Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Managing Celiac When Your Child Is In Someone Else's Care
0

11 posts in this topic

My 3 year old daughter was diagnosed with celiac in September of 2012. An although I NEVER rely on someone else to care for or about her disease at times your kids can't help but be in the care of others. I am always very upfront and firm on the fact that she can't have that. I always always pack snacks to take with me when she is going anywhere and let them know she can only eat from that bag ( even if other options may be safe). Well today my daughter went to a class that was offered through the city we live in and I specifically asked the teacher if ANY food or drinks would be given or used for ANY purpose and told her my daughter was Not able to have any food or drinks unless I brought them for her and I was told no they never deal with food or drinks in class.... I pick her up and she tells me mommy we had COOKIES! What???? So I called and spoke to someone and of course got oh sorry, make sure you let them know blah blah. And then my daughter starts vomiting and has been vomiting for the past 3 hours straight :-/. How do you handle a situation like this where it was a blatant disregard for what was said and there is basically no recourse. I'm so sad for my sick little girl right now but also don't want to keep her from doing things due to her celiacs and people's ignorance. Thank you

0

Share this post


Link to post
Share on other sites


Ads by Google:

I would call city hall and tell them what you just told us. Get the names of the people you spoke to about not allowing food, and find out who fed her the cookies. Tell the people at city hall that you are considering speaking to a lawyer. (Even if that is the farthest thing from your mind, it will get their attention. That way they will NEVER let it happen again.)

 

In the meantime, maybe some Pepto and lots of water for your daughter? And when she's feeling better, talk to her about how important it is that she never eat food that you didn't pack for her. She is only three, but getting this sick might make her realize why she shouldn't eat outside food.

0

Share this post


Link to post
Share on other sites

Honestly, I'd go in and talk to the teacher.  Fear of lawsuits is a bigger problem in this world than actual ones, but that fear makes people do stupid things, so I can't encourage you to add to that.  But go tell the teacher - "she was throwing up for three hours after this class.  I specifically left instructions about this topic, and for you to disregard my instructions requiring a medical necessity is reckless and threatens her health and safety."  I would also file a formal complaint unless the teacher addresses your concerns well.  And, of course, pull her.

 

I suggest going to the teacher directly because it's possible there was a mixup for some reason, and it's the humane thing to do to offer her the benefit of the doubt.  But then chew her out if you find out that's not the case. :)

0

Share this post


Link to post
Share on other sites

I know it may sound. Bit mean but there may be a silver lining to this... Your daughter will probably remember how I'll the cookies made her. This may be the perfect opportunity to explain that the gluten made her so I'll, that is why it is very important that she only eats food you send her with. She may be sad at not getting the treat everyone else had, but she can have something else when she gets home.

My then 2 1/2 yr old ate something she shouldn't and told us her tummy hurt. We used it to reinforce being an advocate for herself. She never eats anything without asking, she turns down food from friends, and relatives without question. If they try to entice her she tells them she has to ask her mom and dad first. She has just turned 4 and tells people gluten makes her sick, and she gets a really sore tummy. She is also very strong willed, which helps her stand up for herself.

I second talking to the teacher, and resend any letters documentation to her to reinforce how serious the issue is. If you get no response, go to the school district. Would they give a cookie to a child with an anaphylactic allergy? No! So why would they give a cookie to a child who could suffer permanent complications from gluten? If necessary print out the long term effects of gluten, it might seema. Bit heavy handed but will get the point across. My daughters preschool asked for the info, and now her preschool is "crumb free" to keep her safe.

0

Share this post


Link to post
Share on other sites

Our kids have medical alert bracelets and allergy action plans signed by their doctor. All care providers are informed of the information, and we have always stated their celiac/allergies on enrollment forms.

I hope your daughter feels better soon. We also reinforce required hand washing protocols and check any supplies (crafts, games, activities) being used. We have had our fair share of problems with others not appreciating the severity of our issues, so please don't let it get you down. This is a long, sometimes very difficult, journey. We know...but we have heaps more good experiences now than bad ones! Yet we still find ourselves troubleshooting and tweaking protocols. Best wishes for a speedy recovery and future successes to come!

0

Share this post


Link to post
Share on other sites




I would encourage you, since it is so urgently important for your daughter to not have gluten, do not to leave her unattended.  She needs to have you, or someone who really understands with her to protect her.  A teacher won't always understand.  When you daughter does have the knowledge, and won't give in, then I would allow her to try something like the CE class again.

 

Diana

0

Share this post


Link to post
Share on other sites

I don't think it's realistic to be with her always. Yes she is only 3, but my daughter is 7 and she still sometimes eats things she isn't supposed to. (Luckily for us, she doesn't have any obvious reaction -- although that is also partly why she doesn't always remember to say no.) How do you decide when they're old enough? And being with my child all the time wouldn't have even been an option for me when she was 3 if she had been diagnosed then, unless I was going to quit my job.

 

I'd talk to the teacher and whoever at the city is running this program, and make sure they know how serious it is. But I agree that threatening to sue will probably not do any good, and I agree with not adding to the rampant fear of lawsuits. That could lead to the city not allowing any children with food allergies into their classes, just to cover their b*tts.

 

I hope your daughter is feeling better by now. What a nightmare.

 

Ironically, my daughter's at a birthday party right now, and just as I was typing this, the birthday girl's mom called to ask me if my DD can have pizza and cake. Um, no.... And I certainly think my DD would have said no to that. (We sent her to the party with extra snacks and treats.) But I'm glad the mom thought to call, at least.

0

Share this post


Link to post
Share on other sites

We had a similar experience with my son (at age 5) and a tennis program run by the city.  I filled out a registration form which clearly asked about dietary restrictions, I sent a written note with him, AND I spoke to the site director.  It was a tennis program and food was not a part of the program.  One day in the final week of the program he came home sick and I asked him if he ate anything.  He said he had some graham crackers but they were safe - the teacher checked them.  This sounded weird to me so I called and asked what happened.  Turns out a parent brought the crackers and was sharing them with the kids.  My son asked the teacher if they were safe for him and she checked the ingredient list.  Since "GLUTEN" was not listed as an ingredient (wheat was the first ingredient) she told him it was safe.  He was sick for a week.

 

I did contact the administers of the program.  Their policy is that NO FOOD be served to any child unless it is the snack they brought from home.  The teacher did not follow the policy.  Had this been a severe food allergy the result could have been far more tragic.  It is inexcusable.  The policies are there to keep kids safe, the staff need to take them seriously.

 

The following year, there was a letter sent home about the food policy and they enforced it.  There was also a new site director.  Not sure if it was related or not.

 

On a good note - we changed our "family" policy to be "only eat the food mom and dad pack for you unless YOU see "gluten free" on the actual package or unless you call me and verify that it is safe."  We no longer trust anyone to determine if it is safe or not - really, it can be complicated unless you know what to look for.  I can't be with him all the time, but he has called me several times when something has come up.  It is not a problem to quickly google something and find out if it is safe.

 

Cara

0

Share this post


Link to post
Share on other sites

This caught my attention because of this recent article I saw. She is young enough that no one will care what her tshirt says. You could also probably just contact a local tshirt place and have "don't feed me, I have food allergies" put on a tshirt. I have to say I would certainly have chewed someone's a$$ out back in the day if that were my kid. I would have started with the person responsible and worked my way up until I felt better. The person in charge of the program though should certainly know so they can take whatever steps are appropriate. This should never have happened.

 

http://gma.yahoo.com/blogs/abc-blogs/dont-feed-t-shirts-calm-parents-allergic-kids-100406887--abc-news-health.html

0

Share this post


Link to post
Share on other sites

Honestly, at 3 I couldn't/wouldn't expect my kid to say no to treats. My DS has been dealing with food allergies and Celiac since he was 14 months old. At that age they really are too little to know what's up. I wouldn't have left DS at all. He did story time at that age after I had a very long and detailed discussion with the teacher. I did not ever leave the library either. 

 

The no food from home rule is really key to teach for many kids. They are too young to be able to tell between a safe cookie and an oreo or cracker.   I would really raise a stink with this dept. and be sure the teacher knows how serious a mistake she made. If it had been a life threatening allergy, it could have been even worse. She needs to understand the seriousness of what she did.

