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Is It Normal For Doctors To Discourage Celiac Testing?
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31 posts in this topic

can you just oats?? McCains oats are from Ireland and are considered not CCd.

Cookinpapa, the only reason oatmeal is important to me is because it seems to dramatically reduce my itching from my psoriasis (dh?). It's a horrible deep seated impossible to satisfy itch that I get all the time. The Aveeno killed the itch!! So yeah, I hope to be able to find something that has oatmeal in it that is gluten-free.

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can you just oats?? McCains oats are from Ireland and are considered not CCd.

What does "can you just oats??" mean? Lol I'm talking about hand lotion or cream to help with my severely intensely itchy psoriasis or whatever it is. :) The colloidal oatmeal really helps with the severe itching.

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What does "can you just oats??" mean? Lol I'm talking about hand lotion or cream to help with my severely intensely itchy psoriasis or whatever it is. :) The colloidal oatmeal really helps with the severe itching.

Oatmeal never helped mine, but that doesn't mean it doesn't help you. I used generic Aveeno packets as a body scrub - I'd pour it on my hand and scrub all over. For years. Go figure. I've never heard of a certified gluten-free oat cosmetic product.

Anyway, to stop the itching the best thing for me was ice packs. I use Vanicream and it works miracles as far as staying on the skin and moisturizing, which leads to decreased itching. I'd also add a layer of Vaseline at the worst times to stop the sores from cracking. Coconut oil is probably a good alternative. I used jojoba oil for a long time; however, it seemed to burn the sores a bit at times. I had to repeat applications of whatever i used several times a day, especially when the blisters swelled and popped. Others have luck with topical numbing creams (never tried it but would if I had another flare). Lots of hints on the DH board.

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Hmm those sound like good ideas! Thanks!! Right now I'm having severe itching in certain spots on my right hand. I've already torn the skin open (GRR) so now it's going to burn with whatever I put on it. Then it'll scab over, blah blah you know how that goes. So I think I might look into numbing creams. Do you have any specific recommendations for those? I'm not even sure I know where to look for such products. I know there is anbesol and orajel for the mouth but I'm not sure I've heard of actual creams for skin.

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Look on the DH board. I think it's generic walgreen's brand - whatever it is.

I would use ice packs when it was at the worst. Helped reduce swelling and pain and itch. Vaseline would stick to the skin when it was cracking and weeping. I hated that stage. Hurt to move.

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    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • What a gross title–it bothers me and I wrote it! It wasn't my idea originally. The research paper the data came from was entitled, "Experimental hookworm infection and gluten microchallenge promote tolerance in celiac disease" published recently in the Journal of Allergy and Clinical Immunology. View the full article
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
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