I saw this new doc, I had high hopes for her and actually she has the been the best so far!

I think she meant that as a celiac we never recover all of our villi, especially if we have been severely affected. Therefore eating dairy coats the villi hindering nutrient absorption. This is why celiacs should not eat dairy!

Not my words, hers! This was only on Thursday, and it has been bothering me for a few days as I really can't believe I will NEVER have a cheesy spud again!! ;) it's been bothering me! I tried cheese reintroduction about 6 weeks ago but it caused tummy ache. So I decided to leave it a year. Happily. But I was surprised by this woman's response. I had high hope for her... I may even show her this thread to see what she says.

Thanks Irishheart, looking forward to reading the book

0

Share this post


Link to post
Share on other sites

I have never read a medical journal that says "as a celiac we never recover all of our villi"

 

and

 

"Eating dairy coats the villi" --hindering nutrient absorption?????

 

 

what the heck does that even mean?? how does dairy COAT the VILLI

 

Is this exactly what  she said? Are you sure, because this makes NO sense whatsoever, so I am skeptical of her advice. Sorry

 

 

 

You posted:

I think she meant that as a celiac we never recover all of our villi, especially if we have been severely affected. Therefore eating dairy coats the villi hindering nutrient absorption. This is why celiacs should not eat dairy! 
Not my words, hers.

0

Share this post


Link to post
Share on other sites

I have never read a medical journal that says "as a celiac we never recover all of our villi"

and

"Eating dairy coats the villi" --hindering nutrient absorption?????

what the heck does that even mean?? how does dairy COAT the VILLI

Is this exactly what she said? Are you sure, because this makes NO sense whatsoever, so I am skeptical of her advice. Sorry

You posted:

I think she meant that as a celiac we never recover all of our villi, especially if we have been severely affected. Therefore eating dairy coats the villi hindering nutrient absorption. This is why celiacs should not eat dairy!

Not my words, hers.

I cannot say if word for word this is EXACTLY what she said but I'd say my rendition is 85% there. The meaning however is completely there! She even drew me diagram to show how dairy 'coats' the lining over the villi. She asked me if I'd ever heard the old wives tale, 'drink a pint of milk before you go out drinking alcohol'... Obviously I have. She said there's more truth in it than we know as milk will line the stomach and stop alcohol absorption.

Which is fine and great but I said I thought I was talking about the villi in the small intestine? So she said 'same principle applies'.

She did say that in most people it didn't cause a problem but in celiac disease because of unrecovered damage to lining we had to encourage as much absorption as possible. Again, perhaps not exactly vertabim but pretty much

I'm glad you disagree. It's a shame, she seemed quite well informed otherwise.

0

Share this post


Link to post
Share on other sites

Still flabbergasted by that sentence.  :lol:  

 

I do not think "old wives' tales" constitute sound medical advice.

 

The tips of the villi is where lactase, the enzyme that helps us to digest the  lactose in milk is produced.

When the villi grow back, people usually can digest lactose once more.

Some celiacs still have problems with dairy, yes, but not the vast majority.

 

Milk does not "coat the villi" and hinder nutrient absorption. If this were the case, wouldn't ALL people who

drink milk  be malnourished? celiac or not? 

 

May be time for a new dietician??.Or just read for  yourself and carve out a dietary plan. 

 

Look up Shelly Case or Tricia Thompson. REAL celiac R.Ds--their advice may be more helpful. IMHO

0

Share this post


Link to post
Share on other sites

I noticed dairy bothering me way before I noticed gluten. But after reading up on Celiacs and gluten issues, I wonder if down the road, dairy will be okay for me. It'd be nice if it was. I do love cheese and ice cream, lol. 

0

Share this post


Link to post
Share on other sites

Still flabbergasted by that sentence. :lol:

I do not think "old wives' tales" constitute sound medical advice.

The tips of the villi is where lactase, the enzyme that helps us to digest the lactose in milk is produced.

When the villi grow back, people usually can digest lactose once more.

