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Neck Pain Related To Celiac?
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Hey all,

 

Just months ago I've been diagnosed with hiatus hernia, because I had very bad heartburn, I managed this symptom with new diet. Whole life I've been very fit, I'm 19 years old now male. Since 7 years old I played basketball up until 17, had to stop because of neck pain. I went to plenty of docs, had xrays, and other scans and all showed NOTHING, I had massage therapies which haven't helped at all. And doctors up until now don't know what is it.

 

I also have bowel movement problems since 18 years old. I have diarrhea 1-2 a month, but mostly I'm constipated and need to strain to have bowel movement.

 

Is it possible that all those symptoms are related to celiac disease ? by the way my grandmother was diagnosed with Celiac disease about 20 years ago. 

 

 

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It can be related to celiac or other food intolerences.I myself am fighting to discover why I have muscle aches and pains neck included.Neck pain can definately be a symptom of celiac or other intolerences as well.When your stomach is at its worse is your neck worse at the sametime?

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It can be related to celiac or other food intolerences.I myself am fighting to discover why I have muscle aches and pains neck included.Neck pain can definately be a symptom of celiac or other intolerences as well.When your stomach is at its worse is your neck worse at the sametime?

 

Well I don't have stomach problems for the past good month now, but bowel problems and neck pain are killing me ( but no cramping, abdominal pain ) and neck pain come and goes, sometimes it starts in the morning, sometimes when I walking in the town. 

 

By the way I just tried Biocard celiac test kit and it showed positive results for Celiac. Not sure if its reliable. 

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I used to have neck pain and tightness in my right shoulder, traveling up my neck which would then turn into a headache. Been going on for years. I went to osteopaths, had exrays that came out fine, neurologists found nothing, finally ended up in pain management for it. At the same time I had other symptoms...stomach problems, lots of constipation, some D, weight loss (although I could eat like a pig), hair loss, hypothyroid. Never equated those symptoms with the neck pain and headaches until I joined this forum and talked to my gastro. Since going gluten free, neck pain and headaches are gone. Just the other day my husband said that I do not complain about my neck anymore. Only problems I am still having is not sleeping well and trying to put more weight on. So I think pain plays a part with celiac and gluten intolerant people.

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I used to have neck pain and tightness in my right shoulder, traveling up my neck which would then turn into a headache. Been going on for years. I went to osteopaths, had exrays that came out fine, neurologists found nothing, finally ended up in pain management for it. At the same time I had other symptoms...stomach problems, lots of constipation, some D, weight loss (although I could eat like a pig), hair loss, hypothyroid. Never equated those symptoms with the neck pain and headaches until I joined this forum and talked to my gastro. Since going gluten free, neck pain and headaches are gone. Just the other day my husband said that I do not complain about my neck anymore. Only problems I am still having is not sleeping well and trying to put more weight on. So I think pain plays a part with celiac and gluten intolerant people.

 

Same like me, well, looks like I'll need get another endoscopy apppointment...

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Hi Home22,

 

Your symptoms could be related to celiac disease.  There are many celiac disease symptoms, and many of them are not in the gut.  Some people have no gut symptoms at all in fact.  They call that "silent celiac".

 

You can get an endoscopy with 6 or so biopsy samples to test for villi blunting in the small intestine.  You can also get blood antibodie tests done.  Don't go gluten-free until the testing is complete though or the results will be affected.

 

Helpful threads:

FAQ Celiac com
http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

What's For Breakfast Today?
http://www.celiac.com/gluten-free/topic/81858-whats-for-breakfast-today/

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Blood test done (EMA) in hospital today and it's back positive. Having endoscopy in a couple weeks

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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