Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Got Glutened, Quasi-On Purpose. Bad Cathy...
0

11 posts in this topic

Please bump if this isn't the right forum/thread.

 

I have been gluten-free for more than two months, and I can honestly say I feel the difference.  I never had (discernible) tummy troubles, but tons of "other" issues.  The most concrete difference is my mood, my focus, and my energy level.   Eating at home is fine; DH and children are more than supportive, and we are working (slowly) toward testing the kids and having a completely gluten-free home.

 

So this weekend, I had a chance to see some old friends, and we went to Buffalo Wild Wings.  I knew right off the bat most things would be off-limits, so I settled on something "safe:"  chips and "molten buffalo dip."  Little did I know (and failed to ask), the fryers are multi-use, and the cheese dip came out in a deep-fried flour tortilla bowl.  

 

I decided to run a test, as I had no idea what kind of symptoms I might exhibit, should I be accidentally glutened.  Long story short, I found out.  In addition to the cross-contamination from the bowl, the cheese dip was evidently loaded with gluten.

 

The next morning, I thought I had a hangover.  I only had two ciders!  I felt hot, flushed, almost like a fever.  My ankles got sweaty!  After a bit, I was sick to my stomach.  I honestly though (hoped?) it was stomach flu, but no one else in my house got it, including two small ones who must stay in constant physical contact with me.  My mom, who is Celiac/DH, was sure immediately that I had gotten glutened.

 

I felt like crap the rest of the day, and the following day was a little rough for this high school teacher.  I finally feel like I'm on top of it (two days post-glutening), although I"m still really tired.  Despite my fatigue, my sleep has been poor, and it's been harder to fall asleep.

 

Sorry for the ramble -- I just didn't know where else to turn!  I know I can't be 100% sure, but I really do feel that I got glutened -- and suffered the consequences.  And no, before you ask, I will NEVER do that again!!

 

And a small post-script:  My MIL sent a lovely package of chocolates for us and the kids -- some of it has gluten, but all labels warn of cross-contamination on machinery.  Rats.  South Bend Chocolate Factory goodies.... *sigh*  That's OK.  I need to lose weight anyways, right?

 

Love and good health to all,

Cathy

0

Share this post


Link to post
Share on other sites


Ads by Google:

Please bump if this isn't the right forum/thread.

 

I have been gluten-free for more than two months, and I can honestly say I feel the difference.  I never had (discernible) tummy troubles, but tons of "other" issues.  The most concrete difference is my mood, my focus, and my energy level.   Eating at home is fine; DH and children are more than supportive, and we are working (slowly) toward testing the kids and having a completely gluten-free home.

 

So this weekend, I had a chance to see some old friends, and we went to Buffalo Wild Wings.  I knew right off the bat most things would be off-limits, so I settled on something "safe:"  chips and "molten buffalo dip."  Little did I know (and failed to ask), the fryers are multi-use, and the cheese dip came out in a deep-fried flour tortilla bowl.  

 

I decided to run a test, as I had no idea what kind of symptoms I might exhibit, should I be accidentally glutened.  Long story short, I found out.  In addition to the cross-contamination from the bowl, the cheese dip was evidently loaded with gluten.

 

The next morning, I thought I had a hangover.  I only had two ciders!  I felt hot, flushed, almost like a fever.  My ankles got sweaty!  After a bit, I was sick to my stomach.  I honestly though (hoped?) it was stomach flu, but no one else in my house got it, including two small ones who must stay in constant physical contact with me.  My mom, who is Celiac/DH, was sure immediately that I had gotten glutened.

 

I felt like crap the rest of the day, and the following day was a little rough for this high school teacher.  I finally feel like I'm on top of it (two days post-glutening), although I"m still really tired.  Despite my fatigue, my sleep has been poor, and it's been harder to fall asleep.

 

Sorry for the ramble -- I just didn't know where else to turn!  I know I can't be 100% sure, but I really do feel that I got glutened -- and suffered the consequences.  And no, before you ask, I will NEVER do that again!!

 

And a small post-script:  My MIL sent a lovely package of chocolates for us and the kids -- some of it has gluten, but all labels warn of cross-contamination on machinery.  Rats.  South Bend Chocolate Factory goodies.... *sigh*  That's OK.  I need to lose weight anyways, right?

 

Love and good health to all,

Cathy

Early in my diet i cheated 3 times... :ph34r: Never again...

1

Share this post


Link to post
Share on other sites

I know the feeling!  Were you ever dx'd by a doctor or did you just decide to go gluten free?  I have a bunch of symtoms and pretty much self dx'd myself because when I went gluten free for close to 3 months, almost every symptom went away.  I accidentally glutened also - eating out at restaurants - I can totally identify with the "hangover" feeling.  Not sure what it was that I ate and I had wine instead of gluten free cider and back in the day I could easily drink 3 nice glasses of wine and feel fine.  Now I get very ill from just one glass.  I am back on gluten again so I can get an endoscopy on Friday.  My tummy is starting to hurt but not like it did before (although I am eating gluten, I am eating fruits, yogurt and taking a good probiotic - something I never did before - never touched fruit or veggies - just at processed junk 24/7).  And all my other symptoms - fatigue, bags under eyes, rashes, itchy eyes, achey joints - all came back. 

