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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

3 Months Gluten-Free, Feel Like I'm Dying
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7 posts in this topic

I'm nearly 3 months out from my gluten free diet.  Things have been really rough for me. I'm starting to discover that fruit and starch and other high carb foods are not really good for me, especially if I eat too many of them.  I'm still very skinny.

 

I also discovered that I develop new allergies to foods if I eat them too much.  An IgE test proved it, I developed allergies to 3 vegetables I had been eating recently up until the appointment.

 

Today I just feel so anxious and sick.  I just can't wait for this day to end.  I know there's alot more people here that have it worse than I do too, but sometimes I just feel like I'm dying.

 

Edit: Anyone have to take iron supplements on top of this diet?  Wow, they hurt so much. >.>

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Hi!

 

Fortunately I have not developed allergies to any food since going gluten-free.  I recommend you visit Mark's Daily Apple website and look into the primal blueprint diet.  Hang in there.  Maybe after your digestive system has had time to heal you may be able to add some foods back.

Good Luck!

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I'm nearly 3 months out from my gluten free diet.  Things have been really rough for me. I'm starting to discover that fruit and starch and other high carb foods are not really good for me, especially if I eat too many of them.  I'm still very skinny.

 

I also discovered that I develop new allergies to foods if I eat them too much.  An IgE test proved it, I developed allergies to 3 vegetables I had been eating recently up until the appointment.

 

Today I just feel so anxious and sick.  I just can't wait for this day to end.  I know there's alot more people here that have it worse than I do too, but sometimes I just feel like I'm dying.

 

Edit: Anyone have to take iron supplements on top of this diet?  Wow, they hurt so much. >.>

Take heart. Be good to yourself, be patient, and consider that the "allergies" may not be permanent conditions at all, but instead temporary intolerances as your body adjusts and heals. I've been gluten-free for three months, and it's not always been smooth going. At first I feared I had a myriad of food intolerances in addition to gluten, but eventually I decided that I was paying such close attention to my body that I noticed every little thing. You'll likely find you can eat many things, in moderation, in several months. Until then, here are some things to try: my body responds EXTREMELY well to fish, kale, sauteed onions, garlic, flax seeds, sesame seeds, millet, amaranth, carrots, winter squash, and beets. Coconut is very good to me, as is green tea. Eat only whole foods--NO prepackaged gluten-free anything for a week and see if it helps. We're all different, but I feel bionic when I eat only whole foods.

 

As for an iron supplement, there's a naturally-derived iron supplement in liquid form (made in Germany) that I get from my local natural food store. It's expensive. But I was hospitalized for iron-deficiency anemia (I needed two blood transfusions before a doctor would even think about doing an endoscopy for a biopsy) and I'm regaining iron. It takes a long time for the body to convert food into heme iron and red blood cells. I left the hospital with a hemoglobin count of 10.9, and eight weeks later it was only 11.6. But hey, at least it's headed in the right direction.

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You've had some good advice already on here, so there's not much to add. I would like to say though, that I was gluten free for over a year before I really started to feel better.   I was extremely anaemic too and the first type of iron tablet I was prescribed made me ill.  There are different types of iron medication, so it's worth the time to look into one which is more suitable. 

 

Even though it's been 16 months since I started my gluten free diet I still get 'flare-ups' which I can't always pin point what has caused them.  (Cross-contamination etc.) so you have to act like a detective sometimes.  Don't dispair, it will get better in time.

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I take iron and don't understand about any pain associated with it.  I take a capsule of powder.  Mine is very natural, just meat.

 

At 3 months gluten free, part of the time I felt like I was dying.  Keep in my the goal of better health.  You are going toward it, but it isn't all up hill.  Often my lowest points were followed by the strongest ones yet, so I am hoping you're about due for one of those.

 

Diana

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I had the same issue, except it was almost 2 1/2 years after I started the gluten-free diet. I would try the Specific Carbohydrate Diet, and I only say that because you mentioned starches and carbs. I'm really not the type to tell someone "This worked for me, it will work for you," but it might point you in the right direction. There are many similar diets that might be as helpful to you as SCD was for me.

http://scdlifestyle.com/2012/04/the-toxic-truth-about-gluten-free-food-and-celiac-disease/ - This site really changed my life. I hope this helps.

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I also have difficulties taking iron , I take two sachets a day of spatone www.Spatone from boots pharmacy , I am in the UK but

It sounds just like the one PRG takes from Germany and I too find these type of supplements very kind and gentle on the tummy,

they are supposed to get absorbed very easily , even when my tummy was at its worst I had no problems taking this type of iron

and I also ate more meat ,

hope you start feeling better soon

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