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My Gluten Symptoms
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2 posts in this topic

So I am a 17 year old male and i have recently been lead to believe that i am dealing with gluten sensitivity/intolerance, or whatever its called. Now there are symptoms i have the suggest gluten sensitivity, but i am also missing many of the common symptoms. 

 

Symptoms I Have

  • Fast metabolism- food seems to pass through me pretty fast
  • Trouble gaining weight or muscle-​ this has been a frustrating one for me because despite my feverish eating and working out, I can't gain a pound on my skinny frame
  • Weight going to stomach- I have practically no fat on the rest of my body but some on my stomach
  • Sinus swelling/nasal congestion- especially at night, I have dealing with nasal congestion that causes sleeping issues for a couple of years now
  • Post nasal drip- diagnosed with when i went to my doctor for my congestion. Said i have seasonal allergies, when they seem to be yearlong
  • Under eye circles- probably related to the previous symptom, and is not affected by sleep. Definitely worse at some times, although i have not been able to correlate it exactly to when i eat gluten
  • Poor circulation-cold hands and feet
  • Acne- I am still a teen so it may be normal but despite my efforts to maintain it, it is still somewhat of a problem
  • Brain Fog- I have been feeling mentally slower, worse memory, and less articulate than in the past
  • Thinning of hair- my eyebrow hairs seem to fall out a lot as well as my eyelashes, which are pretty short
  • Depression- I have mood sings where i get extremely depressed
  • Anxiety- Some social anxiety and well as the physical symptoms of anxiety for no apparent reason
  • Fatigue- Even with a good nights sleep, i feel tired throughout the day
  • Diarrhea- Occasionally, although i usually blamed overeating

Common symptoms that I am missing

  • Stomach Pain- When i was a young child, I had constant stomach aches but rarely anymore
  • Head aches
  • Constapation

So can I assume i have a gluten allergy with the symptoms I'm having when I a missing some major ones? Have you had similar symptoms go away after you quit gluten? How long will it take for these symptoms to go away after i quit gluten (so far 1 day)? Also, can I have a little bit every now and again as long as i avoid it overall?

 

thnx

Edited by norman516
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I would say intolerance rather than allergy simply because an allergy requires a histamine reaction among other things (hives, swelling, etc).

 

Seasonal allergies can occur all year round. Be it from dust, smoke, or even tree pollen.

 

I would consider doing all of the testing required for celiac before removing gluten. Reason being because, what if you go to college and wish to stay in the dorms. In order for a school to accommodate you, then you would have to have documentation from the doctor on it.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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