Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Failure To Thrive
0

8 posts in this topic

My almost 2 year old was recently diagnosed with FFT seeing a GI in April I am waiting on test results for myself. He weighs 20 pounds and is 33 inches he still breast feeds and trying to get him to eat anything is like pulling teeth. He chews the food then spits it out or flat out refuses. He has had 4 crowns on his front teeth and needs more fillings on his molars. 4 of my other kids have the same teeth issues I also have a 13 year old who was diagnosed with abdominal migraines. When we go to the Gi what should we expect? Sorry if this is jumbled I hate seeing dr and getting no real answers been dealing with my Heath issues for yeas and all the dr are clueless. Hopefully my little one will get some answers

Anyone else have a FFT child that was diagnosed with Celiacs?

0

Share this post


Link to post
Share on other sites


Ads by Google:

My DD wasn't FTT, but she was tiny, and that combined with chronic diarrhea is what led to her being tested.  At the GI, she basically just reviewed the results and recommended endoscopy to confirm.  She also recommended seeing a dietician, which we did, but it was a waste of time and money, as she basically said we could google stuff.  thanks lady.  anyway, she had the endoscopy two weeks later, and although it all appeared "normal," biopsies confirmed celiacs.  that was about 7 weeks ago, and she has been doing well on the gluten-free diet -- even gained  pound!    

 

good luck with everything.  i hope you get some answers so your little one can feel better.

0

Share this post


Link to post
Share on other sites

If it makes you feel any better, our GI told me that the extended breastfeeding was the best thing I could have done for my son (not FTT; he fell off his curve, and kept dropping between ages 3 and 7).

 

Good luck to you! I hope he's feeling better soon, and you figure everything out!

0

Share this post


Link to post
Share on other sites

My almost 2 year old was recently diagnosed with FFT seeing a GI in April I am waiting on test results for myself. He weighs 20 pounds and is 33 inches he still breast feeds and trying to get him to eat anything is like pulling teeth.

Hi,

Sorry I can't be of any help, just wanted to say: I'm in almost exactly the same boat. My child is the same age, also 20 pounds (9 kg) and less than 33 inches (80 cms) given the label "failure to thrive", still breastfeeds and trying to get her to eat anything is as difficult as you say. She also has big dental problems, though I have avoided the dentist I can see her teeth rapidly wearing away. She will eat some things (pistachio nuts or pumpkin seeds for example) but I'm don't think these things are helping her mineral absorption for her teeth!  I know that breastfeeding her has helped her in loads of ways (she never comes down with any colds or flu), and perhaps she has some digestive disorder with which the breastmilk is helping her,  but I do seriously wonder if she would simply be a stronger child without dental problems now, if she weren't breastfeeding.  Please let us know how you get on. Sorry again that I can't shed an ounce of light.

0

Share this post


Link to post
Share on other sites

Hi,

Sorry I can't be of any help, just wanted to say: I'm in almost exactly the same boat. My child is the same age, also 20 pounds (9 kg) and less than 33 inches (80 cms) given the label "failure to thrive", still breastfeeds and trying to get her to eat anything is as difficult as you say. She also has big dental problems, though I have avoided the dentist I can see her teeth rapidly wearing away. She will eat some things (pistachio nuts or pumpkin seeds for example) but I'm don't think these things are helping her mineral absorption for her teeth!  I know that breastfeeding her has helped her in loads of ways (she never comes down with any colds or flu), and perhaps she has some digestive disorder with which the breastmilk is helping her,  but I do seriously wonder if she would simply be a stronger child without dental problems now, if she weren't breastfeeding.  Please let us know how you get on. Sorry again that I can't shed an ounce of light.

 

As I mentioned above, my son's GI doc said the breastfeeding was the best thing I could have done for my son. Some kids are susceptible to dental caries; it has nothing to do with breastfeeding. Some tout grassfed butter as something children with this issue should eat (that would also be high in fat, which is good). Have you investigated celiac or non-celiac gluten intolerance for your daughter as well? Or allergies? I think what you've done for your child has been great. She may have had even more issues without the breastfeeding. Maybe nut butters? Avocado? Greek yogurt (with honey?)

 

Best of luck! I hope everything is resolved soon.

0

Share this post


Link to post
Share on other sites




My son has had 4 pulpectomoies and of course the dentist blames the breast feeding. I come from a long line of digestive issues in my family most of my bro/sis has some sort of tummy issue as do my kids I have been to the hospital with at least 3 of them in horrible tummy pain only to find out they were extremely constipated we also have food allergies and horrible eczema. I am not only trying to figure out his issues, but also my own. Which has been a ok g process with no answers yet and it's been over 2 years.

We got his CBC back and his blood work was good that was the blood work is pediatrician ordered I am sure the GI will do more i am scared they will want to do a feeding tube. Just hoping to get some answers and get everyone healthy

0

Share this post


Link to post
Share on other sites

My son has had 4 pulpectomoies and of course the dentist blames the breast feeding. I come from a long line of digestive issues in my family most of my bro/sis has some sort of tummy issue as do my kids I have been to the hospital with at least 3 of them in horrible tummy pain only to find out they were extremely constipated we also have food allergies and horrible eczema. I am not only trying to figure out his issues, but also my own. Which has been a ok g process with no answers yet and it's been over 2 years.

