Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nervous About Biopsy + Thoughts On Doctor
0

5 posts in this topic

This is my first post.  My DD is 5 and goes in for her biopsy tomorrow.  We are extremely nervous and wondering why we are even doing this considering she responded very well to having gluten removed for a week when her blood test came back positive.  She only tested positive to 1 of the 4 tests, however her Vitamin D levels were very low and she has a lot of joint pain, so they recommended the biopsy in order to know what we are dealing with.

 

Dr. Dan Thomas is performing the procedure at Children's Hospital Los Angeles.  He is the Chief of the GI department.  Does anyone have any experience with him or the CHLA team?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had the biopsy done. Its really no big deal. :) She probably won't remember anything. All i remember is getting an IV done (and the nurse showing me how deep my veins were on the ultrasound machine due to being unable to find them easily), then being wheeled into the room where it was going to be done. The last thing i remember was becoming really dizzy and the next thing i knew i was back in the room i started in.

 

If he is the head of that department, I wouldn't be worried. :)

0

Share this post


Link to post
Share on other sites

Hugs. It was so hard when my now 6 yo had it done. It's never a "simple procedure" when it's your kid!!

 

If you want a firm diagnosis you NEED this or the Dr. to say "100% yes!".  Having the dx will help if/when you need accommodations for school and stuff. So no, it isn't fun. She most likely won't remember it and you'll have the info you need.  Stay strong. Be ready to cry AFTER she's out (I went with DS into the OR suite).  It sucks and you will both get through it!

 

And more hugs!!!

0

Share this post


Link to post
Share on other sites

Its hard, anytime anesthesia is involved for our little ones!

But yes, do it now while she's young and you can get solid documentation to move forward.

 

Having the chief as her doctor would make me feel more confident.

 

Good luck today! And all the best thoughts for your daughter.

0

Share this post


Link to post
Share on other sites

Thanks for the replies.  CHLA was amazing.  She didn't shed one tear the entire time and they made us all feel very comfortable.  She was in and out in a flash and all was well!

 

They did find some indication while doing the upper endoscopy that showed possible signs of Eosinophilic Esophagitis, which I think makes me more nervous than the Celiac.  Now we just wait for Pathology.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,343
    • Total Posts
      920,483
  • Topics

  • Posts

    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
    • Welcome to the club you never wanted to join! The good thing about this club is that you don't have to take any pills, get radiation or chemo, or stick yourself with a needle every day. Things could be much worse than this. Does your brother live close? If so he could go to your same savvy doc. That would be great! Also what about your mom?
    • Hi There! I am Aly and I have suffered seriously for about 4 years with an huge increase in symptoms. I just recently started a gluten free diet a few months ago and I am sure I make mistakes because I feel it when I do. Your symptoms are a lot like mine and after many blood tests and visits to Neurologist still no answers. They diagnosed with relapse/remission MS for all these years and now say its not that. It's Auto-immune but no answers. They never tested me for Celiac's but A friend suggested I try going gluten free. Here are my symptoms below.  See if you relate or if anyone can relate. Heat Sensitivity, Nerves jumping in face and eyes, sometimes pain and redness around the skin of eyes, kinda pinkish.... occasional trimmers coupled with loss of coordination and balance along with in and out slurred speech, a other varying waves of relapse include Extreme fatigue and a huge fog comes over me. I can't sit up or stand without getting dizzy and feel like passing out. For a few days of the relapse It's just bed rest. The other parts are off and on having to use cane. Up and down, symptoms change but eventually the waves grow dim and I go back to being normal for a while. Things seem to get exacerbated when I do to much like go more than 4 -5 hours without taking a break and resting, lifting anything to heavy...so it seems to be straining things lead me to relapse. I used to be go go go...on the run but life has changed and I find that although I am eating gluten free and being careful not to relapse, I entered another a month ago and I am having to get IV steroid infusion tomorrow to break the cycle of this one. Just when I think I am beginning to feel better and go do something I go right back down. Its seems Gabapentin, Baclofen, and LOTS of rest only get me where I need to be again. It's frustrating. I wanted to share as well so that we can combine forces to get some answers! I have decided to go to a Allergy Clinic of sorts to try and get tested for environmental and food allergies. I am sorry you do not have funding for care. See if there is local clinic that can at least run some preliminary blood work on you. I am not sure if you can see one now in your state being 17 but there is usually a 211 or a 311 line in most cities that will give you the list of places you can go for free or on sliding scale. See if they will run any allergy panels as well. I have found that we have to be proactive in our own care because sometimes there is no simple answer and the more we talk one another with the research sometimes we do on own, we find out more than 4 years of going to a doctor could ever tell you. Thanks for all your input here. I look forward to being a member and helping where I can! I will send updates as I get them. Blessings to you all! Aly
    • Garlic Mashed Cauliflower. Glazed Salmon. Gluten-Free Bagels. Graham Crackers & Vegan Pumpkin Cheesecake Dip. Grilled Chicken Fajita Kabobs. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined