Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Can Going Off Gluten Be Dangerous?
0

8 posts in this topic

So I have been off gluten for about a month.  I feel better than ever.  I went off gluten before thinking of being tested for Celiac or sensitivities.  I slowly became convinced that all my health problems were related to gluten.

 

So I have a friend who is telling me OVER and OVER and OVER. That going off gluten without a diagnosis can be very dangerous.  Her doctor said it can make a person very sick once they eat gluten again even if they have no allergies.  My nutritionist said, "IF you feel better not eating, it don't eat it. IF you feel sick when you eat it, don't' eat it."  Apparently my friend read a study that showed that people who were not gluten sensitive or celiac became very ill with celiac-type symptoms after going off gluten and then reintroducing this to their diet.  

 

Has anyone heard of this?  Have you read these studies?  Have you heard that gluten can make you sick if you illuminate it and then eat it?

 

 

 

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Going off gluten is not dangerous.

 

A gluten-free diet is not missing anything you need, although getting enough fiber can be a challenge. Most of the fiber in a typical diet comes from grains such as wheat and oats.

 

Cases such as your friend describes are rare, but do happen. They happen because sometimes your body develops an ability to cope with something. If you remove that for a while, then the latent sensitivity may become overt. Gluten sensitivity is NOT an allergy, although some people (including some with celiac disease) have an allergy to wheat.

0

Share this post


Link to post
Share on other sites

Ok so I know this conversation from below is LONG.  But maybe some one can give my some prspective that what "apple" and "orange" are saying.  Who is correct?  


  •  
    Anita Rocchio Williams Never been through the testing for Celiacs. But 100% certain I have an intolerance. I ate a bite of Jax's food at a restaurant forgetting it had flour is a thinkener for the sauce. Pretty sure that caused me to have the abdominal pain yesterday and some of today.
  •  
     
    Hermes Sounds like the symptoms. My sister in law has it, so I know a little about it. It does get difficult when trying to figure out good recipies for the bready stuff, but it's mostly consuming a diet of fresh foods and produce.  It definitely helps you eat cleaner! I've thought about trying it for that reason alone! Lol.
  •  
     
    Apples I use a bunch of applesauce for gluten-free baking.
  •  
     
    Oranges You might want to think about getting tested, Anita. See what your medical nutritionist says. I've heard that anyone who cuts gluten for a while and reintroduces it can have symptoms like those you describe.
  •  
     
    Apples IMO, the testing is likely unnecessary at this point. It's just an extra expense and the outcome is the same - you can't have gluten either way. Plus, getting tested means that you'll be miserable for a few weeks because you must have lots of gluten in your system for them to test for a reaction.
  •  
     
    Oranges Anita, as you know, my mother-in-law just went through testing and was diagnosed with Celiac's. She had a very different experience and very different advice than Apples. Which is probably why you should leave it to an expert to determine what you need to do. 
  •  
     
    Apples I'm curious what the difference was, Orangesl. If you have Celiac's, you cannot have wheat or gluten. There is no cure. If you have a wheat allergy or a gluten intolerance, you cannot have wheat or gluten. There is no cure. If you have any of these things and you do eat the offending food, you will be sick.
  •  
     
    Oranges I'm quite familiar with Celiac disease as my mother-in-law was just diagnosed with it and I have several friends who have it as well. Without getting into too many details, the doctors indicated that she should continue to have a small amount of gluten up until her diagnosis (not lots), and that eliminating gluten completely from one's diet can cause an adverse reaction upon reintroduction (in anyone, not just those with Celiac's or an intolerance). His advice was not to eliminate it unless and until it became necessary. In my limited research, I've read a number of articles indicating the same and providing specifics as to why this is the case. But again, I'm not an expert. 
  •  
     
    Anita Rocchio Williams It is hard to decide what is best. When you go to the Celiac website and forum there are a lot of reasons to get tested. But if you do not have celiac and are just intolerant the only way to know is to go off it, see if you symptoms improve, then take it. If you do have a reaction, you are sensitive. At least that is what the forums say. There is a medically recognized difference between gluten sensitive/intolerant and celiacs disease. One is more like an allergy the other is an auto immune disease. The nutritionist as already told me to stay away from gluten. Since I have started down this path and feel better I can continue this way for a few month and let me body heal. Then I might introduce gluten by eating just a little. One cracker/ day for week is likely to get positive test results without having a huge reaction (if you have allowed your gut to heal). However, per advice of a Medical Professional, I am not having gluten. I have known for at least 10 years that I am sensitive. But have never cared enough to stop eating things I like. The only advantage of getting a true medical diagnosis is so that the hospitals, and jails legally have to prepare gluten free food for you. And if you are ever in a stadium/concert or venue that does not allow food you are allowed to bring in your own gluten-free food (with Dr. note).
  •  
     
