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Gluten And Vertigo


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22 replies to this topic

#1 Rick1254

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Posted 29 March 2004 - 07:12 AM

Has anyone here suffered from vertigo attacks triggered by gluten? I have had to go gluten free because gluten caused vertigo attacks.
thanks,
Rick
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#2 tarnalberry

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Posted 29 March 2004 - 09:17 AM

If you're just talking about dizziness... that's the first symptom I have if I've had something with gluten. A dizzy, disorientation in the head that makes things feel like they're moving (usually rotationally) when they're not. For me, it only lasts 15-30 minutes, and happens 15-30 minutes after I first ingest the offending substance, but it sure ain't fun. (I describe it to friends as something like the feeling of being drunk, without it being funny in any way whatsoever.)
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#3 plantime

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Posted 29 March 2004 - 11:16 AM

Dizziness after eating gluten? YES!!! I think it might be because it wrecks havoc on my mucous membranes.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#4 Lily

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Posted 30 March 2004 - 03:05 AM

Yes, I get vertigo when poisoned, and get the shakes and my heart races like crazy.

Lily
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#5 Guest_dlf1021_*

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Posted 30 March 2004 - 05:23 AM

Rick,
Yes, vertigo is one of the first things i experience after ingesting gluten. usually, it's accompanied by an extreme sudden sleepiness (i'm currently on a gluten diet so that i can have a biopsy this friday and i actually fell asleep in the middle of a physics lecture the other day--no word yet whether it was the raisin bread i'd just eaten or the physics :D ) i also experience chills, and my joints begin to ache.
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#6 Rick1254

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Posted 30 March 2004 - 06:19 AM

....Thanks for the replies. I've been gluten-free for about 2 years now. When I would get the vertigo attacks, would be if I ate something gluten on an empty stomach. Within 15 minutes everything would start spinning around me, I couldn't walk, I would sweat gallons, throw up, and people who hadn't seen me go through this before, would think I was dieing. This would go on for 4 to 6 hours.
....When I went gluten free, the vertigo attacks from Gluten (I would still get the occassional vertigo attack from Hypoglycemia) of course stopped but another thing of interest also happened. I was also suffering from constant dizziness, constant fatigue, and what we call at the meniere's board as "brain fog" which is a distant, far away feeling where you feel "detached" from the real world. Within three days of eliminating gluten all these symptoms went away also. I later was tested for a wheat allergy but thast came back negative but later I learned that you need to have ingested gluten for it to show up in an allergy test. I have also learned since then, as someone alluded to, that not only do you need to eat gluten but also have a biopsy done to prove that an allergy or intolerance is present.
....Well, I'll just have to be undiagnosed because I'm not eating gluten again and putting myself through all that. After Identifying the gluten trigger, it wasn't too long before I found the Hypoglycemic trigger. Again I haven't been officially diagnosed with that either, but with the gluten-free and HG diet, I have now gone 15 months without a vertigo attack and when I was at my worst, I was having them 2 times a week.
....The problem with th hypoglycemic diet is that I have put on weight and can't get it off without bringing on the vertigo and dizziness again. so I'll continue to search for answers. One of the reasons that I posted here is that I thought all of this was caused by Meniere's disease since vertigo attacks are a symptom of Meniere's. But I got to thinking that there's no reason to think that just becasue I developed Meniere's that I couldn't develope another chronic condition. I've even found that some of the asthma medications help with my dizziness caused by the Meniere's. So there seems to be a common thread between all the chronic conditions even though I don't know what it is but I would be willing to bet that gluten allergies or intolerances could be a big underlying cause for asthma, CFS, Fibro, Meniere's, and who knows what else.
...I don't know why it took so long to think of coming over here to see if anybody with Celiac disease was having vertigo attacks but if you all don't mind, I will hang around and maybe learn something.
Thanks again,
Rick
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#7 tarnalberry

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Posted 30 March 2004 - 08:02 AM

If you watch your total calorie count, and get exercise, a diet for hypoglycemia should still allow you to lose weight....
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#8 seeking_wholeness

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Posted 30 March 2004 - 03:21 PM

I used to get infrequent vertigo attacks that I wasn't able to link to any trigger, but I haven't had one since I went gluten-free, so I think gluten must have been it. (Quite possibly an empty stomach had a lot to do with it, too; my eating habits used to be abysmal!) For me, it felt like my head was hovering a few inches above my neck and my "inertial dampers" were broken.

