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Palmoplanter Pustular Psoriasis?
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hi everyone,
 
i have had a rash on the palms of my hands for at least 15 years - doctors just threw steroid creams at it. so i googled rash on palms and this is what it came up with.
small yellow blisters that dried up leaving the skin on top all thick and dry that eventually flaked off. for years now ive picked at it constantly, even tried filing it down with an emery board to keep it smooth.it looks awfull and my palms are always red and sore.
it has cleared up somewhat on the gluten and dairy free diet (at one point it had virtually disappeared- thought it was the dairy) but its still lingering.  
so as i said i already knew what it was but just googled it again and this time its said its linked to auto immune diseases like celiac!!!!. maybe i googled it before my doctor went down the whole celiac route coz i dont remember the connection or maybe i was just didnt  put 2 and 2 together!!! 
 
if thats right im soooo pissed off. if all this information is available on the net then why dont doctors know about it!!!
so thats palmoplantor pustular psoriasis, and scleritis - something the doctors didnt explain to me what it was !!! both auto immune diseases but all my results came back negative so havent even been diagnosed with celiac.

 

im just sooo mad at the moment. if this could have been sorted out 15 years ago!!!!

has anyone else had it / got it. is it connected to celiac. do i need to go back to docs to explain the connection!! ive been off gluten for 8 weeks now- havent tried a gluten trial yet so dont know how i,ll react if i have to go back on it.  im just so mad at the moment

. this is me right now lol  :angry:

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I've got it. It's on my feet too. When I went gluten-free it started to clear up. Now I get it back if I eat corn or foods high in salicylates (almonds, most fruits, all berries, and some vegetables). If I am really careful with my diet it goes away completely. Right now my hands are completely healed but I still have some on my feet from the last time I got glutened/corned.

 

It was when my PPP got so bad that it hurt to play my guitar and it hurt to walk that I looked it up and discovered that it was likely celiac that was causing it. My Mom had plaque psoriasis that cleared up completely when she was dignosed with celiac and went gluten-free. This was back in the eighties and doctors knew even less than they do now. They all thought it was just a coincidence. When I saw on the internet that they were indeed connected, I went gluten-free. (I never got tested because I have no insurance but the results coupled with the genetic factor prove to me that I do have celiac.)

 

You may have further intolerances too, or you may just need to give it more time. I noticed an improvement within days but it was months before it completely cleared up. If you decide to get tested, print out some of the articles from reputable sources (like the Mayo clinic) and show your doctor. Or you could just do as I did - stick to the gluten-free diet, keep a food diary and pay attention to your psoriasis. If you get new pustules, go back and see what you ate that was different. For me, it takes eight to twelve hours for new pustules to show up. That makes it easy - it's always something I ate the day before.

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hi bartfull,

 

thanks for answering. im just trying to sort out some other intolerences - nightshades . got a rash on face also which seems to flare up with peppers and potato,s seem to make my joint pains worse. struggling at moment coz potato is in all gluten free products. i did rely on the gluten-free pittas when i was desperate for bread. and ive never been a lover of fruit- it makes my mouth feel odd.

really hope corn isnt a problem i eat it all the time.

i,ll look up the salicylates , and i never thought of checking the blisters and whether they were related to foods id eaten.

thanks..

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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