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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Palmoplanter Pustular Psoriasis?
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3 posts in this topic

hi everyone,
 
i have had a rash on the palms of my hands for at least 15 years - doctors just threw steroid creams at it. so i googled rash on palms and this is what it came up with.
small yellow blisters that dried up leaving the skin on top all thick and dry that eventually flaked off. for years now ive picked at it constantly, even tried filing it down with an emery board to keep it smooth.it looks awfull and my palms are always red and sore.
it has cleared up somewhat on the gluten and dairy free diet (at one point it had virtually disappeared- thought it was the dairy) but its still lingering.  
so as i said i already knew what it was but just googled it again and this time its said its linked to auto immune diseases like celiac!!!!. maybe i googled it before my doctor went down the whole celiac route coz i dont remember the connection or maybe i was just didnt  put 2 and 2 together!!! 
 
if thats right im soooo pissed off. if all this information is available on the net then why dont doctors know about it!!!
so thats palmoplantor pustular psoriasis, and scleritis - something the doctors didnt explain to me what it was !!! both auto immune diseases but all my results came back negative so havent even been diagnosed with celiac.

 

im just sooo mad at the moment. if this could have been sorted out 15 years ago!!!!

has anyone else had it / got it. is it connected to celiac. do i need to go back to docs to explain the connection!! ive been off gluten for 8 weeks now- havent tried a gluten trial yet so dont know how i,ll react if i have to go back on it.  im just so mad at the moment

. this is me right now lol  :angry:

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I've got it. It's on my feet too. When I went gluten-free it started to clear up. Now I get it back if I eat corn or foods high in salicylates (almonds, most fruits, all berries, and some vegetables). If I am really careful with my diet it goes away completely. Right now my hands are completely healed but I still have some on my feet from the last time I got glutened/corned.

 

It was when my PPP got so bad that it hurt to play my guitar and it hurt to walk that I looked it up and discovered that it was likely celiac that was causing it. My Mom had plaque psoriasis that cleared up completely when she was dignosed with celiac and went gluten-free. This was back in the eighties and doctors knew even less than they do now. They all thought it was just a coincidence. When I saw on the internet that they were indeed connected, I went gluten-free. (I never got tested because I have no insurance but the results coupled with the genetic factor prove to me that I do have celiac.)

 

You may have further intolerances too, or you may just need to give it more time. I noticed an improvement within days but it was months before it completely cleared up. If you decide to get tested, print out some of the articles from reputable sources (like the Mayo clinic) and show your doctor. Or you could just do as I did - stick to the gluten-free diet, keep a food diary and pay attention to your psoriasis. If you get new pustules, go back and see what you ate that was different. For me, it takes eight to twelve hours for new pustules to show up. That makes it easy - it's always something I ate the day before.

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hi bartfull,

 

thanks for answering. im just trying to sort out some other intolerences - nightshades . got a rash on face also which seems to flare up with peppers and potato,s seem to make my joint pains worse. struggling at moment coz potato is in all gluten free products. i did rely on the gluten-free pittas when i was desperate for bread. and ive never been a lover of fruit- it makes my mouth feel odd.

really hope corn isnt a problem i eat it all the time.

i,ll look up the salicylates , and i never thought of checking the blisters and whether they were related to foods id eaten.

thanks..

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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