Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My Journey Through Gluten....
0

3 posts in this topic

So my journey starts about 4 years ago. I started to see a female and we progressed further into a relationship. After dating for a year or so she was starting to delevop reactions to eating some foods. We would have some pasta or ~insert gluten food here~ and she would get a stomach ache or just be drop dead tired. To the point where we would end up sleeping in the living room cause she just couldn't mustard the strength to get up and walk down the hall to the bedroom. After about a 3-5 weeks of this we decided that something was clearly wrong (better late then never right!)

 

She made an appointment with her doctor and her doctor came up with the brilliant idea of "Oh just don't eat those foods". Jeez doc your insight into this problem is so worthy I'm happy to pay the copay just to hear your words of wisdom. After getting home we discussed it some more and decided that she shouldn't eat anything with gluten in it for a while then have a little bit of it and see what happens...so a month and half or so of hockey puck cookies and door stopping bread she ate something that had gluten in it and BAM same results as before...sleey, tummy ache etc and etc.

 

That was pretty much all it took for us to realize that she had an interolance to gluten. She doesn't have celiacs but her body doesn't like wheat/rye/etc. After some more talking we decided that we will both go gluten free. Coming from a family that is half italian and half hungarian all we do is eat food so I can't imagine not being able to eat anything/whatever I wanted whenever however. I also come from an ironclad stomach family so it took some time but I accepted eatting gluten free and found out......it really isnt' that bad lol.

 

I have a new love for foods and especially since I enjoy cooking and baking, gluten free cooking/baking is right up my alley! Now I've read a number of your stories about people not switching or supporting you. I couldn't imagine not supporting my better half with her interolance. It isn't like she woke up one morning and said "Oh today I think I will have a reaction to gluten." Or as I say "She didn't win the lotto from the food gods!" . Most people just don't understand and refuse to understand why someone who doesn't have celiacs or even an intolerance would give up "real food" as they say.

 

In all honesty, I prefer gluten free foods. They taste way better along with being healthier usually. I also get to bump up my cooking/baking skills which is nice. We've removed everything gluten from the house except for the occasional crackers that I eat cause well..my tummy hurts time to time and we had gotten a huge thing of saltines :).

1

Share this post


Link to post
Share on other sites


Ads by Google:

Again welcome...

 

ps...fresh ginger tea may do more for you when you have a tummy ache and will get rid of that last pesky gluten in the house -- and on your lips -- for your lady ;)

0

Share this post


Link to post
Share on other sites

" Now I've read a number of your stories about people not switching or supporting you. I couldn't imagine not supporting my better half with her interolance. It isn't like she woke up one morning and said "Oh today I think I will have a reaction to gluten." Or as I say "She didn't win the lotto from the food gods!" . Most people just don't understand and refuse to understand why someone who doesn't have celiacs or even an intolerance would give up "real food" as they say."

Ha, I like the way you put it.  Anyone here that volunteered for the job of battling celiac?

 

I am really enjoying the food also.  But I didn't volunteer.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,338
    • Total Posts
      920,471
  • Topics

  • Posts

    • They didn't suggest any probiotic support. Ultimately the side-effects of this drug stabilized approaching the end of the course of treatment, though after it was finished, I was perhaps a bit improved, but no profound symptom resolution for me. Darn! The search goes on.
    • Thankyou I have found that I became intolerant of dairy and having cut it out feeling better but if I come into accidental consumption the symptoms are similar to that of gluten but not as severe .. Patience ay ?
    • I checked the Gluten Free Watchdog (I subscribe) and did not find this  particular product, but found the company's oat bran flakes which did not list any gluten ingrediants, but barley was found in testing well over 20 parts per million.  I would stick with certified gluten-free cereals, personally.  I think it is "hit or miss" on grain products.    
    • It is normal for other intolerances to become apparent once you remove gluten. I don't know why, perhaps as the immune system is free'd from chasing gluten it finds new targets? A lot of coeliacs find they have to cut out dairy as well for example. It's certainly my number one culprit for skin issues.  It also can take time for removing gluten to have its full effect, as antibodies will remain in the body for up to 6 months. So the reaction could still be to gluten in a way. 
    • I did not re-test my antibodies for a full year after diagnosis but I think your daughter should be checked again in 6 months.  If she does have celiac, and I really am sure she does regardless of what this doc seems to think, they should decrease in 6 months.  If she is fast healer, they could potentially be in the normal range but it varies from person to person. She did show damage in her small intestine but at 4 years of age, damage would not have progressed to the point where this doctor could be convinced it is Celiac.  They set the bar way too high. Kind of silly to require you to damage her insides further to prove it to the AMA. I think she should go gluten-free, as you have stated, and re-scope her in 6 months to see how the original damage looks then. If it is gone, then maybe that would convince them. The 4 out 5 criteria is not done in kids because, I am convinced, of liability issues. They just do not want to get sued if by some small chance, they diagnosed someone who did not have Celiac.  I think the odds of that are pretty slim, when you think about it. Even with a misdiagnosis, eating gluten free will never harm anyone. But as children are minors and cannot legally make medical decisions on their own like adults can, that rule is out for them.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,408
    • Most Online
      1,763

    Newest Member
    LizzylouNZ
    Joined