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Finally Some Excellent News...
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Finally some good news - after an unexpected, shocker diagnosis on May 3, 2012, many dietitian appointments, 2 endoscopies, 1 colonoscopy, 1 capsule test, and a partridge in a pear tree later, I finally got the news from my GI doc that my TTG levels are within normal range and an intestinal biopsy confirmed that my villi have returned back to normal!!!  The good news seems surreal after so many bumps in the road...

 

I didnt write this to brag - rather to lend some support to those of you who may be struggling or thinking that things cant get better.  It hasn't been easy - and this is coming from a girl who lived off of chicken fingers, pizza, and macaroni and cheese for most of her life.  Yes, I had to change most of my lifestyle habits, and yes, there have been many accidental slip-ups, tears, and feelings of anger/frustration along the way.  But it DOES get better....thanks to everyone on this forum who have listened to me vent, provided support when I needed it, and helped me get on the road to being healthy.  I'll be sure to continue to return the favor where ever possible!! 

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So very happy for you LauraB!  Your inspirational post can only serve as motivation, when there are down times, for the many who visit here and are struggling daily.  Thank you! 

 

Life is good! :D

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Congrats!!  That's awesome!  :D

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Woohoo!!! Gotta watch out for those partridges huh?

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Brilliant news, well done :)

Thanks for inspiring those of us new to the journey

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Many kudos to you Laura.  That is a great accomplishment in only a year.  Very happy for you.

 

By the way,  I can't stop thinking about the partridge and the tree awkward-smile-smiley-emoticon.png

 

Colleen 

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blow.gif

 

Good for you, hon! I noticed from the beginning that you have a mega-positive attitude and you did your homework and you tamed the beast.

A celiac DX is not the end of the world (though many view it that way at first) and you're proof that healing happens.

 

Rock on, little sister! Thanks for sharing your success story. It helps in so many ways.

hugs, IH

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so happy for you! thanks for sharing.

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That's great! :)

 

I can't believe I get to be the first person to say "It only gets easier from here!". :D

 

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Yay!

Out of curiosity... Was your follow up endoscopy routine follow-up. I am approaching a year since diagnosis and wondering if another endoscopy will be recommended. Personally my symptoms have improved but not 100% and it makes me wonder how healed I am.

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Thank you everyone!!!

 

Christine - Yes, my endoscopy was a 1 year follow-up...the capsule/video test I took in October showed continued damage in my duodenum (even though my TTG levels dropped significantly) so the doctor just wanted to do another biopsy just to make sure that I continued to heal.  I was curious also (and needed a little conformation that I was making some progress) so we agreed to go ahead and do the one year follow-up endoscopy and biopsy.  My symptoms when I get glutened are mostly some bloating, but mainly fatigue and joint pain.  Since I work full time and attend nursing school in the evenings, I'm never really sure whether the fatigue is gluten related or because I'm so busy and tired.  So the endoscopy was a way for me to really tell how I've been doing.  I hope your one year follow up goes well!!!!

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Woo hoo!!!  Good to know there is light at the end of this tunnel!!  :D

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Awesome! All of my blood work came back in normal ranges a couple of months ago as well, but I need to find a new GI doc to do my follow up endo to make sure I'm totally healing the way I need to be. Congrats! You were diagnosed only a month after me!

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
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    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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