Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Get Gluten Type Reactions From Coffee?
0

11 posts in this topic

I went off coffee for about 5 months. When I started back on it I got some GI issues- not as bad as gluten but similar. I thought it may be from the little bit of creamer so I switched to rice milk which I never react to. I still seemed to have GI issues from coffee. Not cool. Anyone else find this? I know there is some info out there about the cross reactivity of coffee and gluten (even though coffee is Gluten-Free the body may react to it like gluten - or something to that effect).

 

Thoughts?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't believe there is any good scientific evidence that coffee looks like gluten to our bodies.  Its amazing how someone with an agenda, a slick website and products to sell becomes  a "medical" authority.  And even more amazing how it spreads as if it were true.

 

http://www.cureceliacdisease.org/archives/faq/is-there-evidence-of-cross-reactivity-such-as-any-foods-that-do-not-contain-gluten-but-cause-gluten-like-reactions-in-the-body

 

 

Coffee can be harsh to your system.  Maybe it is not for you.  I find that, if I don't have food or some milk with it, it hurts my stomach.

0

Share this post


Link to post
Share on other sites

What about other sources of caffeine? Do they make you sick too?

0

Share this post


Link to post
Share on other sites

I had issues with coffee and with coca cola as well. Now I'm just trying to avoid them.. The odd coffee (even an Italian espresso) doesn't bother me but a couple of cups of American coffee a day play havoc with my bowels. Ditto for tea. I've been gluten-free three months and I think my gut is just very sensitive (for now, hopefully) to anything harsh.

0

Share this post


Link to post
Share on other sites

I gave up coffee some years ago.  After a few years I tried tea and am able to drink that now.  I haven't tried coffee though and don't plan to.

0

Share this post


Link to post
Share on other sites




I love my coffee and could never stop it (well, I wouldn't want to). However - if I have coffee on an empty stomach sometimes it can result in some gastric issues. My hubby (non celiac) is the same....esp. first thing in the morning.

 

Also - if I have been glutened coffee is more effective on me in that way. Like a lot of things (eg. dairy) - if I am already 'down' it doesn't take much to bother me.

0

Share this post


Link to post
Share on other sites

I have always had more of an effect of coffee than a similar amount of caffeine from tea or cola. My mom gets a pretty upset stomach from coffee (and she's the only person who bothered to get fully tested for celiac disease, she doesn't have it), and I have a cousin who gets heart palpitations from it if she drinks a large cup.

 

Caffeine will speed up your bowel movements, just like it might make you a bit more jittery or alert, it's all part of the same thing. I bet you were constipated for a little bit when you stopped your coffee 5 months ago...that's normal too because caffeine is a drug and your body will habituate to it, so stopping it will have the opposite effects of the caffeine until your body adjusts to not having any.

 

I occasionally have it myself still, but I kick myself everytime I do. The 'down' afterwards, bitchiness, tiredness, isn't worth the high I get. I'm getting better, think I've only had it twice the past 30 days.

 

Decaf still makes my tongue dry.

 

As far as cross-reactivity in general, I'd call celiac's reactions to hordein in barley a cross-reaction since it's not gliadin. Clearly cross-reactions can occur.

 

I wouldn't worry about coffee damaging your intestines. But you may have all sorts of other adverse reactions to it, celiac or not.

0

Share this post


Link to post
Share on other sites

Maybe this could be the problem.  I looked at the USP food fraud database: http://www.usp.org/food-ingredients/food-fraud-database

 

They found barley, rye, soybeans, grain, malt, and corn in coffee.

 

I drink coffee, and I am super sensitive.  I stick with one brand, and I buy it whole and check through it so that I'm sure I'm getting pure coffee.

0

Share this post


Link to post
Share on other sites

The findings in that database are fascinating.  Especially about coffee being adulterated with those grains you mentioned, dilletantsteph. 

0

Share this post


Link to post
Share on other sites

I gave up coffee some years ago.  After a few years I tried tea and am able to drink that now.  I haven't tried coffee though and don't plan to.

 

well, take backs are free right?  So, I gave up regular tea for a few days and feel much better.  Not tired, not sleeping as much, actually have some energy too.  So tea isn't for me it seems.  It didn't seem to bother me right away.  but after a while it caused more and more symptoms.  Kind of snuck up on me.

