This is a friend I have known since we were little. Are mothers are very good friends. We haven't seen each other in years but keep in touch on FB. This girl has always been very conscious of calories and, as a result, was and still is, very thin. She also like to be trendy.
This is her post:
"Day one of my 1,000 calorie no gluten, less sugar diet. Side affects....grumpy--check, hungry--check, upping my caffeine addiction--check, ready to eat my own arm--check!"
This is my response:
"As a person with Celiac Disease, I wish people wouldn't play at being gluten free. Taking croutons off salads and eating one bite of cake at a restaurant, makes it hard to get them to take those of us with a medical need seriously."
Think she will respond? Think her mom will call mine?
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31 replies to this topic
#1
kareng
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Something seems a bit fishy!
Posted 18 March 2013 - 04:05 PM
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"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
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#2
jerseyangel
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Posted 18 March 2013 - 04:16 PM
Thank you, Karen. If they call, hopefully they will understand when you explain it.
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#3
Lisa
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Posted 18 March 2013 - 04:31 PM
THIS is the reason, I stress my celiac disease as "I get really, really get sick if I eat any wheat/flour or wheat/flour products" when ordering at a restaurant.
Yeah, speak your thought Karen. 
Will you let us know if she replies?
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#4
GottaSki
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"Migratory flight complete."
Posted 18 March 2013 - 04:55 PM
Good job K...will be interesting to hear the response .... maybe she will simply delete her post ... minimally she will likely consider more carefully before posting about her fad diet attempts - well hopefully.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
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#5
StephanieL
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Posted 18 March 2013 - 05:01 PM
Good luck.
I have the same argument with people claiming intolerances are the same as allergies. Sure, lactose makes your tummy hurt. It can kill my child. So not the same thing.
#6
kareng
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Something seems a bit fishy!
Posted 18 March 2013 - 05:07 PM
I bet she ignores my response. And all the people that were making responses to her will probably stop cause I spoiled their fun.
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.”
#7
IrishHeart
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Warrior Princess
Posted 18 March 2013 - 05:26 PM
Spoil sport. Check!
You "done good", kid--- telling it like it is. G F Dabblers do us no favors.
Happy skiing. 
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
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#8
shadowicewolf
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Posted 18 March 2013 - 06:21 PM
I could understand if, say, someone with diabetes wished to try it to see if it would help them control their blood sugar.
ADHD
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#9
tarnalberry
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Posted 18 March 2013 - 07:49 PM
So what is necessary and sufficient evidence for her to try a gluten free diet? The implication, karen, of your reply is that, unless she is diagnosed as celiac, she shouldn't be trying gluten free, because it belittles the diet for other people who truly need it. I know that is not what you really mean, of course, but that's what it sounds like.
I'm not sure what would have been better, but I can't quite get into the camp of people who think it's a good response either. I know you meant well.
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
#10
kareng
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Something seems a bit fishy!
Posted 18 March 2013 - 08:01 PM
I guess I should have put the other responses before mine. One was even from her hub. All laughing about how miserable she will be. She is just doing this to loose weight as she is 5'6 and now weighs 115 lbs. It would have been better if she had just said she was giving up sugary foods and bread and pasta for awhile.So what is necessary and sufficient evidence for her to try a gluten free diet? The implication, karen, of your reply is that, unless she is diagnosed as celiac, she shouldn't be trying gluten free, because it belittles the diet for other people who truly need it. I know that is not what you really mean, of course, but that's what it sounds like. I'm not sure what would have been better, but I can't quite get into the camp of people who think it's a good response either. I know you meant well.
From her post, it seems quite clear to me that she is just doing to loose weight.
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.”
#11
shadowicewolf
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Posted 18 March 2013 - 08:10 PM
I guess I should have put the other responses before mine. One was even from her hub. All laughing about how miserable she will be. She is just doing this to loose weight as she is 5'6 and now weighs 115 lbs. It would have been better if she had just said she was giving up sugary foods and bread and pasta for awhile.
From her post, it seems quite clear to me that she is just doing to loose weight.
Ummm... that seems to be a bit underweight for her height... 
ADHD
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#12
tarnalberry
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Posted 18 March 2013 - 09:02 PM
I guess I should have put the other responses before mine. One was even from her hub. All laughing about how miserable she will be. She is just doing this to loose weight as she is 5'6 and now weighs 115 lbs. It would have been better if she had just said she was giving up sugary foods and bread and pasta for awhile.
From her post, it seems quite clear to me that she is just doing to loose weight.
I totally believe you, and even imagined it that way. You've known her for quite a while, so I'm certain that you read it right. But all the other people reading your response may or may not take it the same way.
I keep trying to figure out what I would have put in place of what you wrote... probably something about how much everyone loves my gluten free breads and cookies and muffins 
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
#13
GFinDC
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A little farting never hurt anybody... :-).
Posted 18 March 2013 - 09:32 PM
I actually think it's great when other people try the gluten-free diet. There are so many of us undiagnosed because of medical incompetence it seems likely at least a few real celiacs will discover their issue that way. Heck, we know there are people walking around with silent celiac too, who might never be diagnosed if they don't get the idea in their head to be trendy sometime and try the diet. Regardless of their motivation when trying the gluten-free diet, if they get a benefit from it I think that's great. I would like to see many more people try a gluten-free diet really. Maybe 30 million, or what the hey, maybe 300 million or more. Why the heck not?
It seems to me some times celiacs think they own the gluten-free diet. When it could be that the gluten-free diet would help many people with diabetes, Crohns, mental conditions, or other diseases. Heck, we could have a national no gluten month if you ask me. It would probably save us a fortune in medical costs. Hmm, the trendy people probably wouldn't like that tho. It would make them average Joe's instead, if everyone had to do gluten-free for a month.
Hmm, I can almost hear the screaming now, oh no, gluten-free month is coming again! 
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
#14
Adalaide
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Kipenzi
Posted 18 March 2013 - 10:33 PM
No, celiacs don't own the gluten free diet. At the same time, people trying to lose weight and claim to be gluten free are usually no such thing. They have given up bread, pasta and cereals, maybe a few other things that are super starchy and all the calories that go with those, and that accounts for the weight loss as long as they don't replace it with anything. It isn't some magical weight loss bullet, and picking croutons off a salad in a restaraunt while claiming to be gluten free to the staff only screws over the rest of us. I do not even try to hide how much I despise these practices by these people and the devastating effects it has on those of us that medically require a gluten free diet. Wanna dabble that way? Fine, but it is called cutting carbs, not gluten free.
For those who truly go gluten free for an attempt at helping any of a host of medical issues. I absolutely applaud them because it isn't an easy road, not to be sick and not to be truly gluten free. I only hope each of them finds the help they were looking for.
As for your friend, if she is on a 1000 calorie diet at her weight and height and trying to lose weight, I would suspect she has some sort of eating or self image disorder. That isn't healthy at all.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#15
JNBunnie1
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Posted 18 March 2013 - 11:21 PM
I'm 5'7" and 125lbs. I'm on the 'shove as much in my face as often as humanly possible
within my irritating restrictions' diet. I say your friend is nuts.
If you're going through hell, keep going. ~Winston Churchill
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