The scariest vertigo attack I ever had came when I was nine months pregnant (and NOT gluten-free; this was before I found out about celiac disease), about a day or two before my due date. My husband and I were visiting friends, and we were all sitting around the table playing a card game when I suddenly fell over sideways into my husband's lap! I tried to sit up again, but I couldn't, so I decided to go over and lie down on the couch. Well, the shortest path between the two points was a straight line, but my attempt to walk it took me in a big clockwise circle. I lay down and dozed for a while and felt a bit better when I woke up, but--and this was the scariest part for me--after I woke up, I COULD NOT REMEMBER the past nine months of my pregnancy! It wasn't total amnesia; I wasn't surprised to look down and see my pregnant belly, for instance. But I no longer felt bonded with the baby AT ALL--I felt like in just a couple of days I would be permanently put in charge of some stranger's new baby that I didn't want and hadn't asked for! Yikes! Well, I decided that I would give myself time to recover before I panicked totally, but a couple of days later I still didn't feel attached to the baby. I called a very close friend to ask what on earth I could do about this crazy situation, and she suggested that I draw a picture of it. I thought this might be helpful, especially since I DON'T consider myself an artist, and I found myself drawing a self-portrait in profile. Then I drew the baby inside my belly, making it as realistic as possible. I put a lot of effort into the picture, and I'm glad I did, because I was probably in early labor even as I drew it! It helped a lot, and this story has a happy ending anyway: at 3:57 the next morning, after ONE HOUR and fifteen minutes of noticeable labor, my son arrived by surprise home delivery (right into his father's hands)! Talk about a bonding experience! It was wonderful, and if I had it to do over again, I wouldn't change a thing!

I'm sorry if my ramblings here were a bit irrelevant, but it helps to tell my story. It really was frightening while it was happening!
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Sarah
gluten-free since November 1, 2003

#9 plantime

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Posted 31 March 2004 - 06:44 AM

Sarah, I think you lived every mother's nightmare about not loving her baby! I am soooo glad you were able to resolve the problem! Daddy will certainly never forget being the very first to hold his son!

Lily, I was shocked to see you refer to consuming gluten as a poisoning. It did make me stop and realize that for our bodies, that is exactly what it is! Thank you for putting it all in perspective!
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#10 Lintner

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Posted 01 April 2004 - 10:44 AM

Hi, the vertigo is chronic for me, but the symptoms decrease with staying away from the gluetin. It is probably the most debilitating of all of my symptoms. Kim
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#11 sagapocristo

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Posted 04 April 2004 - 10:27 AM

I was recently diagnosed w/celiac disease, but have had autoimmune hearing loss for years. It started w/severe vertigo, then ringing in the ears, then has progressed to hearing loss in both ears (one ear is worse than the other).

Do you have hearing loss or tinnitus (ringing) w/the vertigo? I'm hoping the glutenfree diet will help my ear problems.
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#12 Rick1254

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Posted 05 April 2004 - 08:56 AM

Yes, I have tinnitus and hearing loss in my left ear only. How did you miss getting diagnosed with Meniere's? Along with going gluten-free I've found several things to eliminate my vertigo attacks but nothing has effected my tinnitus or hearing loss. It seems that the hearing in my left ear isn't as distorted as before but it's still bad. But every little bit helps.
Rick
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#13 DLayman

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Posted 05 April 2004 - 12:16 PM

I have also had bouts of vertigo. I went through a whole slew of tests for menieres... hehe I went throught the tests when I was pregnant.. I have not had any attacks lately, but I sure can relate to Sarah!! I have been several times crawling around on the floor because of an attack and I was pregnant and wanting to fall on the steps.
Scary! Right now I am on a regular diet, right along with my little guy. I am back to having all kinds of lovely gas but no vertigo.. I think it does get worse with extra fluid retention in prgnanacy

Denise
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#14 andreazimagination

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Posted 26 February 2009 - 02:32 PM

I was so happy to finally find people talking about vertigo and gluten. I have Meniere's disease, no two ways about it. I have the constant ringing, onset in my early thirties, dizzy spells, hearing loss in my right ear, blah, blah, blah... It was crippling, and when I was attempting to make myself healthy, no salt, no caffeine and only WHOLE GRAINS (wheat) I was getting worse and worse - killing myself.
I was probably always gluten intolerant, suffering from eczema and asthma. Apparently, once you hit a certain age, your immune system just can;t fight it any more, in my case the gluten poisoning and it started to react.
I tried everything for my Meniere's syndrome. Nothing worked and when the doctor suggested surgery, I lost it.
I was seeing a shrink because I started to believe it was stress related panic attacks. One major symptom of gluten poisoning is definitely anxiety. Anyhow, it was she who suggested to go gluten free and I WAS CURED, - like the next day...
I was good for 7 months and I suppose I had a few relapses because my now clean body was so sensitive that when I would get accidentally glutened by chocolate, malt sweeteners, pre-packaged ground pepper, whatever, I would react. Now it barely happens. Sometimes maybe light headed and I know it's happened.
Amazing, when I told my ENT doctor, he was basically uninterested! I couldn't believe he wouldn't want to share with his other patients.
I've tried to spread the word, but people are clearly not as sick and desperate as I was.
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#15 Suziewoo

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Posted 10 August 2010 - 09:50 AM

Dear Rick

That is an interesting question. Nine weeks ago I started with upper abdominal pains and flatuence but also generally feeling awful, ill, tired, weak and watery - looking back the feeling of general unwellness predates the abdominal problems. BUT, since before Christmas I have been taking a nasal spray for severe vertigo. Anyway my GP referred me to the hospital where I've had blood tests and am awaiting a scan, this morning had an endoscopy (not as awful as you read on google!), The upshot is I'm told they are testing for celiac disease - I was amazed to see on the internet that vertigo can be a problem with gluten intolerance. So you may be right. All the Best,

Sue
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