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I Have Questions


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24 replies to this topic

#1 agnostic

 
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Posted 06 October 2005 - 11:34 PM

hi everybody, I have been on gluten free diet for two weeks, my questions:
1- how long will it take until observable heal?
2- how damaging is it when eating a gluten food rarely? in visits & invites I find it hard to refuse eating while I am a guest! or I will just sit and look at them while they are all eating? that's inappropriate!

thanks
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#2 bluelotus

 
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Posted 07 October 2005 - 03:01 AM

At dinner, bring tea (I bring my own b/c some aren't gluten-free) or get coffee (find out what brand) or wine. That's the easiest thing. Just wait, after you've been gluten-free a while then try gluten again, you'll get sicker than you've ever been. Seems to happen to some of us. You'll be ill enough that you won't want to do that anymore. A little will hurt. Its poison to your body if you have celiac disease. Crumbs and cross contamination are enough for me to get ill and I have only been gluten-free for several months. And, just as an aside, you can still be "poisoned" or experiencing damage without feeling the outward symptoms. Then again, all of this is a personal choice. If you choose to do that to yourself, its noone's business and only your decision.
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#3 nettiebeads

 
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Posted 07 October 2005 - 05:16 AM

hi everybody, I have been on gluten free diet for two weeks, my questions:
1- how long will it take until observable heal?
2- how damaging is it when eating a gluten food rarely? in visits & invites I find it hard to refuse eating while I am a guest! or I will just sit and look at them while they are all eating? that's inappropriate!

thanks

<{POST_SNAPBACK}>

1 - You WON'T heal unless you are totally 100% gluten free. When you do finally go gluten-free the healing time depends on many variables - length of time before being dx'd with celiac disease, amount of damage incurred pre-dx; and your own body's naturally healing rate.
2 - eating non-gluten-free is damaging, period. How damaging is a little amount of arsenic or anthrax? Why risk it? If you are eating with others, nibble on veggies, cheeses, or other gluten-free food to be polite, but if in doubt, do without. What is appropriate is to take care of your body and stop damaging it. I've had celiac disease for 9 years and do social functions. When food is involved it's a simple 'I can't eat that'. If questions are asked, I give a brief explaination. After awhile, you'll find it easier to stay gluten-free because you will feel so much better.
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#4 rmmadden

 
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Posted 07 October 2005 - 05:27 AM

I had Celiac & cheating explained to me this way.........It's like trying to say that someone is a little pregnant. You either are or you aren't. If you cheat you won't heal and it just opens the doors to a variety of other problems.

It's tough at the beginning but it does get easier. Hang in there!

Cleveland Bob B)
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#5 FaithInScienceToo

 
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Posted 07 October 2005 - 08:21 AM

Hi, Agnostic!

Welcome.

I am not sure that you said you want to cheat...it's just that you used an exclamation point about 'it being impolite' to watch others eat and not partake...so, 'we' want to be sure that you know that cheating is simply 'not an option'...as another member said, "When in doubt, do without!"

ALSO...try to think of it THIS way...it is not only impolite of, but MEAN FOR OTHERS to expect you to eat something that will make your own immune system attack your own organs...

So...you MUST TALK about your disease - educate others, without being 'graphic' at the dinner table - because you CAN not only make it VERY clear, in a polite fashion, that you simply cannot partake (but appreciate the offer to), but you may also end up helping another person get diagnosed...because someone is bound to ask you later for more details about your 'illness,' and they will know someone who they think may also need to be tested...

It's amazing how many people I have come across who thank me for telling them about it, and about my misdiagnoses...because their mom is sick, or a friend was also told "IBS", etc, and most end up asking for the spelling of the disease even.

Anyway...If 'they' act offended when you say that you cannot eat something, or even imply that YOU are being impolite...find new friends!

When people love you, they do NOT want to see you be self-destructive, AND good friends will even help you talk to waitpersons, to get something you can safely eat/drink, if need be! :-)

With love, Gina


PS - I carry individual packets of Amy's gluten-free dressing...you can then ALWAYS have a salad, and add cheese for protein and/or garbanzo and kidney beans. You can put some in your glove compartment, or even one in a jacket pocket. If you are female, purses can carry ALL sorts of gluten-free stuff ;-)
-------------------------------------------------------------------------------------------
Added on:
THAT SHOULD HAVE SAID "Annie's gluten-free dressings" ...see link below for on-line stores that carry those individual packets -

Edited by FaithInScienceToo, 07 October 2005 - 04:25 PM.

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#6 KaitiUSA

 
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Posted 07 October 2005 - 08:33 AM

hi everybody, I have been on gluten free diet for two weeks, my questions:
1- how long will it take until observable heal?
2- how damaging is it when eating a gluten food rarely? in visits & invites I find it hard to refuse eating while I am a guest! or I will just sit and look at them while they are all eating? that's inappropriate!

thanks


Well everyone heals in different times but you have to be 100% gluten free for that to take place. For symptoms to go away it also varies. Took me 8 months to get back to normal but for some people it may take less time then that and for some it may take longer.

