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Blood Results Back. Doctor Is Unhelpful.

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#1 sabin112

 
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Posted 13 March 2013 - 05:04 PM

Hi there all,

 

I just got my blood results back today and the read as follows:

 

anti TTG IgA: 75 Units (0-20) HH

Endomysial Ab: POSITIVE A

Comment: These results support a diagnosis of coeliac disease.

 

My doctor said that it looks like I have coeliac disease, but it's not so bad, so I can eat a little gluten. That goes against eveything I've read on this sight. I thought if you have coeliac disease, regardless of symptoms, you cannot eat any gluten.

 

What I want to ask is should I ask for a biopsy next or just give up eating all gluten as soon as possible.

 

Any help would be appreciated.

 

 


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#2 mushroom

 
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Posted 13 March 2013 - 05:47 PM

anti TTG IgA: 75 Units (0-20) HH

Endomysial Ab: POSITIVE A

Comment: These results support a diagnosis of coeliac disease.

 

My doctor said that it looks like I have coeliac disease, but it's not so bad, so I can eat a little gluten. T

 

With those results on those particular tests, I would think it is pretty definite that you are celiac.  Whether or not you want biopsy confirmation of how much damage is up to you (and your health system/doctor).  By the way, what rock did he crawl back under after making that caveman pronouncement?   He is so totally wrong, of course.  It's like saying you just have a little bit of cancer so it doesn't matter if we don't get it all :wacko:


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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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#3 GottaSki

 
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Posted 13 March 2013 - 09:13 PM

Could not have said it any better.

Clearly you have celiac disease.

Clearly your doctor is not up to date.

Let us know how we can help!

Welcome to the Forum :)
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#4 kareng

 
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Posted 14 March 2013 - 08:32 AM

I have really slow Internet now so I can't get you links. Google " celiac centers". Univ of Chicago has an easy one to read. You will see that they all say it is not OK to eat a little gluten. You could show some of them to your doctor. He might look at them because they are from " real" doctors.
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