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Anemia/vitamin Deficiency Surprise
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6 posts in this topic

I was feeling really good after a week of bed rest and massive vitamin intake. Then, I returned to work last week and all that energy depleted. I feel like I'm back at square one. I gave up trying to focus so I went to bed to lay down. Moderate muscle and bone aches, brain fog, and extreme exhaustion. I know I didn't have any gluten so I think I'm doing more than I should at this point. This is the part I hate the most! How long did it take before you started feeling semi-normal?

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Work didn't happen today, :-( the pain got worse especially in my legs and feet. I thought my feet were going to break when I stood up. Ugh! I hate Celiac Disease!

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I'm sorry. I am 5 months in and still learning. It's a process of learning and adjustment. Learn, adjust, learn, adjust, learn, adjust. I've had to forgive myself for not rising to my level of expectations and then forgive myself for having too high of expectations. Many veterans here feel very good and it took quite a few of them a long time. One person on here who was 3 1/2 months in posted her doctor's response and that helped me to adjust my expectations: http://www.celiac.com/gluten-free/topic/100497-your-bowels-are-like-berlin-post-war/?hl=%2Bberlin#entry858877

I'm about to dig into the Paleo diet. So far, I'm sensitive to gluten, nuts, dairy, corn & soy. If I had it to do all over again, I would have started with the elimination diet (or Paleo) from the git-go. I am where I am though and my husband says he sees positive changes from an observer's point of view.

Hang in there and go easy on yourself.

Cali

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Yes, trial and error! I'm sticking to fresh vegetables, fruit and beans for the time being. It's easier to drink my meals than eat them. I manage one solid meal a day. I remain optimistic :-)

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I have suffered with colon problems all my life. I get very sick and end up with diarrhea. I now am deficient in Vit B12, Vit D and have been iron deficient anemia. It was so severe they was going to give me blood transfusions, but I opted for the iron infusion.

 

I have had the blood test ran for Celiac's and it came back negative. I'm going to go gluten free to see if that helps.

 

This is awful to have because when you have the attacks you are restricted to home close to the bathroom and wears me out.

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it can take some time before you feel great, but i suspect you'll start feeling better a little at a time. You mentioned taking vitamins, one thing we learned is that deficiency of B vitamins is common & can be related to some of your symptoms, but can be really hard for the intestines to absorb..we found that B vitamins in disolvable tablet forms work, they disolve under your tongue and get absorbed right away. Also, be sure your vitamins are gluten-free too, many are not!

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    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
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