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Holy shite this chick is going to turn into a waif and blow away in the wind if she looses any more weight. I'm about 115(ish. Haven't weighed myself in forever) but I'm 5'1"! and if I lost any more I'd start worrying that gluten was sneaking into my diet (I lost a lot of weight dangerously fast before going gluten-free)

 

I'm also of the idea that if you're going to go gluten-free, whether to see if it will help your health or what have you, then you'd better go full-out. If you're just going to cut back on bread/pasta/etc (which people should do anyway to have a healthy diet), then don't claim to be eating gluten-free. I tell people thinking of trying gluten-free to only do so if they think their health might benefit. Otherwise, a balanced approach is best.

 

Kareng, I hope your friend comes to her senses, not just about the gluten-free thing, but that she's endangering her health by eating so little!

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Ya know, once you get up on one of these soap boxes it's really too high to come down quickly.

 

I don't agree with the argument that other people are making restraunt workers screw up gluten free orders.  If the restraunt staff does something wrong, that is their responsibility.  It;s not the responsibility of a third party, who probably isn't even there at the time.  I'm pretty sure you couldn't sue that restraunt customer and win in a court.  They just aren't responsible for what the restraunt staff does.  The restraunt staff is responsible for their own actions. Blaming somebody else for the restraunt screwing up isn't fair.  That's letting the restraunt staff off the hook for their actions.  They are the ones making the food, so they are responsible if it is made wrong.

 

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I'm another that has no problem with trying to go gluten-free. Sure, we can educate people as to what truely going gluten-free is, but if they want to try it - great.

 

I think that letting your friend know that most processed/baked gluten-free goods are usually higher in sugar and fat than wheat flours might help her realize that all gluten-free foods aren't created equal, and aren't designed for weight loss... then again, maybe don't tell her that because she sounds quite thin already.  ;)

 

I just think that there are a lot of special diets out there and I think we should just model tolerance and try to help people meet those dietary goals. I have a friend who is a raw vegan, another who can't eat gelatin or pork for religious reasons, another who eats kosher, and a family member who avoids nightshades dues to RA; if I told my cousin that I'm cutting back on potatoes for my health, I don't think he would judge me because I don't have an official medical reason to do it, or because I'm not eliminating all nightshades. KWIM?

 

And then there is me and my kids who eat gluten-free (even though only I am the celiac in the house), eat nut free (one son with an allergy), and avoid dairy (due to my lactose intolerance and a suspected casein intolerance in one son). We are very hard to feed when you throw in the fact that a couple of my kids are embarassingly picky eaters. I do think it is getting easier to feed them (when we are out) though because knowledge of the gluten-free diet is growing as more people get interested in trying it and dabbling in it (gluten light).

 

In my opinion, we celiacs are a minority so we can't expect the majority to know how to deal with our food. It's all up to us to make sure our food is safe.... All just my own personal opinion though.  :)

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I also have no problem with folks other than celiac going gluten-free -- I do however strongly dislike when people who "try" to go gluten-free don't really understand removing gluten -- many a teenaged girl has explained to my celiac son that he doesn't understand the gluten free diet -- lol -- he just smiles and waits for them to see that he actually does know quite a bit about it.

 

I also dislike waitstaff dismissing the need to be completely gluten-free, but when that happens we simply educate them -- I have much more time to chat with my server since I bring all my own food ;)

 

Is it fair that we all have to be ambassadors for Celiac Disease - hell no - maybe one day we will no longer be the "Rodney Dangerfield" of medical disorders -- until then I'll keep taking every opportunity to educate anyone who indicates interest or whom is serving my kids food that may harm them.

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I have both intolerance and allergies.  Do I have to have my asthma attack within a certain time frame of ingesting the wrong item to make my semantics legitimate in your eyes, StephanieL ? 

 

I'm sorry, I don't at all understand your question. 

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I think what gets people up in arms is the people who say they are "gluten-free" and then go and eat fried rice with regular soy sauce for example. The people who claim bread and pasta free is gluten free. And as with everything in life, we as the quote-unquote experts of what is and isn't gluten free, should take it as a learning/teaching opportunity. There are a lot of people who don't understand what the words "gluten free" mean (I gave one of them an earful today when he put normal bread in the dining hall's designated, labeled gluten free toaster) let alone just how serious those of us with celiac's have to be about things like cross contamination. 

I'm not saying get on your high horse and preach but maybe offer to show people exploring the diet the ropes and correct those who just don't know any better. 

 

But back to the original topic, that girl has more issues than just going gluten free. The more worrying thing in that post was "1000 cal diet." Hopefully her body reacts as quickly as mine does to calorie deficit (I pass out continuously after just 2 days...yay flu) and she'll realize that's not enough. 

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why don't they just say, "carb free" or something like that.  because if you're getting cc'd, you're not gluten free.  and if you're still getting gluten, what's the point of the whole thing?  

 

sounds like she is a "LOOK AT ME!  LOOK AT ME!" type - my daughter has a friend like that, but to the opposite.  she weighs, probably, at least 250 lbs - always "so excited to start my new diet today!"  until the next morning when she is posting a giant pancake breakfast at IHOP "my wonderful husband took me out for breakfast!  i have the best husband in the world"  evidently her diet was so secret, she didn't even tell him lolz.  or my personal favorite "my new dancersize class starts next tuesday - i can't wait!!!!"  followed by the countdown to tuesday.  the next day she is posting why she is quitting it.....  "i think i BROKE MY LEG in dance class last night"  you can set your clock by it.  (it's a self diagnosed broken leg.  it miraculously heals...)  she has stomach issues, supposedly, all the time and i have suggested that maybe she wants to try gluten free but she is *absolutely certain* that is not it.  translated to me:  she really doesn't want to help herself, she just wants to bitch about it to get attention.  POOR MEEEEEEEEEEEEEEEEEEEEEEEEEE!

 

here's her latest:  "i think i'm going to try 'insanity' i'm so excited!!!"  HAHAHAHAHAHAAAA!!!!  now, i have fitness instructor friends who struggle with this program.  my son does it and it kills him.  my eyes can not roll back in my head far enough.

 

no offense to anyone who has weight issues.  this chick just blows my mind....  sorry....

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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