Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Light Sensitivity
0

11 posts in this topic

I've done a lot of research for my husband who has undiagnosed DH. He's had it for the past 20 years but has been misdiagnosed and seems like the photos in the DH photo bank match perfectly. Anywho, I wanted to ask a question on his behalf as I have not seen this topic (although I have read many posts but not all).

 

Does exposure to sunlight, wearing sleeveless shirts, worsen the blisters or itchiness?

My husband says whenever he is in direct sunlight for too long he starts itching more, blisters appear or become more raised, etc.

 

Your input is greatly appreciated. Thanks!

-Jennifer

0

Share this post


Link to post
Share on other sites


Ads by Google:

For me not at all.  Sometimes getting sweaty makes my dh itch more.  What you are talking about sounds like the rash that people get from Lupus.  That is very light sensitive.

0

Share this post


Link to post
Share on other sites

Some have said the sun makes their dh go crazy. Some have not. Personally, I have not found that to be the case however, I have limited my sun exposure to very short periods of time. I WILL say though that HEAT makes my dh go crazy. What do you get in your skin when you're in the sun? HEAT. It heats up your skin. So which came first the chicken or the egg? The sun or the heat?   ???????

0

Share this post


Link to post
Share on other sites

If the pool water is cool I don't seem to have a problem with being in the sun.  I have had horrible break outs on my scalp after a day at the beach and not being in the water.  Maybe it is the heat . . . I have to agree with Squirmy, sun or the heat ? ? ?

 

I was majorly broken out this past summer and had to keep the car and house cool or the itch was unreal.  I am on Dapsone now and have a script for Traimcinolone Acetonide Cream, USP which helps.  Not had the horrendous itch since the end of October.  

0

Share this post


Link to post
Share on other sites

heat, humidity and sweat...absolutely make the itch worse. I mean if you're sweating, the salt goes into any open lesions, you're automatically itching and stinging! Here in India, the heat and humidity are huge factors, over 100 for most of the year, and not much less than that at night. In fact, we're planning on going back home to Aus for the hot season, partly because that's how bad it makes my skin. But more than the sun, I would say it's humidity.

0

Share this post


Link to post
Share on other sites




I agree with the humidity factor too. My hubs & I have both noticed that dampness in the air makes us itch more. Even when it's not that hot but say on a day when it's raining & the humidity is on upwards of 80 & 90% --- makes me itch like gonzo! But in the summer --- OY! I live in Fl. where humidity is king & it really makes a difference when it's both hot AND humid.

0

Share this post


Link to post
Share on other sites

Thank you so much for everyones views on this. Whether it is heat or sunlight like you all are mentioning does have us wondering but alas, does it matter?

Heat or sun is pretty much the effector of his bumps becoming raised more in the summer. It's nice to see, although unfortunate for everyone to experience, the same sort of situation though. It has driven him nuts the past couple summers and he always asks the same question...is this caused by summer sun/heat? Now I can give him an answer. :-)

0

Share this post


Link to post
Share on other sites

Just saw this thread.

 

While I have never had blisters....I get severe itchy-red patches when I get glutened..I also have had severe heat/exercise intolerance "allergy" my entire life which has gotten worse each decade (red rash - severe blushing - breathing issues).  Removing gluten did not resolve this.  Removing high histamine and histamine inducing foods has finally improved my reaction to heat, exercise and direct sunlight (photo-sensitivity).

 

Thought you might like to read this simple explanation of histamine intolerance:

 

http://www.allergyuk.org/downloads/factsheets/intolerances-and-sentivities/Histamine%20Intolerance.pdf

 

 

PS...welcome to the forum :)

0

Share this post


Link to post
Share on other sites

Yes, I definitely get a pronounced reaction to sun exposure.  Before I ever even had DH, I would get a rash from the sun that was nearly identical to my DH rash.  I always thought it was some sort of allergy, and I'm still not sure if it even ties into DH in any way.  It's just interesting.  I've been tested for Lupus and I don't have it.

0

Share this post


Link to post
Share on other sites

I grew up with (and still am affected by) polymorphous light eruption (aka sun poisoning) which is a mass of hives on the sunlight exposed (or UV exposed skin). Mine starts showing up about 5 minutes in the sun if I don't have sunscreen on. The sting is super intense (similar to DH) and it itches like heck!! BUT when you even gently scratch it it hurts so badly!! I know my sun poisoning rash does not look like most others rash from waht I've seen online, I have seen little blistery pimple-like rash that is supposely sun poisoning. Mine are huge melted together hives (if it's bad enough). I am 28 years old (almost 29) and I've had it my entire life. My mom had it and her mom had it. It's apparently hereditary. Though apparently it goes away with advancing age. Mine hasn't gotten better over the years so I'm not sure if I'll ever be rid of it.

 

I'd google polymorphous light eruption and see if it matches what you are seeing. I don't know yet if it's in any way related to celiac, though I wouldn't be surprised if it were.

0

Share this post


Link to post
Share on other sites

I had polymorphous light eruption for years, but found after I stopped eating gluten it actually went away. During the PLE my dermatologist had me apply 50+ spy sunscreen Plus a lotion that contained zinc oxide.  This would help keep the rash/hives at bay.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined