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Crazy Update; Waiting On Tests For My Daughter Now


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6 replies to this topic

#1 MissyShelle

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Posted 14 March 2013 - 11:48 AM

Well, got insurance settled and I head to the doctor first thing Monday morning. 

 

However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later that her hemoglobin is at a 7. So now waiting on the Children's Hospital to call to see if we are being admitted for testing/blood transfusion or just making an appointment. 

 

Her other blood work panels didn't show anemia, so we have to figure out what this is from. Then the doctor asks me "Aren't you being tested for Celiac?" I tell her yes and she said to definitely mention that to the drs when we go to the specialist because that's an important consideration in how they proceed. 

 

So, I sit and wait on a phone call, my daughter is in pain and exhausted. I figure with a hemoglobin of 7, we'd already be at the hospital but I guess there are procedures. 

 

UGH! But isn't a low hemoglobin tied to Celiacs? 


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#2 shadowicewolf

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Posted 14 March 2013 - 11:56 AM

Not that i'm aware of. :(

Good luck.
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#3 ruthie_ray

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Posted 14 March 2013 - 11:57 AM

I don't have a lot of info to provide, since I was only diagnosed on Monday, but I have two small children and feel for you.  Hope you get it figured out soon and your daughter's pain goes away.  Good luck.

Well, got insurance settled and I head to the doctor first thing Monday morning. 

 

However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later that her hemoglobin is at a 7. So now waiting on the Children's Hospital to call to see if we are being admitted for testing/blood transfusion or just making an appointment. 

 

Her other blood work panels didn't show anemia, so we have to figure out what this is from. Then the doctor asks me "Aren't you being tested for Celiac?" I tell her yes and she said to definitely mention that to the drs when we go to the specialist because that's an important consideration in how they proceed. 

 

So, I sit and wait on a phone call, my daughter is in pain and exhausted. I figure with a hemoglobin of 7, we'd already be at the hospital but I guess there are procedures. 

 

UGH! But isn't a low hemoglobin tied to Celiacs? 


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#4 bartfull

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Posted 14 March 2013 - 12:00 PM

http://www.livestron...celiac-disease/


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#5 kareng

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Posted 14 March 2013 - 12:31 PM

B12 and iron and folate anemia a are common in Celiac if that is what you are asking. Seems like the doctor knew that, too?
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#6 1desperateladysaved

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Posted 14 March 2013 - 12:32 PM

My low iron, I suspect, is tied to celiac.  Yeah, low iron just doesn't feel good.  So, I hope you can get help and definative answers soon.

 

Diana


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#7 MissyShelle

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Posted 14 March 2013 - 12:40 PM

The thing is, the doctor said her overall blood work looked good, it was just her hemoglobin that was so low. So we are heading to hospital tomorrow for more tests and possible transfusion. Man, it's been a long 2 weeks in my household. 


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