0

Share this post


Link to post
Share on other sites

I "cheated" too at the beginning....  I kept thinking well maybe I can have a little gluten LOL!  I learned pretty quickly ummmmm no. 

0

Share this post


Link to post
Share on other sites

I have done the "oops I forgot to ask" thing where you end up with something that probably is/has gluten but you don't want to complain to the wait staff because you never mentioned it before.

But no more of that for me either. No way. Not fun. I also call it a gluten hangover, because that's basically what it is.

But it's a lesson, and I'm sure you'll be scrutinizing everything from now on.

 

Hope you feel better soon!

0

Share this post


Link to post
Share on other sites




I know the feeling!  Were you ever dx'd by a doctor or did you just decide to go gluten free?  I have a bunch of symtoms and pretty much self dx'd myself because when I went gluten free for close to 3 months, almost every symptom went away.  I accidentally glutened also - eating out at restaurants - I can totally identify with the "hangover" feeling.  Not sure what it was that I ate and I had wine instead of gluten free cider and back in the day I could easily drink 3 nice glasses of wine and feel fine.  Now I get very ill from just one glass.  I am back on gluten again so I can get an endoscopy on Friday.  My tummy is starting to hurt but not like it did before (although I am eating gluten, I am eating fruits, yogurt and taking a good probiotic - something I never did before - never touched fruit or veggies - just at processed junk 24/7).  And all my other symptoms - fatigue, bags under eyes, rashes, itchy eyes, achey joints - all came back. 

I have an actual diagnosis, although until my first "glutening," I never recognized any GI symptoms or reactions.  This was a HUGE wake-up call for me.  I feel like the diagnosis is real now, which is bittersweet for me...  my mom also has an official diagnosis, but her DH issues were very evident as soon as her celiac manifested...

Thanks so much!

1

Share this post


Link to post
Share on other sites

Thanks so much to all of you -- I appreciate your support.  That's why I joined the group... 

0

Share this post


Link to post
Share on other sites

I have no official diagnosis, as I went gluten-free before I knew that I needed to get tested first. I get very similar symptoms to what happened to you...feeling hot and flushed, and "hung over" in the morning....tired, headache, in a fog. But with the extra fun rash to go with them. So needless to say I will not be doing a gluten challenge. ;)

 

No compulsion to cheat here...cross contamination even makes me a little itchy and rashy. My "big one" was when I assumed all tamari was wheat free and found out the hard way that Tree of Life tamari is NOT. My bad for not reading the label carefully. After that I have no interest in eating wheat ever again.

0

Share this post


Link to post
Share on other sites

I have been there. 

Recently, I got take out and the place sounded so busy when I called to order, I didn't ask questions, I just got what I wanted thinking it should be safe. I knew within 15 mins of eating that there was something wrong. It had to be the seasonings. I hadn't been that sick in a really long time and it was 3 full days before I felt better. 

 

Before that, I had willingly eaten gluten and I felt bad but not like this. Now I know that there is just no turning back. I need to be vigilant because it is clear that I am very sensitive. I have reactions to food cooked in shared deep fryers, I have reactions when gluteny foods touch my food. 

 

I never thought I would be someone who was sensitive, but even my husband, who wasn't supportive at first, has become better at telling waitstaff about my gluten issues than I am. I have learned through making bad choices, but I am done with that because I cant afford to miss work, or kids activities because I am in bed, sick, due to me being lazy. 

0

Share this post


Link to post
Share on other sites

I have no official diagnosis, as I went gluten-free before I knew that I needed to get tested first. I get very similar symptoms to what happened to you...feeling hot and flushed, and "hung over" in the morning....tired, headache, in a fog. But with the extra fun rash to go with them. So needless to say I will not be doing a gluten challenge. ;)

 

No compulsion to cheat here...cross contamination even makes me a little itchy and rashy. My "big one" was when I assumed all tamari was wheat free and found out the hard way that Tree of Life tamari is NOT. My bad for not reading the label carefully. After that I have no interest in eating wheat ever again.

"hung over"  -- absolutely!!!  I'm thinking "gluten hang-over" or "gluten flu" are two things that most accurately describe how I felt.  Plus, I have a slow metabolism, so it took a while for me to feel sick.  I am really starting to feel better, and it's Wednesday night -- I got glutened Saturday night!!  Unreal...

0

Share this post


Link to post
Share on other sites

Since I suffered from Cluster Headaches and Chronic Migraines for over a year before I was diagnosed correctly, those were the killers for me. The stomach issues, unfortuantely I got accustomed to it and wasn't sure if it was related, just thought I had a nervous stomach. Now, whenever I get glutened, my stomach if the first thing to act up but I get certain when the migraine starts pounding. I would never even risk it as I feel like it's not worth it. There was some mac and cheese my mom made over the holidays that tempted me for a second, but no longer.

 

Gluten Flu / Hangover is definitely what it feels like. Like you've been awake for 2 days with no sleep, ate some terrible food, and are about to get the flu....terrible. Feel better. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,566
  • Topics

  • Posts

    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
    • So far dairy seems to be OK, as are eggs. I like canned chickpeas so will carry on with those. Beans I had ruled out at one point with the doctor's recommendation to go with the low FODMAPs diet but will reintroduce those now I know it probably wasn't that causing the problems.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,647
    • Most Online
      3,093

    Newest Member
    iFitCeliac
    Joined