Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Else Get The Bone Aches?!
0

14 posts in this topic

Hey all.  I'm an active 32 year old male who was diagnosed last November.  I'm experiencing some bone pain around my ribs and collarbone.  It comes and goes.  Sometimes I notice it more than others.  My bone density is slightly below average and my IGG was 81 two months ago.  I'm not taking any meds.  Does anyone have insights?  Is this common?  My CBC was good and my vitamin panel was fine.  I do have total villous atrophy.  My liver enzymes were elevated but returned well into normal ranges on a strict gluten-free diet.

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

When you say your vitamin panel was fine, what was your Vit.D score and range?  If you have lost bone density at your age you probably need to be supplementing D.  Unless you are above average, with osteopenia (which I am assuming - it might not have reached that level but no matter) you need to be supplementing.  5,000 iu/day to bring you above average and then drop back (or stay the same if necessary) to keep it there. :ph34r:

 

Many celiacs experience bone pain/joint pain for some time.  I don't know if this is something new for you.  It is certainly not due to being gluten free, if it is, but may have been coming on anyway.  Sometimes it is rheumatoid-type pain, sometimes it is connective tissue, sometimes it is hard to tell what it is.  Stay and the course and you should see some improvement.  If it gets worse or worries you by all means talk to your doctor. 

 

It sounds like you are on the right path, but with total villous atrophy your body is going to take a while to get back in equilibrium. :)

0

Share this post


Link to post
Share on other sites

It may be some mild costochondritis , an inflammation of the softer connective tissue holding the rib cage together. 

http://www.webmd.com/pain-management/costochondritis

 

There are some forms of arthritis where this is more common, and to say it is painful when it flares up is an understatement.  Sometimes I still get a very slight twinge of it when I have eaten a bit more carefree of processed food (I am off of gluten for a decade now) or have really exercised certain muscles and have not recovered yet.  I have been a lot better since I was accidentally kicked in the sternum by a young horse about 7 years ago, I think the son of a gun broke up some scar adhesions, but at the time, I thought I was going to die until I managed to get my breath again. (older horse nearby did something out of a movie script and intervened as I was laying there and went after the culprit, culprit horse went to trainer, new owner, happily ever after, etc).  I really do not recommend that "cure," it's easier to stick to the gluten free diet, take those vitamin and mineral supplements, and keep the back end of the equine pointing away from you ! 

 

You can also try incorporating more ginger and tumeric, natural anti inflammatories, into your meals and beverages, and when cherry season starts, try eating lots of cherries. 
 

0

Share this post


Link to post
Share on other sites

Thanks for the feedback!  My Vitamin D range is 25-80 and mine is 33.  Great perspectives on the connective tissue inflammation as well.  I am seeing my PCP this week and will run it by him but am confident he won't be too concerned.  It's nothing that really prohibits my daily activity right now but want to make sure I stay on top of things to keep it from digressing.

 

Thanks again for the thoughtful responses.  I do appreciate it.

0

Share this post


Link to post
Share on other sites

Bone aches can also be hyperparathyroid, the tests are PTH and calcium. And, yes, the blood tests are way too wide (like with thyroid)

0

Share this post


Link to post
Share on other sites




Sitz (spelling) baths can help with bone and muscle and yes, anti inflammatory foods are great all the time.  

 

Good luck. 

 

Colleen 

0

Share this post


Link to post
Share on other sites

Hey all.  I'm an active 32 year old male who was diagnosed last November.  I'm experiencing some bone pain around my ribs and collarbone.  It comes and goes.  Sometimes I notice it more than others.  My bone density is slightly below average and my IGG was 81 two months ago.  I'm not taking any meds.  Does anyone have insights?  Is this common?  My CBC was good and my vitamin panel was fine.  I do have total villous atrophy.  My liver enzymes were elevated but returned well into normal ranges on a strict gluten-free diet.

it could be the osteopenia. I assume you had a bone density test.  I had rib pain when I was first diagnosed and it took a while for it to dissipate. I had a follow up bone scan and found out my density went down in my hip to borderline osteoporosis.  FInally my endocrinologist ordered a 24 hour urine collection to measure the amount of calcium I am excreting. and it turned out to be quite high so I have to take something to try and correct it.

don't assume that as your intestine heals your calcium absorption will improve and and correct your bone density. there could be other things out of whack that might interfere with re-mineralization of your bones.

0

Share this post


Link to post
Share on other sites

I had wicked rib cage pain (still do, to an extent) and my collar bone region hurts like heck.

I was told it was costochondritis.

 

I have lots of "itises" --I feel like I am the queen of "itis" :unsure: ---as so many of us can relate to, I'm afraid.

 

It is better after 2 years gluten-free, and I remain hopeful for continued healing. 

I have horrid bone/joint/muscle pain from celiac, but it does improve.

Hang in there. 

 

Your D level (33) is too low. Mine was 17 at one point and every doc told me to get it over 75!!!

Boost your D levels, perhaps? IMHO. 

0

Share this post


Link to post
Share on other sites

it could be the osteopenia. I assume you had a bone density test.  I had rib pain when I was first diagnosed and it took a while for it to dissipate. I had a follow up bone scan and found out my density went down in my hip to borderline osteoporosis.  FInally my endocrinologist ordered a 24 hour urine collection to measure the amount of calcium I am excreting. and it turned out to be quite high so I have to take something to try and correct it.

don't assume that as your intestine heals your calcium absorption will improve and and correct your bone density. there could be other things out of whack that might interfere with re-mineralization of your bones.

