Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Eye Drops And Gut Reaction
0

5 posts in this topic

I've recently been prescribed caramellose sodium drops for dry eye syndrome due to my thyroid disease and have noticed my stomach hurting increasingly more each day, in the way it does when I've been contaminated with gluten. Has anyone else had this problem?

The leaflet included with the drops doesn't mention any reaction with the stomach but when I looked at the chemical compound on line, it mentioned it was non toxic, and hypoallergenic (unless there is a wheat intolerance) I contacted the pharmacy and they rang the drug company, and they said they have never had any reaction in this way recorded and more or less thought it must be something else. I stopped using the drops last night as a precaution and am still having symptoms (I've been taking them for 10 days). Any suggestions? Could I be barking up the wrong tree? I've checked everything I've eaten and have no other clues other than the eye drops.

0

Share this post


Link to post
Share on other sites


Ads by Google:

It really said " unless their is a wheat intolerance"? I can't imagine how an eye drop would have irritating things like wheat in it.

0

Share this post


Link to post
Share on other sites

It really said " unless their is a wheat intolerance"? I can't imagine how an eye drop would have irritating things like wheat in it.

Yes it did.  If you think about it, it makes sense.  When you put eye drops in, they drain down through the nose, and things which drain through the nose end up in the stomach.  That's why some people of here are worried about inhaling flour, wheat etc.

0

Share this post


Link to post
Share on other sites

I've recently been prescribed caramellose sodium drops for dry eye syndrome due to my thyroid disease and have noticed my stomach hurting increasingly more each day, in the way it does when I've been contaminated with gluten. Has anyone else had this problem?

The leaflet included with the drops doesn't mention any reaction with the stomach but when I looked at the chemical compound on line, it mentioned it was non toxic, and hypoallergenic (unless there is a wheat intolerance) I contacted the pharmacy and they rang the drug company, and they said they have never had any reaction in this way recorded and more or less thought it must be something else. I stopped using the drops last night as a precaution and am still having symptoms (I've been taking them for 10 days). Any suggestions? Could I be barking up the wrong tree? I've checked everything I've eaten and have no other clues other than the eye drops.

 

 

Here are some links that will be useful to you:  http://www.nhs.uk/medicine-guides/pages/MedicineOverview.aspx?condition=Dry%20eyes&medicine=carmellose%20sodiumpreparationCarmellose%201%%20eye%20drops%200.4ml%20unit%20dose

 

http://en.wikipedia.org/wiki/Carboxymethyl_cellulose

 

I am in no way a fan of Wiki but in researching this medicine, I found something interesting.  Look under "Uses" on the second link and right there, in the first paragraph, there it is.....a reference to wheat intolerance.  I am still trying to figure that one out myself. 

 

I have Sjogren's Syndrome and use Restasis eye drops for dry eye, which is the leading Rx here in the States for dry eye.  I see you are in the UK?

 

You may want to be tested for Sjogren's, if your eyes are that bad that you are being given drops to use for it.  It is a blood test.  The Restasis works very well.  I had never heard of the one you mentioned but I wouldn't if you are in a different country.  The Restasis is safe for Celiacs and yes, you are 100% correct in that you have to screen eyedrops cause they do go down the throat after application.

 

This is a first for eye drops for me....never heard of one that is not safe for Celiacs and I would love to know the reason why.  Back to research..... :)

0

Share this post


Link to post
Share on other sites

Many thanks for replying.  I had already tried the sites you had spotted and drew a blank with the NHS one, mainly because it appears that the information is sourced from a third party and not NHS themselves. I had also seen the information you had spotted on wikipedia, like you, I am always sceptical about the information on there as you don't necessarily know who has provided the information.  Having said that, because it mentioned wheat sensitivity, it made me question whether I was right in my assumption. 

 

I will look into everything else you said, as it pays to be open minded in these things. Thanks :)

Here are some links that will be useful to you:  http://www.nhs.uk/medicine-guides/pages/MedicineOverview.aspx?condition=Dry%20eyes&medicine=carmellose%20sodiumpreparationCarmellose%201%%20eye%20drops%200.4ml%20unit%20dose

 

http://en.wikipedia.org/wiki/Carboxymethyl_cellulose

 

I am in no way a fan of Wiki but in researching this medicine, I found something interesting.  Look under "Uses" on the second link and right there, in the first paragraph, there it is.....a reference to wheat intolerance.  I am still trying to figure that one out myself. 

 

I have Sjogren's Syndrome and use Restasis eye drops for dry eye, which is the leading Rx here in the States for dry eye.  I see you are in the UK?

 

You may want to be tested for Sjogren's, if your eyes are that bad that you are being given drops to use for it.  It is a blood test.  The Restasis works very well.  I had never heard of the one you mentioned but I wouldn't if you are in a different country.  The Restasis is safe for Celiacs and yes, you are 100% correct in that you have to screen eyedrops cause they do go down the throat after application.

 

This is a first for eye drops for me....never heard of one that is not safe for Celiacs and I would love to know the reason why.  Back to research..... :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,679
    • Total Posts
      921,706
  • Topics

  • Posts

    • egs1707. Are you in Canada?  It's NOT a good idea to go gluten free between now & the GI appt. and here's why.... MOST of us have MUCH stronger reactions to gluten when we go back on it for the endoscopy. A lot of people have had such strong reactions that they have been entirely unable to complete the challenge and have to call it quits. This means they never get an official dx. It's your call, you make the choice. However, I will say that you don't have to eat a lot of gluten, a couple saltines or a slice of bread per day. 
    • You mentioned the tight head. Yes, both my celiac sibling and I had head pressure. Mine was horrible last glutening with eye pain as well. Like someone put a vice around my temples. I swore it felt like a parasite infected my gut, thyroid and brain. It is going away mostly, still have it on and off a bit.  My brother said his naturopath informed him some celiacs get a bit of inflammation in the brain.   
    • Hi All this is my blood test result 1.immunogloblulin serum 203 ( 87-350) 2.Deamidated Gliadin IGA  4 ( 0-19 negative) 3.Deamidated Gliadin IGG 3(0-19 negative) 4.Transglutainase IGA <2 ( 0-3 negative) 5.Transglutainase IGG <2 ( 0-3 negative) does it mean most likely no celiac ? thanks.  
    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,677
    • Most Online
      3,093

    Newest Member
    Jessica123
    Joined