Some celiacs still have problems with dairy, yes, but not the vast majority.

Milk does not "coat the villi" and hinder nutrient absorption. If this were the case, wouldn't ALL people who

drink milk be malnourished? celiac or not?

May be time for a new dietician??.Or just read for yourself and carve out a dietary plan.

Look up Shelly Case or Tricia Thompson. REAL celiac R.Ds--their advice may be more helpful. IMHO

Thanks Irish.

I too was also quite shocked which is why I came on here to ask... I thought it over a few days, looked it up... And thought exactly what you said ... If that the case, wouldn't everyone that ate cheese be malnourished! I have to go back for pee analysis (payed money for it!)... So will seem it to be my last appt with her. I am going to show her this thread too. Perhaps she has further info!!

I will read up, I DO read up! Cheers

0

Share this post


Link to post
Share on other sites

I noticed dairy bothering me way before I noticed gluten. But after reading up on Celiacs and gluten issues, I wonder if down the road, dairy will be okay for me. It'd be nice if it was. I do love cheese and ice cream, lol.

Hi

I always had a diarrhea episode (4weeks long) when I ate too much pizza! And had the classic pale stool thing too! I think it was too much cheese, it was always on a fat overload day that it tipped me over...

I love cheese and ice cream too. I dream of cheesy baked potato, followed by green & blacks dark choc ice cream.... Oooooooo yum! I'm serious too, I dream about!!

0

Share this post


Link to post
Share on other sites

I am 3.5 months gluten free and I can't have dairy :(  I was still eating dairy until this past week but I was still sick all the time.  Then I finally decided to bite the bullet and get rid of dairy and my stomach bloat, gas, and diarrhea has gone away.  So I am going to do dairy free for 6 months and then try introducing small amounts again.  I don't know what in the world we are supposed to eat when we can't have gluten or dairy!

0

Share this post


Link to post
Share on other sites

Everything else, hon! :) It's do-able, I assure you. Hang in there.

0

Share this post


Link to post
Share on other sites

I am 3.5 months gluten free and I can't have dairy :( I was still eating dairy until this past week but I was still sick all the time. Then I finally decided to bite the bullet and get rid of dairy and my stomach bloat, gas, and diarrhea has gone away. So I am going to do dairy free for 6 months and then try introducing small amounts again. I don't know what in the world we are supposed to eat when we can't have gluten or dairy!

I understand your pain!! I am dairy and gluten free. And corn free (almost worse than gluten cos it's everywhere and in everything)... Caffeine free, citrus free, egg free, processed free. Also asthmatically allergic to dates, quinoa, seeds... Paprika, celery gives me hives... Etc etc, so on and on. It's a nightmare. But it's doable as Irish heart says and knows. I have found the easiest way is to not make food the centre of your life... Easier than it seems. But I just realised the other day how good my skin is looking from all the green juice breakfasts I've been having...

I do get baaaaad cravings sometimes for a nice bit of cheese. Ugh!! Oh well. As long as I live to see my son grow up ANYTHING is worth it!

0

Share this post


Link to post
Share on other sites

Some doctor's (and savvy celiacs) recommend going dairy free at the beginning because your vili are still healing, making it hard to digest dairy. Dairy won't cause additional damage. (Wow, some "doctors"...)

 

I didn't go dairy-free until a couple years after gluten-free (and held out as long as possible). I seem to be able to handle very small (a nibble) of aged/hard cheese on occasion, and a little bit of butter as long as i overdose on enzymes. I'm holding out hope that I'll be able to tolerate more cheese at some point. That's the one thing I really can't replace.

 

As for eating dairy free, I use almond milk for coffee/cereal. Coconut milk is a great cream substitute. I can't do soy either (which is even worse to avoid than gluten, I swear!), but if you can, then there's a bigger selection of non-dairy products out there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,517
  • Topics

  • Posts

    • 9 year Old going through testing
      Yes, ATTITUDE, in all caps, and i am in the field of health care...!
    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined