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49 Yo Bodybuilder Needing Advice.
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13 posts in this topic

Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

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I have luck with adding blanched vegetables to nut or coconut water based smoothies. Zero to very little fruit. You may try adding bean powder or cooked beans to smoothies? Or, make bean cakes? Lots of recipes out there.

What about squash/pumpkin? I could see both in smoothies or a "pattie". I use leftover squash to make a pan fried pattie to lay fried eggs on...I eat that before a workout.

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There are gluten free energy bars, the ones I've had so far are Perfectly Simple (by ZonePerfect), Pure organic, ThinkThin, ProBar and ProMax.

I haven't conducted an extensive study into every flavor, you should verify each one individually by label and by eating only one kind a time to see your actual reaction.

 

Have you really tried all the carbs? There are quite a few of them... Quinoa, amaranth, teff, oats (has to be certified gluten-free though, not just any oats), sorghum, tapioca, corn, beans, legumes, and plain old rice.

You will probably have to prepare it all yourself since restaurants in general can’t be trusted. I’ve gotten quite decent at making my own bread out of these things, most of which I never heard of before becoming gluten intolerant.

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Thank you all for replying I will try some of the things you have described.any help I can get means a lot .

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I am a silent celiac .I don't know when I'm being glutened,however my joints seem to ache when I do get glutened.I have reactions to any grains especially quinoa.I am not sure if I should still eat it knowing its gluten free and a great source of complex carbs or is it hurting me to eat.I am still in recovery mode.Will it retard my healing to eat it ?

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Not all reactions are to gluten.  Some of us have additional intolerances.  I cannot eat quinoa, nor millet or amaranth.  However, I handle sorghum, buckwheat and teff perfectly well.  You will have to identify your own intolerances.  It makes no sense to eat something that makes your joints ache.

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Quinoa does need to be washed, it has a natural pesticide which will cause you some reaction if not washed properly. You might be racting to that and not the grain itself.

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Rice, corn pastas, gluten-free bread, some fruits

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Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

If you are fatiguing due to the lack of good complex carbs try upping your fat intake . Save your sweet potatoes for post workout and try increasing your consumption of good fats,,,, nuts and seeds .

While the bodys preference may be  complex carbs it will utilize the fats in the same way .

Sweet potatoes are not a nightshade. Regular potatoes are a night shade and can be  highly inflammatory .

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Thank you very much I will try rinsing and upping my fat intake as well

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Hello all,

First time poster.i have been diagnosed celiac since January 2012..My one year endoscopy showed villi in partial remission ,but have along way to go.I am having trouble with complex carbs the only ccs I can handle without bad gas and bloating is sweet potatoes and regular potatoes.I am needing other options for my glycogen storage.I am worried about the damage of gluten-free grains since it causes this reaction .I know it's not causing villous atrophy ,but will it set my intestinal healing backwards if I eat these grains .I am obviously fatiguing due to the lack of good complex carbs.IS it also unhealthy to only eat nightshades as my source of carbs as glycogen? Thank you very much for your time.

Charlie

Hmm.. You should try a low carb/high fat diet. The first few weeks are tough, but after that you get continuous energy and no need for carbs! For body builders though, they have a "refeed" day, where you eat low fat and high carb to restore your glycogen stores... Just a suggestion, if you can't find much carby things to eat. Ohh, and this diet is also amazing for fat loss! It's actually the diet that helped me realize my gluten intolerance!

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Thank you Tay.I will definitely look into upping fat intake .i am really trying to increase my lean mass .

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I'll try upping my fat intake as well.  If was feeling SO sluggish at the gym for awhile...upped my carb intake and my energy was great...however, my body hates carbs in all other ways (my skin breaks out in seborrhea, I bloat like crazy, get headaches, standard candida reaction stuff).  Doing a massive grocery shopping trip followed by cooking this weekend - guess I'll be stocking up on avocados and almond butter as well.  Desperately need to find the right balance - I hate those gym days where your muscles have the potential to do so much more than your energy stores will allow

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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