I am so sorry for how your feeling. I can sympathize; over time I notice I couldn't have any type of gluten free products. I read that since you don't have villi in your small intestines you have no defenses, meaning even the tiniest bit of exposure causes a flare up. I even have to be careful when I purchase products by reading the labels to ensure it says manufactured by a nut, soy, milk and wheat free facility. Be very careful, unfortunately
I have been reading a lot about leak gut syndrome which is new to the medical community in the sense that they don't know how to manage it. If (you are female) make sure to do a yearly pap and uterine check to ensure there is no issues there. If you are not a female then definitely confirm with an endoscopy if your small intestines are still damaged. I am looking into doing the leaky gut diet to see if it will help, the book I am reading is "Eat Dirt" by Dr Josh Axe. Especially since I notice anytime I am exposed to gluten by accident my symptoms are worse each and every time. I know get severe back and rib cage pain, with bloating, gurgling and diarrhea with severe nausea. I am willing to try anything and I am now reading this book and applying the diet to see if I can heal my intestinal lining.
Ok so I had my colonoscopy & endoscopy last Thursday. Don't get results until July 13th as GI is on vacation. I've had bad pain in my lower left abdomen that wraps around to my lower back as well for the past 4 days..even hurts to touch lightly. Went back to the ER & they did an ultrasound & CT scan. The Doctor said that I have "prominent" lymph nodes in the area that is painful as well as thickening & inflammation of my Sigmond colon? Um ok what is that all about? Kind of freaking out over the whole swollen lymph nodes thing. Has anyone ever dealt with this before? 😒
My 2 year old daughter has sufferd with extremely large stools for over a year. She will have a bm once or twice a week there has been blood sometimes i took her to the docs and they gave her some stool softner which didnt help they tried uping the dose which still didnt help and they told me it would eventually work which didnt she was then put on movicol which she was only supposed to get half a sachet still no diffrence i uped it to the the full sachet which helps a little she doesnt always have large stools but most of the time she does. She has got to a stage where she clenches and wont let it out because of how sore it is i try to put her on the toilet for it to come a little easier for her but she screams and will try hide herself in a corner and wont let you anywere near her it is heart breaking to watch her.
If anyone has any in advice i would really like to hear.
Hello cycling lady, have you noticed my picture is showing up as you? Have no idea why but it's rather disconcerting to see my picture and your words 😉 Do you know how to fix it? You seem to have far more experience with this board than I do
Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
Here is the link if you have never watched it.