We got his CBC back and his blood work was good that was the blood work is pediatrician ordered I am sure the GI will do more i am scared they will want to do a feeding tube. Just hoping to get some answers and get everyone healthy

 

I really hope your son doesn't need a feeding tube! I hope they can figure things out before then. This must be such a stressful time. I hope that by figuring out your own issues, it helps with your kids.

 

Dentists do blame breastfeeding, it's true. They sometimes conflate nighttime nursing with nighttime formula-feeding. I would trust kellymom over any dentist (and have when I was told my daughter would get cavities for nursing at night--she never did). http://kellymom.com/health/baby-health/tooth-decay/ This article mentioned nutrients/vitamins/minerals. I would guess that the FTT and the cavities result from a nutritional deficiency (like from celiac or fructose intolerance or something). Does your son nurse a lot? Is it possible to nurse him more during this time? It sounds counter-intuitive, but perhaps going back to those days would help with calorie-ingestion at least (while potentially avoiding what might be causing the problems). Are you cutting out foods, too? Have you tried eating the basics only? (Turkey, lamb, cucumber, carrots, white rice--or something like that--those are the least allergenic foods--if I remember correctly. Obviously, it doesn't work if you're a vegetarian.)

 

Has anyone checked him for celiac yet? I guess it means keeping him having some gluten until you have that blood work drawn.

 

Good luck!

0

Share this post


Link to post
Share on other sites

As I mentioned above, my son's GI doc said the breastfeeding was the best thing I could have done for my son. Some kids are susceptible to dental caries; it has nothing to do with breastfeeding. Some tout grassfed butter as something children with this issue should eat (that would also be high in fat, which is good). Have you investigated celiac or non-celiac gluten intolerance for your daughter as well? Or allergies? I think what you've done for your child has been great. She may have had even more issues without the breastfeeding. Maybe nut butters? Avocado? Greek yogurt (with honey?)

 

Best of luck! I hope everything is resolved soon.

Yes, I went to see a new pediatrician and she said that you were right that breastfeeding was the best thing for my child and I should keep going for the moment anyway. We are looking into gluten intolerance as a possibility but first we are trying to rule out a milk-protein intolerance as the cause (she was also consuming some cow's and sheep's milk products). To be honest she has some GI issues but nothing severe (although this could also be mitigated by breastfeeding) so sometimes I wonder if I am putting her through trial diets and testing etc. for nothing. The truth is though that she hardly eats anything and she is not growing/putting on weight as she should so I suppose it's worth checking it out. We'll see.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,685
    • Total Posts
      921,747
  • Topics

  • Posts

    • Your body has been used to ingesting and has been coping with the gluten in its systems.  DON'T PANIC because your body is doing it for you.   Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine.  When that is either disrupted or changed, it could take a while for the body adjust to a different way of doing things.  Another factor in the increase in symptoms could possibly be that your body is starting to "clean house".  It's trying to get rid of the amounts of gluten hiding out in all its nooks and crannies.  It is going to be a long term process.  It's like cleaning out a vacuum hose or other household item that is just caked with gunk.  The first cleaning gets rid of a large portion of the gunk and ick.  The subsequent cleanings gets rid of more and more ick but in lesser amounts. I thought I was going to go crazy those first few months, but things are a lot better now. (I am about 10 months gluten free).  I still have moments of brain fog and even episodes, but my body is getting closer (and more used to)  to having a cleaner "household item".  I know it's tough at first with the increased onslaught of symptoms, but hang in there.   You may want to keep a journal of all that you ingest or come into contact with for a time to track anything that could exacerbate symptoms.  (For me, my episodes are chemically triggered as well.)  If for some reason a few months down the road, you still have large amounts of symptoms it would be a good idea to visit your GP again just in case there something else that is going on.  
    • I would love some help! After 20ish years of being misdiagnosed with IBS, I was diagnosed with celiac disease (positive blood test for tTG IgA and positive duodenal biopsy) ~ 6 weeks ago. Of course I've gone completely gluten free, and I've been crazy paranoid careful not to ingest any gluten. I've also completely avoided all oats (even certified gluten free) and cut out lactose (due to transient lactose intolerance... because I don't have villi) . But now I feel WAY WORSE. I've had abdominal pain every single day, which ranges from mild aching to severe 10/10 laying on the floor crying and vomiting pain. I understand that it takes a long time to get better, but why would I get so much worse? My best guess is SIBO, but I can't imagine that it could cause such extreme symptoms, can it?  So my question to you fine folks is: did this happen to anyone else? Have you gotten sicker after you changed your diet? Is this normal?  For arguments sake, lets assume that I did not ingest any gluten to cause these symptoms... Thank you for your help!
    • Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.
    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Sorry.  Something is wonky with either my connection or celiac.com! Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.   Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.   Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,687
    • Most Online
      3,093

    Newest Member
    Jessie.Cait
    Joined