My 8-year-old just had blood tests and the doctor told us that based on her blood work he wants her to limit her gluten consumption to 1 piece of bread per day before her endoscopy Tuesday. I've read conflicting information. Most of what I read on celiac.com says that she should eat the same diet she always has and then go gluten free right after the biopsy, but the doctor is saying to cut it down based on her blood test results.
I'm even getting conflicting information from the GI office - one nurse says to plan to go completely gluten free as soon as we are home from the biopsy, but another says she tells people to wait until they get the biopsy results just in case it's not celiac.
What do you all think?
These were her results (I don't know if this matters, but I thought I'd put them up anyway):
Immunoglobulin A: 74 Normal (Range 28-180)
Endomysial Abs, S (IgA): High Positive Titer 1:160 (What does this one mean? I don't even know what a positive titer is )
IgA TTG: Greater than 100 (Greater than 30: Strong Positive)
IgA Gliadin: 63.1 Positive (Greater than 30: Strong Positive)
IgG Gliadin: 53.7 Positive (Greater than 30: Strong Positive)
Also, how do you recommend jumping in? Should I get rid of all of the gluten in the house? Should I let her have one last pizza, etc., before the biopsy? It's hard to let her eat anything with gluten in it now because I feel like it's poisoning her.
I've posted a bunch here in the past few days, and I'm so thankful for everyone's help.