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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

How Often To Test?

2 posts in this topic

Hi all!


I was diagnosed with celiac in November. Since I was diagnosed, my whole family is going through the testing process.


I know I carry both genes.  My boys (9 and 11) were tested and while they also carry the genes, they don't have celiac.  So far, neither of my sisters have celiac.   One of my nephews tested postive for celiac.  I have 2 other nephews who were tested last week and we're awaiting the results. 


My question is about my two boys. How often should they be retested?  My ped is not very knowlegable about celiac and will test as often as I want.   I plan to talk to my GI about it but have found very useful info here too.


What have others on this forum done? 




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I’ve tested with the genes for celiac disease, but I haven’t yet shown any symptoms for it. What should I do?

We recommend that you undergo a blood screen every 2-3 years or immediately upon the appearance of symptoms. This is especially true for 1st-degree relatives (parents, siblings, children) of someone with celiac disease.


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