Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dermatitis Herpetiformis After Going Gluten Free?
0

7 posts in this topic

I was diagnosed with celiac about a year ago by accident (I have always been symptom free). Even though I had trouble sticking with the diet at first, I finally went totally gluten-free this past summer. Recently, I've had this rash on my neck. At first I thought it was from my necklace but it only seemed to get worse after I stopped wearing it. I checked it out and it looks a lot like the pictures I've seen of dh ...

Is it possible that I could get dh now that I'm totally gluten free, after never having symptoms before going gluten-free?? Any thoughts would help ... thanks!

Sarah

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Sarah,

My only thought is that since you are now totally gluten-free, if any gluten sneaks by at all, it might create more symptoms than you originally had. I say this because, before her diagnosis, my daughter used to have gas pains every few days. They lasted only about 15 minutes and could be helped with Gas-X. After the gluten-intolerance diagnosis and being gluten-free for almost a month, any tiny bit of gluten will wipe her out for two full days with stomach pains/diarrhea.

Have you had the rash for a while or is it more recent?

0

Share this post


Link to post
Share on other sites

I started getting a rash/blister on one side of my neck at the beginning of september and then got another two on the other side only a few weeks ago. The first one is mostly gone but the two newer ones are definitely still there. This is the first time I've noticed anything liek this but I have only been completely gluten free for about two months...so what you said about getting more symptoms after going gluten-free could definitely be true.

sarah

0

Share this post


Link to post
Share on other sites

The one thing that had gluten that I didn't even think about eliminating until my scalp/neck still got sores was my shampoos. Almost everything I had either had wheat or oats in it. You have probably already checked this, but just in case...

Laura

0

Share this post


Link to post
Share on other sites

Check with your GI or dermatologist.

They could prescribe Dapsone for you -- that should help if it is DH...

0

Share this post


Link to post
Share on other sites




Since I'm originally from MA but go to school in New York City, I haven't been able to see my regular doctor. I went my school's Health Services, but couldn't find anyone helpful. The doctor I saw had never heard of DH before so he did a little "research" while I was in his office. He googled it, read an article about it and told me that "since it normally occurs on the elbows, knees, buttocks, etc and since mine is on my neck, i DEFINITELY don't have it". Wow he had no idea what he was talking about. Anyway, he gave me a prescription for a topical steroid cream and I'm not sure if I should use it. Any ideas? (I left a message with my doctor at home and she's on vacation so I can't get in touch with her)

0

Share this post


Link to post
Share on other sites
Since I'm originally from MA but go to school in New York City, I haven't been able to see my regular doctor.  I went my school's Health Services, but couldn't find anyone helpful.  The doctor I saw had never heard of DH before so he did a little "research" while I was in his office.  He googled it, read an article about it and told me that "since it normally occurs on the elbows, knees, buttocks, etc and since mine is on my neck, i DEFINITELY don't have it".  Wow he had no idea what he was talking about.  Anyway, he gave me a prescription for a topical steroid cream and I'm not sure if I should use it.  Any ideas?  (I left a message with my doctor at home and she's on vacation so I can't get in touch with her)

<{POST_SNAPBACK}>

I have to butt in on this one. DH does usually appear on elbows and knees - however, my friend's husband has this skin problem and his has appeared on the scalp, on the neck - and a very few times on his face. So much for doctor's who learn from the internet while the patient waits. If he had gone further he would have found more. But what can you expect in one office visit. :lol::lol::lol: Claire

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,104
    • Total Posts
      920,370
  • Topics

  • Posts

    • It is absolutely possible for non-Celiac gluten intolerance and/or gluten sensitivity to cause extreme symptoms. The difference between those and Celiac is that Celiac will cause actual small intestinal damage to the villi, while NCGI/gluten sensitivity can have extreme symptoms, there is no damage to the small intestine.  Other causes of bloating can be SIBO or small intestinal bacterial overgrowth.  The title pretty much says it all and you need antibiotics to help combat that. Basically, your small intestine's bacteria is out of whack and you have more bad bacteria than good. I know there is a test but have no experience with this. You may want to google it and read up on it and maybe ask a specialist about it too?  This is something they should be testing for anyway to figure out what is going on.  You could also have food allergies, as opposed to an intolerance like Celiac.  You can see why this is so hard to figure out sometimes! Are you sure you are completely gluten free?  This diet has a big learning curve and cross contamination is important.  Please take a look, if you already have not, at this link.  It was written by a previous member of the forum and although it is a bit lengthy, it is what you need to know about following the diet and living gluten free successfully. She did a very good job on it!  Even tiny amounts in your diet can still cause symptoms. http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ Have you been tested for vitamin deficiencies or anemia?  These could offer a clue to see whether you are malnourished or not. Many people with celiac have both deficiencies and anemia.  Between testing for these and genetic testing to see if you carry a Celiac gene might help you to rule it out if you cannot have a scope done.  But you do remember that you need to be eating gluten for the scope? 
    • Celiac disease is a tricky rascal. Just when you think you've got it under control, it sneaks up and manifests into new and often unexpected problems. At least, this is what we have found over the last decade. From contacts with others who have Celiac disease, we know we're not alone. I'm in my early thirties and find that sometimes my body acts more like that of an old man's. View the full article
    • Thank you, Gemini.   Is it possible for non-celiac gluten sensitivity or intolerance to have this severe symptoms?
      I'm on gluten free diet two weeks now and no change... What are other causes of these symptoms beside food?
    • I am trying to decipher the test and it looks to me like the Total IgA is fine.  Your number appears to be in the middle of the reference range, which would be sufficient IgA for testing.  I am in America so your country's testing is a bit different from here....I really hope I got that right!  If you have severe enough symptoms of a GI problem, some doctors here would move onto a biopsy even with negative blood results.  I think if you cannot get a full Celiac panel done, then a scope with biopsy should come next. Severe bloating has a cause and they need to rule out a food problem. There can be other causes but food is usually a big trigger. Yes, keep us updated!  We are here to help.
    • A rapidly expanding knowledge of the celiac disease regulatory pathway could soon lead to new breakthroughs. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,141
    • Most Online
      1,763

    Newest Member
    Sandyblake1711
    Joined