    Anita Rocchio Williams I know a lot of people have very strong opinions of Gluten free. and Celiacs. I have gotten my information from Celiac.com (the website that webMD refers you to) and two different nutritionists.
  •  
     
    Oranges I just hate to see anyone going gluten free if they don't have to!  It's tough! And, if you're diagnosed with Celiac's, it's even tougher! Let me know if you need any resources... my MIL (and all of us, really) are learning quickly!
  •  
     
    Anita Rocchio Williams Oranges, I guess I am wondering why someone would ever go off gluten if they didn't need to? If there weren't already sure they were at least sensitive. I have seriously had at least 4 doctors tell me to stop eating gluten and/or get tested. Had I not already known I am at least sensitive I would never give it up. It is inconvenient and not very fun. However, when you go off gluten for a few weeks, headaches are gone, back no longer hurts, brusies heal, RLS is gone, you sleep better, you acne clears up, you anxiety lessons, and other great things happen. It is motivation to continue with the lame ass food restrictions. All of the above are symptoms.
  •  
     
    Apples But even a small amount of gluten for those with an intolerance, allergy, or Celiac's (diagnosed or not) can be extremely painful for weeks and it can cause symptoms for months. Anita said she had a bite of food with flour in it. And that was enough for her to feel sick. I think that if you know it makes you sick, then why have it at all? I haven't done limited research. I've done extensive research. My little one cannot have wheat or gluten. I don't know if she has Celiac's. It doesn't matter - the result is the same. If she has gluten, she's sick for days or weeks regardless of the diagnosis. I work for a company that trains food services professionals (cafeterias, restaurants, schools) on serving people with special dietary needs. Celiac.com is a great resource and what your nutritionist is telling you to do is very typical. Identifying the culprit making you sick is the hardest part. No one is going to ask you for a note that says you cannot have gluten - it's like asking someone to prove that they cannot walk so they need a wheelchair.
  •  
     
    Anita Rocchio Williams Oh, and yes I went off Gluten before realizing the the smart path was to get tested first. But after being off it for a week (and feeling better) there was no real advantage of getting sick again for a positive test. When I can get tested in a few month when I am more up to feeling horrible for a diagnosis.

 

OK so I would love it if someone could give me insight as to what "Oranges" is talking about.  

Edited by arocchio
0

Share this post


Link to post
Share on other sites

"Gluten sensitivity is NOT an allergy, although some people (including some with celiac disease) have an allergy to wheat."

  

Thanks for the clarification.  I think I continually use misuse the term "allergy"  That also explains why all the Allergists tell me I am not allergic to anything even thought I seem to always have allergies.

0

Share this post


Link to post
Share on other sites

Nope, not at all.

 

If, all of a sudden, you got tired from eating too many oranges and decided to stop eating them, would that be dangerous? Nope.

 

Allergies can happen at any time, of course. There is no predicting those. However if you feel better off of it, then by all means, don't eat it.

0

Share this post


Link to post
Share on other sites




If you stop eating gluten for a while then start again and it makes you sick, chances are you are you are either gluten intolerant or an undiagnosed celiac. Having celiac type symptoms from gluten is exactly what gluten intolerance is. Your friend either made up the study, misunderstood the study, or the study was done by complete morons.

0

Share this post


Link to post
Share on other sites

For many people with gluten sensitivity, their reaction to it does indeed get worse the longer they are off gluten.  They will react to smaller amounts and their symptoms will be more severe.  However, if they do not have a sensitivity, they will not notice a change at all.  It only happens if your body is sensitive in the first place.  Giving up gluten will not make you suddenly develop an intolerance.  If this happens to you, you already had an intolerance.  You already should not be eating it.   

 

You do not need gluten in your diet to be healthy.  Many will argue that you would be healthier if you eliminated all grains . . . not only wheat.  