Even eating the smallest bit of gluten as frequent as once a month is just like not following the diet at all!!
Would you feel bad if you were at a friends house if you were a diabetic and you couldn't eat certain things?
They need to understand this is a matter of your life(not following this diet eventually leads to premature death and very life threatening and disabling things) and you can explain you have dietary restrictions...maybe bring something to share that you can have so you can at least eat something.
There is alot we still can have so hang in there you will find it easier as time goes on. There are many lists you can get on mainstream brands that won't hide anything and a huge list (79 pages)on gluten free status of products like cosmetics, medications and foods.
It's not rude to look out for your health and if they do not understand then that is their problem..not yours.
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Kaiti
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Gluten-free since January 2004
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Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#7 jenvan

 
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Posted 07 October 2005 - 08:48 AM

what's inappropriate is eating foods that harm you. you may have to start being creative--bring snacks and food with you to friends houses and out to restaurants if people are not accomodating. they should understand. either way--etiquette isn't worth your health!

healing really varies from person to person. my experience is it takes longer to heal the longer you have had the disease. but you should begin to notice some changes relatively soon i would think--whether in your energy levels or BMs... you may just not start feeling "normal" for a while. but stay the course--the diet will help!
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#8 floridanative

 
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Posted 07 October 2005 - 08:57 AM

Gina - where do you get Amy's gluten-free dressing? I know some of Paul Newmans dressings are gluten-free but I don't know where to buy packets to carry around. What about reg. balsamic vinegar and olive oil? Aren't they both gluten-free? Any nice restaurant would have these available. I have not been told to go gluten-free yet but I'm trying to prepare so I'll be ready if that time comes.

Tiffany M.
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#9 FaithInScienceToo

 
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Posted 07 October 2005 - 09:59 AM

Gina - where do you get Amy's gluten-free dressing? I know some of Paul Newmans dressings are gluten-free but I don't know where to buy packets to carry around.
Tiffany M.

<{POST_SNAPBACK}>



OOPS - I typed Amy's, but meant "Annie's" - my 'ADD' at work...glad you asked for more info on these...


Here are links to on-line companies that you can buy Annie's dressing from in individual packets - these are the direct links to the pages that have the individual packets listed for sale - they are about 50-70 cents a piece, depending on which site you buy from.

I buy a lot of them at a time - the Ranch dressing is the only one that hasn't gotten good reviews, but I have yet to try that one - I like the Roasted Red Pepper best, but so many of her dressings are great, and I also buy many of the bottled dressings on sale when I see it, and use it in marinades.

Best wishes, Gina

http://www.allergygr...s_Mustards_Mayo

http://www.glutenfre...html&lang=en-us

http://www.shopbydie...ree/results.php
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#10 Claire

 
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Posted 07 October 2005 - 10:16 AM

hi everybody, I have been on gluten free diet for two weeks, my questions:
1- how long will it take until observable heal?
2- how damaging is it when eating a gluten food rarely? in visits & invites I find it hard to refuse eating while I am a guest! or I will just sit and look at them while they are all eating? that's inappropriate!

thanks

<{POST_SNAPBACK}>


I cannot say this forcefully enough - if you have celiac disease or non-celiac gluten sensitivity DO NOT EAT GLUTEN - not the smallest amount. I will not bore you with my personal experience but just take it from me - damage is being done to your body whether or not you have an immediate reactions to a small amount of gluten. You risk your future health each and every time you take gluten into your body.

Quote: The smallest amount of gluten which has been shown by a biopsy to cause damage to a celiac is 0.1 gram per day (Catassi et al.). This is approximately the amount of gluten contained in 1/48th of a slice of bread! The biopsies in this study showed an increase in intraepithelial lymphocyte count, one of the earliest signs of damage.

My neurologist told me that a grain of gluten put in a petri dish with a drop of blood from a celiac disease patient started a reaction within minutes that could be sustained in the dish for days - even weeks. Translated to your body that is cell damage going on while you don't even know it! Claire
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#11 tarnalberry

 
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Posted 07 October 2005 - 02:58 PM

2- how damaging is it when eating a gluten food rarely? in visits & invites I find it hard to refuse eating while I am a guest! or I will just sit and look at them while they are all eating? that's inappropriate!

<{POST_SNAPBACK}>


it's not inappropriate to just sit there, because the food will make you ill and will damage your intestines. but you can also bring your own food, and ask your hosts if they have any fresh fruit or something that is safe for you to eat.
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G.F. - September 2003; C.F. - July 2004
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Bellevue, WA

#12 Tychsar

 
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Posted 07 October 2005 - 08:12 PM

Hi, I was just diagnosed. I don't think I have had any symptoms. But I will have symptoms after being gluten-free for awhile if I eat gluten?
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#13 KaitiUSA

 
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Posted 08 October 2005 - 04:48 AM

Hi, I was just diagnosed.  I don't think I have had any symptoms.  But I will have symptoms after being gluten-free for awhile if I eat gluten?

<{POST_SNAPBACK}>


You could. Alot of people get more sensitive but some people just never get symptoms. I personally got more sensitive.
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Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#14 happygirl

 
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Posted 08 October 2005 - 05:51 AM

Many on this board are more sensitive after going gluten free.
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#15 jerseyangel

 
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Posted 08 October 2005 - 06:16 AM

I too find that the longer I am gluten-free, the more sensitive my digestive system seems to be. The emotional symptoms (anxiety and mild depression) have gotten better but it does not take much to set off my stomach. I was feeling better than I have in a long time for about 3 weeks :D but since Monday I've been having D on and off with bloating and a general feeling that my intestines are sore--almost like I've done 100 situps--and believe me I haven't!! Has anyone else felt like this after a period of feeling better? It is so depressing because I was hoping I had it figured out. I have mentioned this in another topic, but on Monday I also used a new soap which I found out was at the least questionable (Cetaphil Facial). If this is what caused the reaction, How long does it generally take to get back on track? I'm still kind of new at this.
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