This is my first post to this forum, but I have been reading it for quite a while. I have a dilemna that I hope someone else has experienced and can help me with.
I have celiac disease, diabetes, and have an artificial heart valve. After my heart surgery, there were complications and I was in the hospital for 6 weeks. My kidneys and liver shut down, leaving me with some kidney damage.
I have been on diuretics since the heart surgery - I take a half dose of HZT, a small dose of spironolactone, and Torsemide. I am allergic to sulpha drugs and am very resistant to Lasix and Torsemide.
I have this weird thing going on. At home I will retain fluid and my legs, ankles, and feet will swell. Nothing seems to help. I am on a low sodium diet and cook at home (because of that and the celiac disease). I am very, very, very careful with sodium, and, yet, still I swell.
However, when I travel with my husband, I lose weight. Within 24 hours of leaving home, I usually start shedding fluid and will loose up to 10 pounds in just a few days. We were gone two nights last weekend and I dropped 5 pounds. This is with us eating out. I have "the talk" with the waiter about the gluten free and the sodium, but I know I'm getting more sodium than I do at home.
I eat more when we are away - usually three times a day. At home, I tend to not eat very much at all. The doctors have said that it must be that I get more exercise when we are away, but that isn't always so. My husband was in a conference last weekend, and very tired, so we stayed in the hotel except when we went to eat. It was a very quiet weekend.
I've told my doctors this repeatedly, but they just tell me that this doesn't make any sense. My kidney specialist listens and accepts what I say, but has no suggestions.
I'm at my wits end trying to figure out what is different about when we travel, and what I can do differently at home to help prevent the swelling. I would think it might be the water, but this happens consistently no matter where we go.
Does anyone have any ideas? Help!