Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Back On Gluten For Scope

Flaykee

Recommended Posts

Flaykee Rookie
Flaykee
Posted

Well, I was off gluten for about 4 - 5 weeks, then got the letter to go for my endoscopy and go back on gluten.  So I've been back on for just over 2 weeks.

 

My family doctor diagnosed me back in January based on my symptoms, family history and the tell tale positive blood  panel.  She was going to order an endoscopy to check on damage due to the years of reflux but it can take months to see a specialist in Northern Ontario.  Sure enough, the appointment notice came back for June 11.  That was six months away, but no mention of going back on gluten. 

 

Then in late February, I got a new letter... the specialist (GI) reviewed my case, scheduled me in for March 21 and was directed to go back on gluten.  Almost like a reprieve, eat the foods I would forever have to stay away from! :)

 

The first few days were horrible.  I suffered heartburn and indigestion, bloating, gas,a fullness from my throat to my bowels.  Blah.  Then the joint pain started, the stairs are again hard to navigate normally, step by step again.  I want to sleep all the time, but when I'm in bed, I toss and turn and start the nightsweats.  My face has returned to the vibrant red that I was so happy was gone!  Headaches are oh so wonderful!!  Geez, I'd almost forgotten about that numbness that showed up once in awhile on my cheek!  And the list of symptoms goes on...  I made a comment to my husband that I can't wait to go gluten-free again but I vowed to perservere until the endoscopy. 

 

HOWEVER, I went out of town last week and forgot to take my iron pills.  I was still eating gluten foods but my stomach felt somewhat better.  Still some bloating but a lot of gas,  heartburn and indigestion, but is less intense. LOL there are times I'm afraid to walk or move suddenly for fear of a gas slippage, thankfully so far it's only happened when I've been alone or only in front of hubby :D !   I haven't taken the iron pills since last week but am wondering if maybe they've been contributing to my intestinal discomfort.  In the past, I've taken them with food, without food because I suspected a correlation.  I keep wanting to take one, just to see but I'm afraid of getting that awful intestinal feeling again.  I can tolerate the lessened intensity of the symptoms because I know it's only temporary until my scope is done.

 

All other symptoms are getting worse though, like the joint pain.  And for some reason, even being on gluten, my bm's have changed.  I have been a sufferer of constipation.  Now I am going a lot, not diarhea, but loose(more foamy), urgent and not pleasant aromatically!  This is gross I know, but when I have a bm at work, I am embarrassed and hope no one else has to go after me... and I am always multiple flushing to clean the residue from the toilet bowl. :wacko:

 

I don't think being off gluten for just over a month will show significant healing because I went years believing something was wrong based on my deteriorating health, but doctors could never find anything, nor would they even consider I was celiac...weight gain isn't celiac related, so they said!

 

I'm hoping my scope shows villi damage and nothing else wrong!  And maybe tomorrow I'll try the iron pill and take it from there.

 

And that's just me needing to share, discuss, vent.  Hubby must be getting tired of me going on and on about this "celiac thing" and I think I need to "talk" with people who understand, can relate. 

 

And for that I say thank you!  Thank you for this wonderful forum and the excellent information and sharing of experiences!  This forum has become my reading material... Who needs "Fifty Shades of Grey" when this is better reading for us celiacs? :D  

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,996
    • Most Online (within 30 mins)
      7,748
    Eehendrix
    Newest Member
    Eehendrix
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jujuconnor
      Diarrhea mystery solved after a year

      By Jujuconnor · Posted

      ❤️
    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      As a side note, it seems that medical science has evolved in the past 5-6 years regarding Celiac Disease, and I am now catching up. It seems that anything that disrupts the microbiome sufficiently enough can--in genetically susceptible individuals--lead to Celiac Disease. I have been reading now that antibiotics, excessive simple carbohydrates such as refined sugars and starches, the manner of birth such as C-section vs vaginal delivery, the diversity of one's diet, the presence of certain bacteria or viruses, can all contribute to microbiome dysbiosis, which can lead to Celiac. This is fascinating research.
    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      I mostly eat healthy. My diet has varied over the past 10 years but mostly consisted of meals I cooked at home made from scratch. Ingredients I used over the years include (not in order): non-wheat grains such as teff, sorghum, millet, and eggs, butter, cheese, some milk, meat (poultry, red meat, but very little processed meat), gluten-free baked bread (mostly Canyon Bakehouse brand), vegetables, fruits, nuts, legumes, peanuts, chocolate (not in the past 6 months). However, the mistakes I made in my diet are that I consumed too much sugar and carbohydrates from gluten-free baked goods that I baked myself at home such as gluten-free dessert items, and also I ate pretty much the same exact meals over and over, so a great lack of diversity in what I ate. I got lazy. I think this messed up my microbiome. The meals I ate were mostly healthy though. I always made sure to eat vegetables and fruits on a daily basis.  I have checked for nutrient deficiencies over the years and I am sometimes low in Vitamin D. I started supplementing it after that. What concerns me is the progressive nature of the food intolerances, which indicates the gut is not healing and has been leaking all along. 
    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
×
×
  • Create New...