0

Share this post


Link to post
Share on other sites

We taught our daughterno ingredients no eat, so if she sees no ingredients on something she refuses to eat it even if we offer it to her! She started preschool at 2 1/2 and we told her no food from anyone other than mom and dad, and she has never accepted anything. I think the age when a child is old enough to be an advocate for themselves depends on their personality. My monkey told the nurse who gave her her 12 month shots "no no no I don't like you I don't want it" so we figured she'd be pretty strong when it came to no to food!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,346
    • Total Posts
      917,409
  • Topics

  • Posts

    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
    • Will my doctor test me? So many symptoms...
      Hi! I was hoping some of you might be able to tell me if my symptoms seem like good reason to be tested for celiac disease... I actually asked my doctor to test me (years ago) and she told me she would not test me because the test is expensive... However, I am now desperate to figure out how to manage my health issues and am willing to find a doctor that WILL test me if my symptoms seem to point to celiac...Here they are:
      I have been diagnosed with all of the following over the last 12 years (I am 22 years old, and have always been a healthy weight/slightly underweight, and quite active):
      Irritable Bowel Syndrome Fibromyalgia Anorexia (started when I was 10, I have been mostly recovered since I was 14) Depression Anxiety Panic Attacks Horrible mood swings (from suicidal to totally fine in a matter of minutes)
        Chronic constipation and bloating Acne   HOWEVER, no one in my family has been diagnosed with celiac....am I wrong to think I have it??
    • Weird Reaction
      Yes, I was surprised about the MSG in broccoli as well. I just had a quick look now as I couldn't remember where I had read it but some mushrooms have it to. A Google search will bring up a few things. I always just thought MSG was an artificial food enhancer!! Insecticides are still a big possibility though. Why do you not want to try organic? We buy organic when we can and fruits and veges that are in season are usually the best and cheapest.  Thank you for the link, Cristiana. Very helpful. I have an appointment with my Naturopath in a couple of weeks and going to have a blood test done before that. She is excellent. Very knowledgeable and loves her work. Until then I'm not taking any supplements. I generally eat pretty well anyway so we'll see what she says. In the past I have used B12 injections (aka Neo Cytamen) which I found much better and safer than taken orally and very cheap. The energy boost was very noticeable. I didn't know it helped with anxiety though. She has also had me on Magnesium, Probiotics and Vitamin D3 and I also make my own Liver Tonic (Milk Thistle, Dandelion Root Powder, L-Glutamine, Taurine and Choline Bitartrate) which I use from time to time for a quick detox. Too much of anything can be bad but I think iron can be not real good in large amounts. Deficiencies can be related to gut health and/or competing for absorbtion with something else you may be taking I found. I'm no expert though but just a few things I've picked up during research. My normal GP told me to just eat some more red meat but I want to speak to my Naturopath first before supplementing. Her knowledge on nutrition is a bit more up-to-date.  I was just sitting there at lunch today after feeling great all morning and had a "weird feeling" come over me. Just a not quite right feeling. Very hard to describe and nausea seems to have returned to. It's funny that as I get older any little thing I get I seem to think it's life threatening even though all the tests I get back say I'm in good health. I guess that's part of that dread and doom and gloom feeling I mentioned earlier. Wish that would go away.  
    • Gluten and panic attacks
      There are great gluten-free pizza crusts out there, as well as good dairy free cheese. I find the key is to add good toppings, e.g. meats, carmelized onions, other veggies, white anchovies. Life goes on. Congrats. Hope the good feelings keep up. 
    • Gluten and panic attacks
      Just want to update incase anyone can find this helpful. I have stopped eating grains and dairy and everyday I'm feeling more and more like myself. It's amazing and I don't really care that I won't eat a regular pizza again. I mean 4 months ago I would have said I would die without gluteny soft pizza, now I am happy to never eat it again if it means I will never have to suffer a panic attack.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,480
    • Most Online
      1,763

    Newest Member
    Luposgirl
    Joined