Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Can Going Off Gluten Be Dangerous?
0

8 posts in this topic

So I have been off gluten for about a month.  I feel better than ever.  I went off gluten before thinking of being tested for Celiac or sensitivities.  I slowly became convinced that all my health problems were related to gluten.

 

So I have a friend who is telling me OVER and OVER and OVER. That going off gluten without a diagnosis can be very dangerous.  Her doctor said it can make a person very sick once they eat gluten again even if they have no allergies.  My nutritionist said, "IF you feel better not eating, it don't eat it. IF you feel sick when you eat it, don't' eat it."  Apparently my friend read a study that showed that people who were not gluten sensitive or celiac became very ill with celiac-type symptoms after going off gluten and then reintroducing this to their diet.  

 

Has anyone heard of this?  Have you read these studies?  Have you heard that gluten can make you sick if you illuminate it and then eat it?

 

 

 

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Going off gluten is not dangerous.

 

A gluten-free diet is not missing anything you need, although getting enough fiber can be a challenge. Most of the fiber in a typical diet comes from grains such as wheat and oats.

 

Cases such as your friend describes are rare, but do happen. They happen because sometimes your body develops an ability to cope with something. If you remove that for a while, then the latent sensitivity may become overt. Gluten sensitivity is NOT an allergy, although some people (including some with celiac disease) have an allergy to wheat.

0

Share this post


Link to post
Share on other sites

Ok so I know this conversation from below is LONG.  But maybe some one can give my some prspective that what "apple" and "orange" are saying.  Who is correct?  


  •  
    Anita Rocchio Williams Never been through the testing for Celiacs. But 100% certain I have an intolerance. I ate a bite of Jax's food at a restaurant forgetting it had flour is a thinkener for the sauce. Pretty sure that caused me to have the abdominal pain yesterday and some of today.
  •  
     
    Hermes Sounds like the symptoms. My sister in law has it, so I know a little about it. It does get difficult when trying to figure out good recipies for the bready stuff, but it's mostly consuming a diet of fresh foods and produce.  It definitely helps you eat cleaner! I've thought about trying it for that reason alone! Lol.
  •  
     
    Apples I use a bunch of applesauce for gluten-free baking.
  •  
     
    Oranges You might want to think about getting tested, Anita. See what your medical nutritionist says. I've heard that anyone who cuts gluten for a while and reintroduces it can have symptoms like those you describe.
  •  
     
    Apples IMO, the testing is likely unnecessary at this point. It's just an extra expense and the outcome is the same - you can't have gluten either way. Plus, getting tested means that you'll be miserable for a few weeks because you must have lots of gluten in your system for them to test for a reaction.
  •  
     
    Oranges Anita, as you know, my mother-in-law just went through testing and was diagnosed with Celiac's. She had a very different experience and very different advice than Apples. Which is probably why you should leave it to an expert to determine what you need to do. 
  •  
     
    Apples I'm curious what the difference was, Orangesl. If you have Celiac's, you cannot have wheat or gluten. There is no cure. If you have a wheat allergy or a gluten intolerance, you cannot have wheat or gluten. There is no cure. If you have any of these things and you do eat the offending food, you will be sick.
  •  
     
    Oranges I'm quite familiar with Celiac disease as my mother-in-law was just diagnosed with it and I have several friends who have it as well. Without getting into too many details, the doctors indicated that she should continue to have a small amount of gluten up until her diagnosis (not lots), and that eliminating gluten completely from one's diet can cause an adverse reaction upon reintroduction (in anyone, not just those with Celiac's or an intolerance). His advice was not to eliminate it unless and until it became necessary. In my limited research, I've read a number of articles indicating the same and providing specifics as to why this is the case. But again, I'm not an expert. 
  •  
     
    Anita Rocchio Williams It is hard to decide what is best. When you go to the Celiac website and forum there are a lot of reasons to get tested. But if you do not have celiac and are just intolerant the only way to know is to go off it, see if you symptoms improve, then take it. If you do have a reaction, you are sensitive. At least that is what the forums say. There is a medically recognized difference between gluten sensitive/intolerant and celiacs disease. One is more like an allergy the other is an auto immune disease. The nutritionist as already told me to stay away from gluten. Since I have started down this path and feel better I can continue this way for a few month and let me body heal. Then I might introduce gluten by eating just a little. One cracker/ day for week is likely to get positive test results without having a huge reaction (if you have allowed your gut to heal). However, per advice of a Medical Professional, I am not having gluten. I have known for at least 10 years that I am sensitive. But have never cared enough to stop eating things I like. The only advantage of getting a true medical diagnosis is so that the hospitals, and jails legally have to prepare gluten free food for you. And if you are ever in a stadium/concert or venue that does not allow food you are allowed to bring in your own gluten-free food (with Dr. note).
  •  
     
