Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

   arrowJoin Celiac.com's New Online Support Group


 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Dizziness/brain Fog...questions?


  • Please log in to reply
3 replies to this topic

#1 jamiecasabellameeks

jamiecasabellameeks

    Community Member

  • Advanced Members
  • PipPipPip
  • 40 posts

Posted 25 March 2013 - 04:56 PM

Okay...I am still awaiting biopsy results, but I have been gluten free for 7 days.  Though I can say that I have noticed some change, I still get dizzy at times throughout the day and experience complete brain fog. Should this be diminishing after no gluten??  Will I feel like this for a while? Why do I feel like this if I am not eating ANY gluten?  Could it be something else in addition to gluten (like other food allergy)?  Could I be experiencing cross-contamination.

 

I told my husband I was just ready to give up...I'm seriously not; it's just all so frustrating.  I don't have my f/u appointment for 3 weeks.  I'm wondering if I should have other tests run in the mean time.  

 

Has anyone else had to miss work because of similar symptoms? I just don't know how to best describe this to "non-celiacs"...They just don't seem to understand!  

 

Hoping some more experienced readers will be able to help/give advice! THANK YOU!


  • 0
Jamie :wacko:

Celiac.com Sponsor:

#2 GottaSki

GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,386 posts

Posted 25 March 2013 - 05:04 PM

Welcome J!

 

Seven days isn't long in the grand scheme of removing gluten.  It is possible you are getting some from cross-contamination - it is possible what you are experiencing is gluten withdrawal symptoms.  

 

IMO it is way too early to look to other food intolerances - unless you can pinpoint a reaction to a certain food.  A detailed food/symptom log is your best tool if you are not improving with just removing gluten.  And I do not mean to sound dismissive, but there is no way we got all sources of gluten out of our house in the first week.  Make sure you have read the Newbie 101 thread and keep asking any questions you may have.

 

As for missing work...maybe I'm not the best person to ask -- I had to sell a thriving property mgmt business ten years ago when docs could not figure out what the hell was wrong with me -- and then I got really sick :(  Many miss work...hopefully you will be feeling much better very soon!

 

Hang in there :)


  • 0
-Lisa


Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAS

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile :)


ALWAYS independently research health related information found on internet forums/blogs - using Peer Reviewed Publications...

along with input from the best medical professionals you can find.


#3 Lisa

Lisa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,799 posts

Posted 25 March 2013 - 05:14 PM

Lisa  (^that one)  has offered some great advice you should consider. 

 

But I must say...I got dizzy just  reading your post :rolleyes:


  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#4 Takala

Takala

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,555 posts

Posted 25 March 2013 - 05:31 PM

Oh, believe me, we get this.  It's only been a week, and it takes time for your immune system to quit attacking your own body, including your brain, over this.  You may want to try to stick to eating as much unprocessed food as possible, in other words, food that looks like how it was harvested, instead of coming out of a box.  Make sure anyone kissing you has a clean mouth, re the cross contamination.  You can experiment with ditching dairy and soy flour for a few days to see if that makes any difference, this may be a temporary dairy problem that will resolve over time, (celiac damaged gut has trouble processing lactose)  and some people just can't do soy flours.  You will feel better after some more time has passed, and most of the brain- fuzz people are very highly motivated to not experience this again. 


  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: