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Thinning Hair
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I am a new member to the Gluten-free lifestyle. My test were inconclusive because I did them a month after this lifestyle change since August 2012. I have no doubts in my mind though that I have Celiac because of some mistakes and horrible reactions in the beginning of this journey. Currently, I am dairy, gluten, corn and egg free which has been difficult but rewarding. I have noticed that most of my symptoms have left, I am no longer fatigued, lethargic, depressed and bloated (which is amazing!). However, over the last three months or so my hair has been thinning drastically and my scalp has been incredibly itchy. I have always had more than enough hair (donated my long locks twice) so having my hair fall out is a huge issue for me. I am seeing a new doctor NEXT MONTH, which is hard when you've been waiting for months for some help. So I am sending this out to you guys... have you experienced this before? What am I doing wrong? Any help you can provide is appreciated.

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Celiac kept my hair thin but once I went gluten-free I started to get new growth; my regrowth is about 7 inches long now.

 

After I was gluten-free for three months though, I had an autoimmune attack of some sort where my joint became very sore, I was more fatigued, and my hair started falling out like crazy.  It was getting to the point where people were noticing. I am pretty sure that it was caused by another auto immune disorder. I had recently started treatment for Hashiloto's so it could have been my body adjusting to the hormone, or it was from another AI disease (I suspect I have a connective tissue problem like Lupus. It lasted about 3 months.

 

My guess would be that another health problem is causing your hair loss (unfortunately) or you've been glutening yourself pretty badly and hairloss is the result.  Is it possible that you have Hashimoto's or another AI disease?

 

Low nutrients can cause hair loss too. I think low B's can contribute but I don't know much about this area.

 

Someone on this forum told me about Biotin which is a supplement to encourage healthy hair growth.  It did nothing to stop my hair loss (as far as I can tell) but it is growing in better now than it has in at least 5 years.

 

I hope your hair loss stops and you find answers. I know it's hard to deal with, especially as women when thinning hair and baldness is often harshly judged.  (hugs)

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I believe the most common causes of thinning hair is a sign of either genetics, nutritional deficiencies, or stress. Since you suddenly are depriving your body of all dairy, gluten, and eggs then maybe you are nutrient deficient? Hair is the first thing to go when you are lacking vital nutrients. My suggestion is to take a vitamin for your hair. I use one called nzuri (amazon it) and after about 1-2 months my hair feels so much softer and healthier. If I stop taking it my hair gets very dry and hard, and just springs off my head. 

 

Good luck, I'm happy to hear your other symptoms have cleared up, but be careful when restricting things from your diet.

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I believe the most common causes of thinning hair is a sign of either genetics, nutritional deficiencies, or stress....

 

...Good luck, I'm happy to hear your other symptoms have cleared up, but be careful when restricting things from your diet.

I doubt she has restricted too many items from her diet - she only cut four items and of those (milk, gluten, and corn) they are are unessential to our diet or not easily digestible. Only egg (as far as I know) contributes to our health.

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I suggest you take Biotin vitamin supplement.  Most Americans are laking Biotin because it's main food source is animal liver.  Wether you avoid it for taste or the warning that animal liver is too toxic from environmental pollution.  It is beneficial for hair and fingernail growth and metabolism.

 

A good daily vitamin supplement may be a good idea.  Talk about this with your doctor.  Tests should be done to see any vitamin defiencies you might have.

 

Hair grows in cycles an active growing stage, rest stage, and falling out.  Stress and illness can make hair fall out or switch to the next phase of the cycle. 

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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