0

Share this post


Link to post
Share on other sites

Coffee is very acidic and high in caffeine, which can be hard on your stomach -- especially an empty stomach.  Both me and the non-celiac gent get a little stomach upset with coffee.  (I am not a stomach celiac.)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,662
    • Total Posts
      918,516
  • Topics

  • Posts

    • Celiac - Not yet diagnosed but feel like I'm dying.
      Hi Dylan I just wanted to join SLLRunner in welcoming you to the forum and yes, do ask to be tested for Celiac and Chrons. My nutritionalist told me that celiac disease is a great mimicker of many illnesses which I think must make a doctor's job all the harder when it comes to diagnosis.  For many of us it took us  a long time to get a diagnosis - for about eight years before my own diagnosis I had ulcers,  odd migraines and hallucinations on waking, anxiety, elevated blood protein but no obvious cause for it, anemia, numb hands and arms in the mornings, and eventually the abdominal pain and severe diarrhea. It was all scary stuff but  it was only when I got the last two symptoms, for six weeks, that I was tested for celiac disease (for the protocol here in the UK is that if you have a new gastric symptom for more than six weeks you should have further investigations).  I still wonder if I hadn't had that gastric pain and diarrhea whether my doctors would have even thought it was celiac related? After all you have been through it is not surprising that you are feeling depressed.  A lot of people feel very depressed and anxious before their diagnosis.  You are doing the right thing seeing a new doctor, and hopefully you are just around the corner from getting some long awaited answers.   Keep us posted.  You will find  some great advice here and support during your journey.  All the very best.
    • Costco
      This forum post came up when I Google searched Kirkland Dish Soap. I called them today and they said there is no gluten in the dish soap. Janis 
    • Food tolerance issues post-diagnosis
      In light of the studies that found some probiotics that are labeled gluten-free yet tested over 20ppm I wouldn't touch them. Now those would be the powder or pill forms. Yogurt is not affected by that. Since you don't have a problem with dairy then I would say eat some yogurt every day. I like Chobani Greek because it has more kinds of cultures. Remember now that powder or pill forms of probiotics do not come under the gluten-free labeling law. The same for OTC & prescription meds. You need to check every single one of those. There are a few online sites where you can check things like that or ask here but as far as prescription meds -- call the manufacturer EVERY TIME. I also wanted to tell you in case you didn't already know that since celiac is genetic and can present at ANY age then all your first degree relatives need to be tested every 2 years in the absence of symptoms and immediately if symptoms present between the 2 year periods. As far as the digestive enzymes go, I tried Digest Gold for a short time & it really didn't seem to do anything for me however I will say I had a lot of issues going on at the time so I might not know if they helped or not. I decided to quit them in order to take that out of the equation so I could try to pin down what was causing me distress. The fewer things in the mix you know. I have heard people report the same as your consultant said. Some say they helped & some say they didn't. Remember Jammy, you're just in the beginning stages. I KNOW you want to heal & heal FAST. Been there, done that! It's like this: you didn't get sick overnight & you're not going to heal overnight. Patience is the watchword here. It's hard I know! You just want to get on with your life. We can all relate.  Again, I'm going to say to eat foods easy on your gut. WELL cooked foods. No raw carrots, coconut, nuts & stuff like that. Easier on your gut would be nut butters.... peanut butter, cashew butter, almond butter etc.... It's sort of like being a baby ---  soft, easy to digest foods. Bone broth is a great healer for you gut & extremely nutritious as well as being easy on the digestion. Here's just one recipe: http://wellnessmama.com/5888/how-to-make-bone-broth/
    • Food tolerance issues post-diagnosis
      Thanks for the tip! Will try that out in the next few days. By the way, has anyone had any joy with probiotics or digestive enzymes in terms of symptom relief/speeding up the healing process? I asked my consultant about this when I saw him last week and he said that some people find them beneficial while others don't, but obviously I'm keen to try anything that may help, with uncomfortable fullness/bloating/gas still being my main issue  - is it worth giving them a go?
    • Are The Following Gluten-free?
      I realize that this is an old thread but I would just like to say something about label reading. Just because a product says gluten free on the label doesn't mean that you don't have to read any further and can have complete trust in the product.  There are a lot of products that state that they are gluten free on the package and then you find out that they are processed in plants that also produce wheat products. If you are super sensitive, you need to know that information. I am afraid that there is no escaping reading labels in supermarkets unless you know that the company makes it's products in a truly gluten free environment (even then you should read labels because ingredients can and do change, even in products made in gluten free facilities), It's a pain to stand there and read labels but if you are super sensitive, you might just have to do that. For example, I am gluten and lactose intolerant but also sensitive to nuts and sesame. While it may be fine for other gluten intolerant people to eat something that's labeled gluten free which is produced in a gluten free facility that also processes nuts, for me it is not.. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,751
    • Most Online
      1,763

    Newest Member
    The sweet cheeks
    Joined