Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Finally Some Excellent News...


  • Please log in to reply
13 replies to this topic

#1 LauraB0927

LauraB0927

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 208 posts

Posted 14 March 2013 - 05:06 PM

Finally some good news - after an unexpected, shocker diagnosis on May 3, 2012, many dietitian appointments, 2 endoscopies, 1 colonoscopy, 1 capsule test, and a partridge in a pear tree later, I finally got the news from my GI doc that my TTG levels are within normal range and an intestinal biopsy confirmed that my villi have returned back to normal!!!  The good news seems surreal after so many bumps in the road...

 

I didnt write this to brag - rather to lend some support to those of you who may be struggling or thinking that things cant get better.  It hasn't been easy - and this is coming from a girl who lived off of chicken fingers, pizza, and macaroni and cheese for most of her life.  Yes, I had to change most of my lifestyle habits, and yes, there have been many accidental slip-ups, tears, and feelings of anger/frustration along the way.  But it DOES get better....thanks to everyone on this forum who have listened to me vent, provided support when I needed it, and helped me get on the road to being healthy.  I'll be sure to continue to return the favor where ever possible!! 


  • 2



"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)

Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
Syncope
Raynaud's Syndrome
Iron Deficient

Celiac.com Sponsor:

#2 Lisa

Lisa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,799 posts

Posted 14 March 2013 - 05:24 PM

So very happy for you LauraB!  Your inspirational post can only serve as motivation, when there are down times, for the many who visit here and are struggling daily.  Thank you! 

 

Life is good! :D


  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#3 nvsmom

nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,059 posts

Posted 14 March 2013 - 06:11 PM

Congrats!!  That's awesome!  :D


  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#4 1desperateladysaved

1desperateladysaved

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,059 posts

Posted 14 March 2013 - 06:57 PM

Super!


  • 0

#5 Adalaide

Adalaide

    It needs to be about 20% cooler.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,280 posts

Posted 14 March 2013 - 07:22 PM

Woohoo!!! Gotta watch out for those partridges huh?


  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#6 Celiac Mindwarp

Celiac Mindwarp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,167 posts

Posted 15 March 2013 - 12:18 AM

Brilliant news, well done :)

Thanks for inspiring those of us new to the journey
  • 0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#7 GF Lover

GF Lover

    Melanoma Warrior

  • Moderators
  • PipPipPipPipPipPip
  • 1,454 posts

Posted 15 March 2013 - 03:56 AM

Many kudos to you Laura.  That is a great accomplishment in only a year.  Very happy for you.

 

By the way,  I can't stop thinking about the partridge and the tree awkward-smile-smiley-emoticon.png

 

Colleen 


  • 0

:D HAVE A SUPER SHINY DAY :D

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderat


#8 IrishHeart

IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,379 posts

Posted 15 March 2013 - 06:31 AM

blow.gif

 

Good for you, hon! I noticed from the beginning that you have a mega-positive attitude and you did your homework and you tamed the beast.

A celiac DX is not the end of the world (though many view it that way at first) and you're proof that healing happens.

 

Rock on, little sister! Thanks for sharing your success story. It helps in so many ways.

hugs, IH


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 julissa

julissa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 141 posts

Posted 15 March 2013 - 08:00 AM

so happy for you! thanks for sharing.


  • 0

#10 GFinDC

GFinDC

    A little farting never hurt anybody... :-).

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,085 posts

Posted 15 March 2013 - 01:08 PM

That's great! :)

 

I can't believe I get to be the first person to say "It only gets easier from here!". :D

 


  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#11 Christine0125

Christine0125

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 129 posts

Posted 16 March 2013 - 04:56 PM

Yay!

Out of curiosity... Was your follow up endoscopy routine follow-up. I am approaching a year since diagnosis and wondering if another endoscopy will be recommended. Personally my symptoms have improved but not 100% and it makes me wonder how healed I am.
  • 0

#12 LauraB0927

LauraB0927

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 208 posts

Posted 16 March 2013 - 06:12 PM

Thank you everyone!!!

 

Christine - Yes, my endoscopy was a 1 year follow-up...the capsule/video test I took in October showed continued damage in my duodenum (even though my TTG levels dropped significantly) so the doctor just wanted to do another biopsy just to make sure that I continued to heal.  I was curious also (and needed a little conformation that I was making some progress) so we agreed to go ahead and do the one year follow-up endoscopy and biopsy.  My symptoms when I get glutened are mostly some bloating, but mainly fatigue and joint pain.  Since I work full time and attend nursing school in the evenings, I'm never really sure whether the fatigue is gluten related or because I'm so busy and tired.  So the endoscopy was a way for me to really tell how I've been doing.  I hope your one year follow up goes well!!!!


  • 0



"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)

Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
Syncope
Raynaud's Syndrome
Iron Deficient

#13 Coryad

Coryad

    Community Member

  • Advanced Members
  • PipPipPip
  • 32 posts

Posted 16 March 2013 - 07:37 PM

Woo hoo!!!  Good to know there is light at the end of this tunnel!!  :D


  • 0
Cory

Diagnosed Celiac 4/12 due to DH
Eliminated food molds 1/12

#14 kristenloeh

kristenloeh

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 140 posts

Posted 17 March 2013 - 06:02 AM

Awesome! All of my blood work came back in normal ranges a couple of months ago as well, but I need to find a new GI doc to do my follow up endo to make sure I'm totally healing the way I need to be. Congrats! You were diagnosed only a month after me!


  • 0

Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3



0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: