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49 Yo Bodybuilder Needing Advice.
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Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

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I have luck with adding blanched vegetables to nut or coconut water based smoothies. Zero to very little fruit. You may try adding bean powder or cooked beans to smoothies? Or, make bean cakes? Lots of recipes out there.

What about squash/pumpkin? I could see both in smoothies or a "pattie". I use leftover squash to make a pan fried pattie to lay fried eggs on...I eat that before a workout.

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There are gluten free energy bars, the ones I've had so far are Perfectly Simple (by ZonePerfect), Pure organic, ThinkThin, ProBar and ProMax.

I haven't conducted an extensive study into every flavor, you should verify each one individually by label and by eating only one kind a time to see your actual reaction.

 

Have you really tried all the carbs? There are quite a few of them... Quinoa, amaranth, teff, oats (has to be certified gluten-free though, not just any oats), sorghum, tapioca, corn, beans, legumes, and plain old rice.

You will probably have to prepare it all yourself since restaurants in general can’t be trusted. I’ve gotten quite decent at making my own bread out of these things, most of which I never heard of before becoming gluten intolerant.

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Thank you all for replying I will try some of the things you have described.any help I can get means a lot .

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I am a silent celiac .I don't know when I'm being glutened,however my joints seem to ache when I do get glutened.I have reactions to any grains especially quinoa.I am not sure if I should still eat it knowing its gluten free and a great source of complex carbs or is it hurting me to eat.I am still in recovery mode.Will it retard my healing to eat it ?

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Not all reactions are to gluten.  Some of us have additional intolerances.  I cannot eat quinoa, nor millet or amaranth.  However, I handle sorghum, buckwheat and teff perfectly well.  You will have to identify your own intolerances.  It makes no sense to eat something that makes your joints ache.

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Quinoa does need to be washed, it has a natural pesticide which will cause you some reaction if not washed properly. You might be racting to that and not the grain itself.

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Rice, corn pastas, gluten-free bread, some fruits

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Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

If you are fatiguing due to the lack of good complex carbs try upping your fat intake . Save your sweet potatoes for post workout and try increasing your consumption of good fats,,,, nuts and seeds .

While the bodys preference may be  complex carbs it will utilize the fats in the same way .

Sweet potatoes are not a nightshade. Regular potatoes are a night shade and can be  highly inflammatory .

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Thank you very much I will try rinsing and upping my fat intake as well

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Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

Hmm.. You should try a low carb/high fat diet. The first few weeks are tough, but after that you get continuous energy and no need for carbs! For body builders though, they have a "refeed" day, where you eat low fat and high carb to restore your glycogen stores... Just a suggestion, if you can't find much carby things to eat. Ohh, and this diet is also amazing for fat loss! It's actually the diet that helped me realize my gluten intolerance!

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Thank you Tay.I will definitely look into upping fat intake .i am really trying to increase my lean mass .

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I'll try upping my fat intake as well.  If was feeling SO sluggish at the gym for awhile...upped my carb intake and my energy was great...however, my body hates carbs in all other ways (my skin breaks out in seborrhea, I bloat like crazy, get headaches, standard candida reaction stuff).  Doing a massive grocery shopping trip followed by cooking this weekend - guess I'll be stocking up on avocados and almond butter as well.  Desperately need to find the right balance - I hate those gym days where your muscles have the potential to do so much more than your energy stores will allow

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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