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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anemia/vitamin Deficiency Surprise
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6 posts in this topic

I was feeling really good after a week of bed rest and massive vitamin intake. Then, I returned to work last week and all that energy depleted. I feel like I'm back at square one. I gave up trying to focus so I went to bed to lay down. Moderate muscle and bone aches, brain fog, and extreme exhaustion. I know I didn't have any gluten so I think I'm doing more than I should at this point. This is the part I hate the most! How long did it take before you started feeling semi-normal?

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Work didn't happen today, :-( the pain got worse especially in my legs and feet. I thought my feet were going to break when I stood up. Ugh! I hate Celiac Disease!

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I'm sorry. I am 5 months in and still learning. It's a process of learning and adjustment. Learn, adjust, learn, adjust, learn, adjust. I've had to forgive myself for not rising to my level of expectations and then forgive myself for having too high of expectations. Many veterans here feel very good and it took quite a few of them a long time. One person on here who was 3 1/2 months in posted her doctor's response and that helped me to adjust my expectations: http://www.celiac.com/gluten-free/topic/100497-your-bowels-are-like-berlin-post-war/?hl=%2Bberlin#entry858877

I'm about to dig into the Paleo diet. So far, I'm sensitive to gluten, nuts, dairy, corn & soy. If I had it to do all over again, I would have started with the elimination diet (or Paleo) from the git-go. I am where I am though and my husband says he sees positive changes from an observer's point of view.

Hang in there and go easy on yourself.

Cali

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Yes, trial and error! I'm sticking to fresh vegetables, fruit and beans for the time being. It's easier to drink my meals than eat them. I manage one solid meal a day. I remain optimistic :-)

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I have suffered with colon problems all my life. I get very sick and end up with diarrhea. I now am deficient in Vit B12, Vit D and have been iron deficient anemia. It was so severe they was going to give me blood transfusions, but I opted for the iron infusion.

 

I have had the blood test ran for Celiac's and it came back negative. I'm going to go gluten free to see if that helps.

 

This is awful to have because when you have the attacks you are restricted to home close to the bathroom and wears me out.

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it can take some time before you feel great, but i suspect you'll start feeling better a little at a time. You mentioned taking vitamins, one thing we learned is that deficiency of B vitamins is common & can be related to some of your symptoms, but can be really hard for the intestines to absorb..we found that B vitamins in disolvable tablet forms work, they disolve under your tongue and get absorbed right away. Also, be sure your vitamins are gluten-free too, many are not!

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    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
    • Gluten and panic attacks
      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
    • Generic meds
      Your best bet is to contact the manufacturer (as Squirmingitch suggested).   My doctor has no time to worry about medication containing gluten.  My pharmacist admitted that she does not have the time to help me, but recommended that I take responsibility and always contact the manufacturer.  My pharmacist did help by insuring that my thyroid replacement medication (Armour) is ordered in a full bottle, sealed and direct from the manufacturer.  I have to give her credit for being honest with me.  I also see her running around non-stop, so I believe that she is super busy.   Why did your doctor switch your medication?  Can you go back to your old brand?  How is your thyroid?   This is a bit off topic, but I subscribe to the Bicycling magazine.  I found this article fascinating about the impacts of cycling, swimming or running on ADHD.   http://www.bicycling.com/culture/people/riding-my-ritalin-how-one-cyclist-gained-control-over-his-adhd I hope you figure it out!  
    • Abu Dhabi Gets its First Gluten-free Bakery
      For an indication of just how quickly gluten-free food products are revolutionizing the food and beverage industry across the globe, look no further than the United Arab Emirates (UAE). View the full article
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      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
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      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
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