Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anemia/vitamin Deficiency Surprise
0

6 posts in this topic

I was feeling really good after a week of bed rest and massive vitamin intake. Then, I returned to work last week and all that energy depleted. I feel like I'm back at square one. I gave up trying to focus so I went to bed to lay down. Moderate muscle and bone aches, brain fog, and extreme exhaustion. I know I didn't have any gluten so I think I'm doing more than I should at this point. This is the part I hate the most! How long did it take before you started feeling semi-normal?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Work didn't happen today, :-( the pain got worse especially in my legs and feet. I thought my feet were going to break when I stood up. Ugh! I hate Celiac Disease!

0

Share this post


Link to post
Share on other sites

I'm sorry. I am 5 months in and still learning. It's a process of learning and adjustment. Learn, adjust, learn, adjust, learn, adjust. I've had to forgive myself for not rising to my level of expectations and then forgive myself for having too high of expectations. Many veterans here feel very good and it took quite a few of them a long time. One person on here who was 3 1/2 months in posted her doctor's response and that helped me to adjust my expectations: http://www.celiac.com/gluten-free/topic/100497-your-bowels-are-like-berlin-post-war/?hl=%2Bberlin#entry858877

I'm about to dig into the Paleo diet. So far, I'm sensitive to gluten, nuts, dairy, corn & soy. If I had it to do all over again, I would have started with the elimination diet (or Paleo) from the git-go. I am where I am though and my husband says he sees positive changes from an observer's point of view.

Hang in there and go easy on yourself.

Cali

0

Share this post


Link to post
Share on other sites

Yes, trial and error! I'm sticking to fresh vegetables, fruit and beans for the time being. It's easier to drink my meals than eat them. I manage one solid meal a day. I remain optimistic :-)

0

Share this post


Link to post
Share on other sites

I have suffered with colon problems all my life. I get very sick and end up with diarrhea. I now am deficient in Vit B12, Vit D and have been iron deficient anemia. It was so severe they was going to give me blood transfusions, but I opted for the iron infusion.

 

I have had the blood test ran for Celiac's and it came back negative. I'm going to go gluten free to see if that helps.

 

This is awful to have because when you have the attacks you are restricted to home close to the bathroom and wears me out.

0

Share this post


Link to post
Share on other sites




it can take some time before you feel great, but i suspect you'll start feeling better a little at a time. You mentioned taking vitamins, one thing we learned is that deficiency of B vitamins is common & can be related to some of your symptoms, but can be really hard for the intestines to absorb..we found that B vitamins in disolvable tablet forms work, they disolve under your tongue and get absorbed right away. Also, be sure your vitamins are gluten-free too, many are not!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,503
  • Topics

  • Posts

    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,162
    • Most Online
      1,763

    Newest Member
    razzle5150
    Joined