0

Share this post


Link to post
Share on other sites

I only eat cauliflower when it's in season. Same as asparagus. So for many months of the year, I don't have even a trace of these foods. When they're back in season, I can eat them no problem.

My husband has gone months eating gluten free, then eats it again if he's out with friends or craves fast food. He does this no problem.

But.. I can't touch gluten. He can't touch cantaloupe. We each have our own food sensitivities. Not eating a particular food doesn't create intolerances; but elimination diets can and do make underlying sensitivities more obvious.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,656
    • Total Posts
      918,487
  • Topics

  • Posts

    • Might have Celiac.. so many symptoms and pain!
      I have a requisition for blood tests, but there is no way that I am going back on gluten. The cramps and pain is horrendous. I've only been off for a couple weeks, and I'm also doing the IgG tests, not really sure what those will show.  I have suffered with hypoglycemia in the past, and when I wasn't overweight and always dieting, I guess celiac maybe didn't rear it's ugly head... until after I went through something difficult in my life and started eating more carbs and then gained weight. I was never officially diagnosed with diabetes, but have been in the "pre-diabetes' range for a while. And I read that Celiac is either caused by PCOS or PCOS causes Celiac... not sure...  
    • Might have Celiac.. so many symptoms and pain!
      Welcome Jane! If you seriously suspect celiac disease, you should get tested (blood test), but that means you must be eating gluten.  Even being gluten-free for as little as a few weeks can impact your tests results.  Here's more information: http://www.cureceliacdisease.org/screening/ In the meantime, it sounds like your blood sugar is wonky.  How often do you check your blood sugar?  Do you have a meter?   This is a good site that you might find helpful with your diabetes: http://www.phlaunt.com/diabetes/ I hope you feel better soon! 
    • Might have Celiac.. so many symptoms and pain!
      Hello. This is my first post. I am at my wits end at this point. I've been experiencing some pretty crazy symptoms and although I don't have a diagnosis yet, I suspect I may have Celiac. A few months ago I threw up after eating some pasta, I felt like I was going to pass out actually and it felt like I was going to die! I thought it was food poisoning..  Then I had some VERY BAD fatigue... I was driving once and I literally wanted to get out of the car and lie down on the pavement! It happened again about 3 weeks ago, I was in the store and fatigue hit me like a ton of bricks.. I had to leave!  I have been trying to lose weight so I stopped eating all wheat, bread, etc.... well what happened truly scared me. I take Metformin for PCOS/pre-diabetes by the way. Anyway, I woke up had something to eat and an hour later felt like I was going to collapse. My heart was beating so fast, thought I was having a heart attack! I went to the doctor and I nearly passed out again in the office, they gave me some sugar to bring up my blood sugar and then I felt okay. My neck feels swollen, and like there is something in my throat...  So I've been off gluten/wheat/bread/pasta..etc. for about 2 weeks. At first I felt kind of okay, hmmm... but now I am entering week 3 and I feel like I'm dying! The hunger is still bad... although not as horrendous as before stopping gluten... but the hunger just doesn't want to calm down. I eat and less than an hour later I'm hungry again.  Can someone provide some advice, thoughts, anything at this point that can help me figure out what to do next... I'm losing my mind and I feel so depressed    
    • Milling vs buying gluten-free flour
      Okay then you have a clean grain mill & can go to town. I have only done rice in mine because I found that either my husband or myself don't really car for the consistency or flavors imparted by things like coconut flour, nut flours, pea or bean flours. Mostly the hubs is the big stick in the wheel. I like nut flours but he doesn't. For rice flours, I would say it's cheaper to mill them but it's also messier & more time consuming. I understand my NutriMill is far less messy than most millers (according to reviews) but it's still messy. In fact, I take it outside when I'm going to use it & let the mess be out there until all the grinding is done. So for me, it's a trade off & I would say about even steven.
    • Food tolerance issues post-diagnosis
      I have an omelette every  morning and mix up the filling, different stir fried veggies, spinach, avocado etc.  Super nutritious and can keep me going all day if need be.   I went awhile after gluten-free before eating cereal and now I eat it with coconut milk, Tesco's own brand is nice enough. Maybe an option if you want to experiment with avoiding dairy for awhile whilst you heal? Best of luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,747
    • Most Online
      1,763

    Newest Member
    Jen5632
    Joined