Quincy--good looking out.  I think I will mention the idea of a 24 hour urine during my next visit.  I recently did a urine test in office that came back fine from an infection/protein perspective but I'm assuming it would not pick up what you are talking about.  If I were dumping calcium, how does one correct it?

0

Share this post


Link to post
Share on other sites

I had wicked rib cage pain (still do, to an extent) and my collar bone region hurts like heck.

I was told it was costochondritis.

 

I have lots of "itises" --I feel like I am the queen of "itis" :unsure: ---as so many of us can relate to, I'm afraid.

 

It is better after 2 years gluten-free, and I remain hopeful for continued healing. 

I have horrid bone/joint/muscle pain from celiac, but it does improve.

Hang in there. 

 

Your D level (33) is too low. Mine was 17 at one point and every doc told me to get it over 75!!!

Boost your D levels, perhaps? IMHO. 

Thanks for the heads up on the D levels.  I have been slacking on taking my D supplement.  Thats great motivation to get back with it.  Thanks!

0

Share this post


Link to post
Share on other sites

Thanks for the heads up on the D levels.  I have been slacking on taking my D supplement.  Thats great motivation to get back with it.  Thanks!

Just checking in to see if your D is up? did your  doc check your levels again? You can always safely dose with 2,000 Ius daily.

0

Share this post


Link to post
Share on other sites

I haven't had my Vitamin D check since January.  I will most likely have it checked again in July along with some other labs.  I keep forgetting to take my Vitamin D in the morning.  Went for a light jog this evening.  The good news is that the shooting pain around my shoulders during running has gone away.  The bad news is, I'm getting a shooting pain about 2 miles in from my foot which pretty well ends things right there.  

 

I'm SO grateful that I can just jog 1-2 miles.  I couldn't do it last fall.  Too painful. 

 

Currently though, there is a direct connection with me breaking a sweat and sleeping really well.  If I go for a jog for 20 minutes, I sleep well for 2-3 nights in a row.  Go figure...

 

I SWEAR I'm going to take that Vitamin D.  Thanks for checking!

0

Share this post


Link to post
Share on other sites

i got these pretty tasty Vitamin D tablets from Bluebonnet http://www.amazon.com/Bluebonnet-EarthSweet-Chewable-Vitamin-2000/dp/B002NV4XOI/ref=sr_1_2?ie=UTF8&qid=1370574358&sr=8-2&keywords=bluebonnet+vitamin+d3+2000+iu

 

would that help you remember to take them  :)

I haven't had my Vitamin D check since January.  I will most likely have it checked again in July along with some other labs.  I keep forgetting to take my Vitamin D in the morning.  Went for a light jog this evening.  The good news is that the shooting pain around my shoulders during running has gone away.  The bad news is, I'm getting a shooting pain about 2 miles in from my foot which pretty well ends things right there.  

 

I'm SO grateful that I can just jog 1-2 miles.  I couldn't do it last fall.  Too painful. 

 

Currently though, there is a direct connection with me breaking a sweat and sleeping really well.  If I go for a jog for 20 minutes, I sleep well for 2-3 nights in a row.  Go figure...

 

I SWEAR I'm going to take that Vitamin D.  Thanks for checking!

0

Share this post


Link to post
Share on other sites

I hate to state the obvious solution, but what the heck.....how about you PUT a post- it on your bathroom mirror saying:

 

"DUDE...Take your Vit D!!"

 

;)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,094
    • Total Posts
      920,329
  • Topics

  • Posts

    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
    • I sit in an ice bath after a long training (running or riding).  It speeds my recovery, I swear!  
    • Oh, one last thing..... ICE PACKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You'll feel better. Hey, you have a tub? Want to join the polar bear club in the privacy of your own home? Fill that thing with cold water & dump a 5 or 10 lb bag of ice in there. I'm serious.
    • I don't care what she specializes in, you MAKE her do a dh biopsy. I'm not being mean. Please understand that. It's just that I've heard this a thousand times before - no, a thousand one hundred!  Here's another thing ~~~ get her to order a eTG aka TG3 serum (blood test). That is specific for dh.  Oh gosh! Don't you just hate the ones in your ears???!!!!! Nah, we hate ALL of them! I swear though, when those suckers get going in & on your ears it just drives you stark raving mad!!!!! You've convinced me there is more than ample reason to strongly suspect it's dh.  Here's a tip..... the patterning the lab will be looking for is very easily destroyed by scratching so pick you out some prime places that are new & maybe, just maybe you haven't scratched them to smithereens thus far, and make some super thick gauze bandages & place them over those places so even if you reach to scratch (& we know you will! right?) the gauze will remind you & hopefully help to protect it. The biopsy needs to be taken from a clear area adjacent to a fresh lesion. No steroid creams okay? Not till after the biopsy. BTW, if she wants to put you on steroids after the biopsy be warned, 99% of the time there is such a backlash of the rash the moment you go off the steroid that you will wish you were never born. A dx of dh IS a dx of celiac disease & no further testing is needed. Please come back & update us after you see her tomorrow. In the meantime you have my heartfelt sympathy. Take those cold showers & grit your teeth. Hopefully you will soon be able to go gluten free & start getting some relief.   
    • Extremely itchy and keeps me up at night to the point I was taking cold showers at 3am.   Currently my ears, scalp, feet, and chin just will not stop itching, my elbows have the rash and look purple. Eventually the rash will heal and leaves scars that seem to be purplish in color. I have not tried gluten free diet yet.  Waiting for all the testing to stop.  The new allergist i am seeing tomorrow specializes in skin disorders.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,131
    • Most Online
      1,763

    Newest Member
    Celiac C.
    Joined