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Post-Op Rny Gastric Bypass Putting Celiac Disease Puzzle Pieces Together

gastric bypass lymphedema

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#31 SeekingSarah

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Posted 24 March 2013 - 03:07 PM

When these breathing issue began a couple years ago I brought up to my PCP that in 2nd grade I was dx'd with Asthma but I was never given meds or inhaler as I really never had an asthma attack, I'd get short of breath after exertion but then again I weighed 125lbs in 2nd grade so of course the "fat kid" get short of breath after running or climbing stairs...but I could always rest to "catch my breath"....this issue that started two years ago was just totally different, and again often while I was exercising like at the pool I was fine, then 2 hours later...bam...but you know ate dinner after that....could have been something trigger...who knows. But yes just another oh yeah there is a sign I've had symptoms ALL MY LIFE.


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#32 SeekingSarah

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Posted 25 March 2013 - 05:56 PM

Just wondering...when/if they do a Endoscope given I've had part of intestine bypassed will they be able to get accurate biopsy or will the part they have needed to really biopsy have been bypassed?


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#33 caseycc

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Posted 28 March 2013 - 10:06 AM

Sarah, please let me know how you make out.  I had RNY about 10 years ago and gained most weight back.  I had viral meningitis a year ago and thought I have been struggling with it since.  My health has been getting worse over last five months though, not better.  However I have been extremely exhausted (beyond exhausted), dizzy, breathing problems (much like you described), migraines, thought I had heart problems (despite regular blood pressure, normal cholesterol, eating no fried food and little processed food, but alas I am overweight) but got the cardiologist clearance after invasive procedure, they sent me to a sleep dr and I'm getting tested for apnea, now getting sent for breathing tests and then for cardio/breathing combo if that clears (I honestly don't know how I'm going to do that test).  I'm going for upper GI because silent reflux can mimic heart problems but the gastro physician asst. is strongly suspecting celiac disease.  I too have been battling low vit B-12 (shot every 3 weeks) and Vit D (50,000 i.u. prescription 2x a week, supposed to be 1x week for a month then over the counter but I've been on it for months), all suspected on the RNY.  I'm just started scalp botox for migraines and on so much topamax medication I've nicknamed myself "dopamax".  My quality of life sucks.  I barely make it to work and home and its in bed.  I'm so exhausted my husband makes dinner.  I might help.  I rest all the time.  Sometimes I'm too tired to take a bath, a favorite relaxing thing I used to like to do!  I swear if I had a handicap sticker on my car, it wouldn't help me!  I'm tired, but not always a sleepy tired, an exhausted tired.  I'm also having a colonoscopy when I have the upper GI so hopefully they can further test for the celiac.  I had the blood test two days ago.  I'm kind of relieved because I've been thinking chronic fatigue, MS or Lupus (I had positive ANA test a few years ago, which topamax meds can sometimes cause a false positive).  All these doctors and specialists (Neurologist, Cardiologist, Pulmonologist, etc.) seemed to just shrug and say its the weight and just move around more, you have been too sedentary since the viral meningitis, MOVE!  But this one Physician's Assistant says, we need to look at celiac; overweight, extreme exhaustion, heart palpitations, breathing issues, etc. are some of the many, many symptoms.  I can't wait to hear about your progress.

 

Casey


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#34 SeekingSarah

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Posted 29 March 2013 - 07:44 AM

Casey I sent you a friends request so I can connect with you once I know more....


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#35 caseycc

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Posted 02 April 2013 - 01:02 PM

Thanks Sarah, I'll keep you posted too.  I've just been on the gluten free diet since last Thursday and while my stomach/digestive symptoms are a lot better I'm waiting for all other health symptoms to improve.  Constipation is a lot worse, but I heard that can happen.  But funny thing is I can eat things like potato salad which I swore used to bother my stomach but it must have been the bread that I had with the sandwich or hamburger along with the potato salad.  All along I thought the gastric bypass handle the potato salad!  I'm discovering new things every day!  Maybe I can even eat fruit now, who knows!  I just want my energy and breathing back, even just 1/2 of it, and the aches and pains gone too.  I don't get on here much so you could get me at caseycc at cox dot net.  I spelled it out in case its not permitted.  I've decided to slowly taper off my topamax (also known as "dopamax") for migraines because I'm walking around in a permanent fog and loosing my hair like crazy and I really think it's causing some of the breathing problems.  I wish you luck, it seems like these drs and specialists and tests take forever!  I wish there was a full body scan to detect everything wrong.


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