Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ibs And Hysterectomy
0

25 posts in this topic

Does anyone else have severe IBS?? I'm on 3 different IBS meds now and I'm even having a complete hysterectomy.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Talk to us, Amanda.  Tell us a little more about yourself and your symptoms.  We are here to listen. :)

0

Share this post


Link to post
Share on other sites

Welcome Amanda!

 

I had a hysterectomy -- not total -- 12 years ago due to cancer - wasn't diagnosed with Celiac until 4 years ago after decades of numerous symptoms.

 

IBS is a collection of symptoms that are often the same as those with missed or un-diagnosed Celiac Disease.

 

Let us know if we can help :)

0

Share this post


Link to post
Share on other sites

Another "IBS" and hyster-sister right here. Total hysterectomy after years of miscarriages and the early menopause from hell. 

 

Those symptoms you're having may all be celiac-related.  Tell us more!  (that "IBS" I had for most of my life--all gone)

0

Share this post


Link to post
Share on other sites

Yep, IBS all my life and hysterectomy at age 49 following an unpleasant period where I was in peri menopause, my then indiagnosed celiac was shifting into high gear, and I had fibroids, endometriosis and addenomyosis.

Let us know how we can help-- there is light at the end of this tunnel:)

0

Share this post


Link to post
Share on other sites




.......and that light is not an oncoming train, we promise! :)

 

Me, too, P--I was 47 and those fibroids, endo, cysts, etc can wreak havoc with the intestines. Adhesions can make a mess, too.My entire pelvic floor was deeply impacted and I had to have "special PT" to make things right. Not fun. 

0

Share this post


Link to post
Share on other sites

.......and that light is not an oncoming train, we promise! :)

 

Me, too, P--I was 47 and those fibroids, endo, cysts, etc can wreak havoc with the intestines. Adhesions can make a mess, too.My entire pelvic floor was deeply impacted and I had to have "special PT" to make things right. Not fun. 

Not at all <_< I had a similar mess going on in there--the surgeon had to deviate from the planned procedure because the endo had attached itself outside the reproductive area.  Looking back, I wish I had had it done 10 years prior. (the famous hindsight B) )

0

Share this post


Link to post
Share on other sites

Does anyone else have severe IBS?? I'm on 3 different IBS meds now and I'm even having a complete hysterectomy.

what is the reason for the hyst?  what out comes are being hoped for?  If you haven't tried gluten free, I would give it a go first.

0

Share this post


Link to post
Share on other sites

I'm 31 and I've been gluten free for almost a year, not only with my food but w/ every products. I've always have had a history w/ my periods I.E. small clots cysts bad cramps. But since the IBS dx the clots are now the size of cutie oranges, severe watery D, and vomiting. I lost 5lbs in 3 days and was extremely weak. With an active 5 year old I can't afford to go down like that.

0

Share this post


Link to post
Share on other sites

And I'm having surgery 3-13-13 so if I don't respond in a timely manor you know why. Lol

0

Share this post


Link to post
Share on other sites

And I'm having surgery 3-13-13 so if I don't respond in a timely manor you know why. Lol

Best of luck! I hope it all goes smoothly. Let us know how you're doing when you are able:)

0

Share this post


Link to post
Share on other sites

Best of luck Amanda!

If you haven't been there yet HysterSisters is a great website :)

0

Share this post


Link to post
Share on other sites

Best wishes for a speedy recovery!

0

Share this post


Link to post
Share on other sites

Yes-- HysterSisters! That was very helpful to me, thanks Lisa:)

0

Share this post


Link to post
Share on other sites

My gyno office called this evening to say that BCBS decided to deny my surgery at the last minute :(. If I was a betting gal I would say the person whom denied it has male plumbing! Now they have my doc and I jumping through hoops and dang it my muscles hurt to much to keep jumping not to mention girls w/ big boobs aren't ment to jump!!!

Ok...I feel a lil better now after venting.

0

Share this post


Link to post
Share on other sites
:(
0

Share this post


Link to post
Share on other sites

Goodness:(. I hope your doctor will be able to get them to cover it.

0

Share this post


Link to post
Share on other sites

Only time will tell :). I'm just trying to stay positive in the mean it and jump thru their stinkin hoops. Thanks for all help!!'

0

Share this post


Link to post
Share on other sites

I'm 31 and I've been gluten free for almost a year, not only with my food but w/ every products. I've always have had a history w/ my periods I.E. small clots cysts bad cramps. But since the IBS dx the clots are now the size of cutie oranges, severe watery D, and vomiting. I lost 5lbs in 3 days and was extremely weak. With an active 5 year old I can't afford to go down like that.

What about an ablation?  have you tried anything to suppress ovulation for an extended period of time? have had a D/C?    It makes me very nervous when a doc is going for the hyst in a person so young. 

0

Share this post


Link to post
Share on other sites

Good luck!  Try not to worry.  I have both IBS and had hysto when I was in my early 40's, it's not as bad as you think.  Let us know how you get on.

0

Share this post


Link to post
Share on other sites

We have been suppressing ovulation w/ meds but my body isn't handling it very well. It's like it can sense the need to go into a cycle and can't and my bowel become inflame still killing my lower back. But she did an ultrasound and found evidence of a " spongey " uterus so now I go in for out patient procedure thru the belly button ( which the insurance wanted any way) this up coming week.

0

Share this post


Link to post
Share on other sites

Thanks for the update. All the best to you:)

0

Share this post


Link to post
Share on other sites

Oh Goodness...Hang in there Amanda!

 

Keep us updated...pulling for and praying for you that the upcoming procedure goes well. :)

0

Share this post


Link to post
Share on other sites

Thanks every1. I was never worried about having the hysto I was kind of looking forward to it lol, I was just wondering if it helped w/ the IBS or was hoping for to much. I know it's not a cure but I would be grateful for a 1% improvement....

0

Share this post


Link to post
Share on other sites

Amanda, many times it can help with IBS symptoms, especially in the case of endometriosis.

I had my surgery after I had been gluten-free for 2 years. My bowel symptoms improved a lot in those 2 years, especially after I identified some additional food intolerances and cut those from my diet.

I can say that the monthly pain and diarreah that always accompanied my period went away, never to return.

I hope you sail through your surgery, recovery, and feel much, much better. I am betting you will:)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,155
    • Most Online
      1,763

    Newest Member
    AndiR
    Joined