Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Testing Info-What Did You Use?/my Symptoms


Babyb

Recommended Posts

Babyb Newbie

I don't know if I'm in the right place, but I've spent some time browsing here and know you guys have a lot of information regarding all sorts of immune issues so I figured this would be the best place to go. 

 

Testing- I need an at home kit. Which did you use, did they find anything?  I called an allergist this morning and wanted 350-400 just for an appointment, and I have no insurance.

 

I suffer from EXTREMELY severe eczema and have all my life.  Covered- head to toe, face, neck, and all the other usual places.  I need to know why.  I have been getting blisters on my lower lip about 10-15 minutes after I eat (I always have) but I decided to start taking notes on when it would happen consistently.  Processed chicken nuggets are the worst offenders, Lipton cup of soup, guacamole, some forms of vitamins.   

 

I'm sort of at my wits end here.  

 

I'm obviously allergic to something, I don't have a clue what it is (dairy?), and use the "free detergents."  I have no digestive symptoms just the blisters and severe eczema.

 

Can any of you guys shed any light?  Thanks so much in advance.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Welcome to the board.  I'm sorry to hear you haven't been well.

 

I used the Biocard home test which tests ttg IgA levels, as well as tests for adequate serum IgA levels. A positive ttg IgA test will usually indicate celiac but it can indicate there are other autoimmune diseases like Hashimoto's, and it can also be raised from infection like e.coli.  The Biocard home test is designed as a celiac blood test (pin prick on the finger) and can be used to help diagnose you; I did further testing with my doctor to be sure. It costs between $50-100.

 

It's not a fool proof test though. I know of someone who had a positive Biocard test but when the doctor checked her, all blood work was negative; she later discovered that she had lyme disease.

 

Celiac disease is an autoimmune disorder and not an allergy, but it can cause painful rashes. Check out the Dermatitis Herpetiformes board on this forum, perhaps some will be able to help you further there.

 

Best wishes.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,030
    • Most Online (within 30 mins)
      7,748

    Tina Rice
    Newest Member
    Tina Rice
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is concerning.  Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists.  Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby!
    • Katiec123
      @RMJ   this is really concerning and my GP has said none of this to me! 
    • RMJ
      Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten free, but it wouldn’t affect your baby. I know which one I would choose!
    • cristiana
      @Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list!  Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something, even back then?  But I know what you mean about black forest gateaux - I've never really liked McDonalds, Burger King or KFC but now wish I could eat all that stuff when my family are tucking into theirs!   On the plus side, you may have seen, in the big supermarkets, particularly Tesco's, the gluten free aisle is ever expanding.  In one of our local branches now it pretty much occupies a whole aisle.   You might have to shop around, but it is amazing what you can find.  Ginster's make their own gluten-free pasties now, for example.  I just need a senior executive from McVities to read this thread because once Penguins are gluten-free, I shall be happy! As for prescriptions, this link should help you find out what you are entitled to - yes, NHS lottery is absolutely how it is! I have personally never bothered with prescriptions, but some do.  I think perhaps what you could do is buy gluten-free for a month, cost it, then see if it's worth your while compared with what the NHS can offer.  With some bread loaves costing £3.50 a shot, it might be worth it? By the way - do keep us posted if you can, we'd love to know if your gastroenterologist insists upon an endoscopy.    
    • Katiec123
      Hi everyone!  I’m beginning to get a bit worried. I have had the first lot of tests done and my bloods are showing as a very strong positive for coeliac. I am also currently pregnant. I have been told to continue to eat gluten until more testing is done (biopsies). If I continue to eat gluten when the chances are very high that I am coeliac, will this harm or affect baby? I feel like I don’t know where to get answers from as I haven’t seen the specialist yet 
×
×
  • Create New...