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Rash That Won't Go Away

rash dermatitis herpetiformis

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4 replies to this topic

#1 jj442434

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Posted 25 March 2013 - 03:53 PM

I was diagnosed with Celiac about 3 months ago. I never had any symptoms, and was only diagnosed because a family member was. As soon as I found out I went gluten free.

 

Two Saturdays ago (9 days) I had a little to drink, and not thinking about it, ate two burritos on flour tortillas. The next morning, I had a large, red, raised rash on my left inner thigh that was very itchy. After that, small itchy flesh colored bumps have appeared on my left forearm, my lower back, and my genitals. New bumps are starting to appear on my right inner thigh. I am not really sure if it is getting better, but if it is it is taking a long time.

 

I read up on it, but I'm not sure if this is dermatitis herpetiformis. I am at college away from home, so I can't really go to a doctor, and I know the on campus clinic will not be helpful.

 

Anyone else experience similar symptoms? What can I do to speed the healing process up? How long will this rash be here?


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#2 aircare

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Posted 25 March 2013 - 06:41 PM

JJ, It sound like DH, if you can get Clobetasol Propionate cream works good but you need a doctor to get it.
Any moisturizing cream will help a little. I sometimes use a tanning bed. I think the uv rays make it better.
Also Aveeno for baby's eczema therapy cream from Walmart. I only use baby soap to wash with.
Hope it helps. Aircare
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#3 learning2cope

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Posted 27 March 2013 - 06:45 PM

I've not been diagnosed yet with Celiac but I have DH (which we always thought was palmplantar pustular psoriasis). I will be getting a skin biopsy and bloodwork to confirm soon. I have to use an organic pure castille soap (I use Dr. Bronner's) which tends not to irritate my skin into blistering more. I also have to use an SLS-free shampoo. I use Aubrey Organics Green Tea Clarifying Shampoo as I have oily hair. I tend not to moisturize my hands unless they feel overly dry. Then I only use Dr. Bronner's hand lotion. It's not a thick lotion, but it works well and doesn't irritate my hands and feet. I do occasionally use Triamcinolone .1% ointment on my hands and feet though I hate getting it on my hands because I hate having emolients on my hands. I only use it once a month on my feet because when I was using it the prescribed number of times per day I kept getting very deep extremely painful splits/cracks in the skin on my feet that bled everywhere. Since stopping the steroids on my feet I rarely have that problem anymore. There really isn't much to do other than go gluten-free completely. But I have yet to do that since if I did go gluten-free prior to the bloodwork and biopsy they would show up as negative results. I need positive results.

 

Good luck! I hope you can get this under control. I know how itchy and annoying it can be.


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#4 sisterlynr

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Posted 28 March 2013 - 02:22 PM

JJ, It sound like DH, if you can get Clobetasol Propionate cream works good but you need a doctor to get it.
Any moisturizing cream will help a little. I sometimes use a tanning bed. I think the uv rays make it better.
Also Aveeno for baby's eczema therapy cream from Walmart. I only use baby soap to wash with.
Hope it helps. Aircare

 

 

Aveeno contains Oats . . . I couldn't use that product.  I read ingredients not only on food to be safe.


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Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995  /   Fatty liver biopsy 2001  ~ Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 Chemotherapy in 2008 ~ Breakout of rash from scalp to sole of feet. February 28, 2012 until present
Iron deficiency anemia - July of 2012  /  
Osteoarthritis. September 2012  2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012   Started Dapsone and Gluten-Free diet on October 20, 2012 ~ Diag DH 2012.  Not taking Dapsone due to sulfa reaction.  Biopsy in July 2013 indicates Lupus but my doctors do not agree on cause of rash for various reasons.  

 

~Lyn~


#5 jhol

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Posted 28 March 2013 - 03:05 PM

I've not been diagnosed yet with Celiac but I have DH (which we always thought was palmplantar pustular psoriasis). I will be getting a skin biopsy and bloodwork to confirm soon. I have to use an organic pure castille soap (I use Dr. Bronner's) which tends not to irritate my skin into blistering more. I also have to use an SLS-free shampoo. I use Aubrey Organics Green Tea Clarifying Shampoo as I have oily hair. I tend not to moisturize my hands unless they feel overly dry. Then I only use Dr. Bronner's hand lotion. It's not a thick lotion, but it works well and doesn't irritate my hands and feet. I do occasionally use Triamcinolone .1% ointment on my hands and feet though I hate getting it on my hands because I hate having emolients on my hands. I only use it once a month on my feet because when I was using it the prescribed number of times per day I kept getting very deep extremely painful splits/cracks in the skin on my feet that bled everywhere. Since stopping the steroids on my feet I rarely have that problem anymore. There really isn't much to do other than go gluten-free completely. But I have yet to do that since if I did go gluten-free prior to the bloodwork and biopsy they would show up as negative results. I need positive results.

 

Good luck! I hope you can get this under control. I know how itchy and annoying it can be.

 

this is for learning2cope,

.

im just interested in your comment - i have dh -we thought it was palmoplanter pustular psoriasis .from lookin on the internet ive decided thats what ive got on my palms- its not as bad now ive gone gluten free but it is still there. can you describe your symptoms for me. mine was very mild in relation to the pics ive seen.have you just got it on your hands and feet? it would be interesting to know if you get a definite diagnosis with d.h. and not p.p.p.could you let me know how you get on thanks

it would be a great help :)


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