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Intollerances As A Result Of Going Undiagnosed
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Hello, 

I am newly diagnosed with celiac, i am 22 years old. I had been to the doctor over and over for a year developing more and more sensitivities. I have now had the biopsy and after coming on here and reading other peoples stories think that my issues with fructose, dairy including whey, sorbitol and corn may be caused by the damage done to my SI. 

 

I am hoping that if i follow a gluten-free diet that my other intolerances will go away as my gut heals. Has this been the case for anyone? I am intolerant to so many things! its impossible to feel normal without staying ridiculously strict i even react to low fructose vegetables. 

 

Please someone say this goes away if i stay gluten-free?

 

Thank you for your time.

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It will take time (months.... years?), but it is entirely possible for them to go away.

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Granted, My daughter was only 10 when diagnosed, but she had intolerances to whey, casein and soy.  She was gluten-free, DF and SF for a while.  She is now back on soy and dairy.  Test showed she is still somewhat lactose intolerant still but we expect that to clear up soon.

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My chiropractor and her family were able to overcome other intolerances after going gluten free.  She is hoping that I will recover and be able to have things back too.  I would like spicy foods back!  I would like some dairy back.  I am happy with what I eat now.

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I'm having a similar issue. It seems like the more foods I eliminate, the more sensitive I become. I have a problem with gluten, grains, carbohydrates, dairy, eggs, legumes (including soy and peanuts), and refined sugars. According to what I've read, a lot of my intolerances come from the fact that I'm insulin resistent from years of untreated Celiac (possibly since I was born).

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I'm having a similar issue. It seems like the more foods I eliminate, the more sensitive I become. I have a problem with gluten, grains, carbohydrates, dairy, eggs, legumes (including soy and peanuts), and refined sugars. According to what I've read, a lot of my intolerances come from the fact that I'm insulin resistent from years of untreated Celiac (possibly since I was born).

 i didnt know celiac can lead to insulin resistance- this all seems scarier and scarier the more that i read about it :( and so many of the random complaints over the years are on lists of symptoms- guess great to know now. 

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thank you so much for your time to answer, im so happy there is hope of some of the intolerances going away, *fingers crossed*. Thanks for sharing expiriences 

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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