    Anita Rocchio Williams I know a lot of people have very strong opinions of Gluten free. and Celiacs. I have gotten my information from Celiac.com (the website that webMD refers you to) and two different nutritionists.
  •  
     
    Oranges I just hate to see anyone going gluten free if they don't have to!  It's tough! And, if you're diagnosed with Celiac's, it's even tougher! Let me know if you need any resources... my MIL (and all of us, really) are learning quickly!
  •  
     
    Anita Rocchio Williams Oranges, I guess I am wondering why someone would ever go off gluten if they didn't need to? If there weren't already sure they were at least sensitive. I have seriously had at least 4 doctors tell me to stop eating gluten and/or get tested. Had I not already known I am at least sensitive I would never give it up. It is inconvenient and not very fun. However, when you go off gluten for a few weeks, headaches are gone, back no longer hurts, brusies heal, RLS is gone, you sleep better, you acne clears up, you anxiety lessons, and other great things happen. It is motivation to continue with the lame ass food restrictions. All of the above are symptoms.
  •  
     
    Apples But even a small amount of gluten for those with an intolerance, allergy, or Celiac's (diagnosed or not) can be extremely painful for weeks and it can cause symptoms for months. Anita said she had a bite of food with flour in it. And that was enough for her to feel sick. I think that if you know it makes you sick, then why have it at all? I haven't done limited research. I've done extensive research. My little one cannot have wheat or gluten. I don't know if she has Celiac's. It doesn't matter - the result is the same. If she has gluten, she's sick for days or weeks regardless of the diagnosis. I work for a company that trains food services professionals (cafeterias, restaurants, schools) on serving people with special dietary needs. Celiac.com is a great resource and what your nutritionist is telling you to do is very typical. Identifying the culprit making you sick is the hardest part. No one is going to ask you for a note that says you cannot have gluten - it's like asking someone to prove that they cannot walk so they need a wheelchair.
  •  
     
    Anita Rocchio Williams Oh, and yes I went off Gluten before realizing the the smart path was to get tested first. But after being off it for a week (and feeling better) there was no real advantage of getting sick again for a positive test. When I can get tested in a few month when I am more up to feeling horrible for a diagnosis.

 

OK so I would love it if someone could give me insight as to what "Oranges" is talking about.  

Edited by arocchio
0

Share this post


Link to post
Share on other sites

"Gluten sensitivity is NOT an allergy, although some people (including some with celiac disease) have an allergy to wheat."

  

Thanks for the clarification.  I think I continually use misuse the term "allergy"  That also explains why all the Allergists tell me I am not allergic to anything even thought I seem to always have allergies.

0

Share this post


Link to post
Share on other sites

Nope, not at all.

 

If, all of a sudden, you got tired from eating too many oranges and decided to stop eating them, would that be dangerous? Nope.

 

Allergies can happen at any time, of course. There is no predicting those. However if you feel better off of it, then by all means, don't eat it.

0

Share this post


Link to post
Share on other sites




If you stop eating gluten for a while then start again and it makes you sick, chances are you are you are either gluten intolerant or an undiagnosed celiac. Having celiac type symptoms from gluten is exactly what gluten intolerance is. Your friend either made up the study, misunderstood the study, or the study was done by complete morons.

0

Share this post


Link to post
Share on other sites

For many people with gluten sensitivity, their reaction to it does indeed get worse the longer they are off gluten.  They will react to smaller amounts and their symptoms will be more severe.  However, if they do not have a sensitivity, they will not notice a change at all.  It only happens if your body is sensitive in the first place.  Giving up gluten will not make you suddenly develop an intolerance.  If this happens to you, you already had an intolerance.  You already should not be eating it.   

 

You do not need gluten in your diet to be healthy.  Many will argue that you would be healthier if you eliminated all grains . . . not only wheat.  

0

Share this post


Link to post
Share on other sites

I only eat cauliflower when it's in season. Same as asparagus. So for many months of the year, I don't have even a trace of these foods. When they're back in season, I can eat them no problem.

My husband has gone months eating gluten free, then eats it again if he's out with friends or craves fast food. He does this no problem.

But.. I can't touch gluten. He can't touch cantaloupe. We each have our own food sensitivities. Not eating a particular food doesn't create intolerances; but elimination diets can and do make underlying sensitivities more obvious.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,310
  • Topics

  • Posts

    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,120
    • Most Online
      1,763

    Newest Member
    HeatherVanessa
    Joined