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What Were You First Symptoms To Go Away?
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Hi, I'm 17 and have just started the gluten free diet. I am very excited to see results and just want to know; What were your earliest symptoms to go away and how long did it take?

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First, my feet hurt worse than ever.  They even had plantar fasheitis in both feet.  Then the pain went away and never came back.  I think that happened in 1-3 months.

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Skin, nails and hair all improved -- and I had pretty good skin and great hair before I was gluten free - my nails had always peeled and broke easily -- then a few months in my gums started improving - always had gum issues even with very good dental hygiene.  I had some improvement with digestion for the first six months -- then had other issues pop up...but I was 43 when I went gluten-free.

 

You are 17 so you will likely see much more improvement quickly.  My son was 15 when he went gluten-free -- digestive issues, bloating, flu type symptoms all disappeared -- his reflux remains problematic, but has improved over the past 4 years and he just grew an inch this past six months --- at 19!

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Migraines and constant D were the first things to go away for me. Both were gone within a couple weeks.  I still had issues with occasional D until I discovered that soy was my enemy also. The next to go away was my periodic episodes of depression. I know only get hit with that when glutened and it lifts after one day. My neuro issues took much longer to resolve as did my arthritis.

The time to heal can vary from person to person as can the body systems impacted. Many of us also go through withdrawl. That can be tough for many but will pass.

I hope you are feeling much better soon. Eat as much whole food as you can, stay away from restaurants and other people's cooking and do learn as much as you can about cross contamination to help speed the process.

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My stomach aches and bloating started to go after a few days.

 

After a month my headaches went away and I started losing weight (inflammation most like). My hair started to grow in better. Leg cramps slowed a bit. A bit more energy.

 

After 6 months, my joint pain went away. I'm not sure if it was related because it tends to come and go once or twice a year but my fingers are crossed.

 

I am still dealing with some symptoms that are the same as celiac but I think it's due to undertreated hypothyroidism.

 

I hope you continue to feel better!!

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In about a week my stomach pain went away, my constipation/D problems almost gone, much better mood...I was crabby more than happy. Haven't had any headaches.

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Within a few days, my reflux and gas disappeared. Over a few weeks, depressiona and anxiety started to life. The mental fog also went away within a few weeks. I'm two months into my gluten-free lifestyle and I've noticed I no longer have issues with neuropathy or even knee pain. Crossing my fingers that with time maybe my PVCs will even go away...oh and I'm starting to loose weight without much effort. :) I was a Celiac that couldn't loose weight no matter how much I tried. Now after diagnosis, it's coming off. :)

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Within a few days, my reflux and gas disappeared. Over a few weeks, depressiona and anxiety started to life. The mental fog also went away within a few weeks. I'm two months into my gluten-free lifestyle and I've noticed I no longer have issues with neuropathy or even knee pain. Crossing my fingers that with time maybe my PVCs will even go away...oh and I'm starting to loose weight without much effort. :) I was a Celiac that couldn't loose weight no matter how much I tried. Now after diagnosis, it's coming off. :)

 

Oh Jamer!

 

Thank you for posting :D

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Bloating went away as soon as I got on b12 shots and the majority of stomach and digestive upsets / pain etc went away with the gluten. Still ongoing other problems some years later because gluten free was too little too late for me. But I'm getting there. I only wish I had of know there was such a thing as Celiac or gluten problems when I was 17 because I was already sick then and didn't stop eating it for another 20 years. I think you'll come out of it ok having got on it early

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The bloating and intestinal pain were the first to subside. That was a huge relief - almost like instant gratification.

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This is a question I have as well. It's great to hear all the responses. We, as a family, are going gluten-free on Saturday due to my daughter's diagnosis. 

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im fairly new at being 10 wks gluten-free but by week 4, my itchy scalp rash had just about cleared up.

by wk 6 my fluctuating eyesight and dry eyes had improved dramatically (i had eye surgery 3 times, 4 yrs ago and last December my optician had made me an appointment for begin of Feb to fit me with glasses! but on the appointment, my vision was back to 20/20 !... i was taking flaxseed daily so that may have helped)

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My first symptoms to go were chronic D, nausea, pain after eating, and bloating. I lost a pants size in the first month just from bloat. Migraines took a little longer to improve, but did improve (and then came back...yuck). I had a rash on my hand that cleared up after about 2 months gluten-free (pretty sure it is just eczema and not DH as it was not blistery). 

 

I didn't expect ANY of the digestive stuff as I originally quit eating gluten to see if it would help my headaches. The drastic GI response is one of the things that prompted my celiac dx when I finally went to see GI.

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Within a week my skin cleared up from what I'd call regular acne. Bloating and abdominal pain took, well, a few months must have been. I rarely get hot/cold spells or feel like I'm getting the flu now.

 

But I still have very little energy, moderate excersise drains me, my neuropathy comes and goes (always worse the day or so after I excersise at all, and not just in my limbs where it makes sense, around my lips I get that nerve tingling), I've had a missed period, and my mood isn't better. Still have ups and downs, although random rages have improved, but I'm still depressed.

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First thing to go, anxiety attacks and depression. Energy levels too started improving in the first week. Tension headaches disappeared too. Blurred vision too. Reflux in the first weeks. All of these come back periodically, however, either because I ate gluten (involuntarily!) or because I ate something else which bothered my very sensitive bowels. (say: alcohol, coffee, or simply too much food. I'm almost four months gluten-free at this point, not nearly enough to see a real difference, says my GI doctor, at my age: I'm 47).

 

GI symptoms tend to come and go. On good days I have no bloating, no C and no D. Energy levels are much better (I get done a wide amount of stuff every day) but I can have bad or very bad days when I can't function at all and where all my GI symptoms come back. Dry, itchy eyes are still with me at night.

 

I still have issues with my period (it always was very regular and in the last months of my glutened life had started to come early or late by sometimes a week or too; but that might be related also to my age).

 

I'm still very dehydratated and trying to drink more.

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They first to leave were my horrible stomach cramps and the rest of the ibs like symptoms. Also abt that time my reflux was gone. A couple of weeks later as my life became normal again the agitation finally disappeared.

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Joint Pain in my hips, knees, and ankles! That went away 2-3 weeks gluten free. Also, bloating and acid reflux went away.

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Tingling feet stopped pretty quickly, the joint pain in my arms and shoulders improved after about five months.

 

Still struggling with digestive issues, but at least the majorly preggo-belly bloat is gone after about six months.

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Glad that you are feeling better now on a gluten free diet! The first symptom that went away was my chest pain when I went gluten free. It went away after 2 days of being gluten free and hasn't been back.

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I have been gluten free for only a week.  However, I already feel so much better!!  I can actually eat without getting a terrible stomach ache afterwards.  My head seems clearer, concentration is getting better.  Chest pains seem to be gone.  A coworker told me yesterday that I am losing the bloated look, which I saw, but thought maybe I was imagining it.  I have cheek bones again.   Lost 3 lbs in the first week, but find that clothes already fit better.  My energy level still isn't where I want it, but that can also be from the iron and B12 deficiencies.  Once I get more energy I plan on getting more exercise, which I know will help tremendously!  Thanks again for this forum!!  I was out with my 14yo nephew who was hungry and we weren't close to home, so we went to a 99 restaurant, and I ordered a gluten free burger.  I didn't think I had to explain how sick I could get from cross contamination, but, as delicious as the meal was, I did get the stomach pains.  I suspect they weren't as careful as they should have been in the kitchen.  Next time, I will have my card to show exactly what I need.  Lesson learned.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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