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    • READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


26 posts in this topic

Hi Dilettantsteph -- thanks for your reply.  I should clarify that I'm not posting here on this for me.  I'm posting this because a lot of folks online are suggesting just washing the beans to magically remove the gluten, while Jane Anderson is saying that trace amounts may remain.  I just want to point that out in case there are other sensitive folks like me out there wondering why they are sick.  I have a separate post (the one I linked to) on my own problems.  No one responded there and I suspect the sensitive folks don't check that forum too often.  But it's OK.  (You know, I actually did email Ms. Anderson on this a few weeks ago, but so far no reply.  Oh well. It's OK.)


Anyway, I think Jane Anderson meant that testing would still find the gluten:


However, informal experiments using home gluten testing kits show it's not that easy to get rid of the contamination — some seems to remain behind, despite your best scrubbing efforts.

The problem is, gluten is a very sticky molecule, and it's just not very responsive to washing. Friends who also happen to be scientists have experimented with this, and have found you can lessen — although not eliminate — the gluten cross-contamination in beans by washing them repeatedly in water with dish soap, and then rinsing.

Sounds like her scientist friends are actually doing the ELISA test here to confirm results. I ordered some of those tests and some certified gluten-free Eden Food canned beans, and I suggest anyone eating beans from any source other than one where they know how it was harvested (their own garden or a small farmers' they have spoken to) do the same, and not rely on just washing.


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