Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ttg Down To Normal After Only 4 Months Gluten Free?
0

4 posts in this topic

Hi!  Hope someone can help me with my blood test results. I've been gluten free 4 months and I had my (tTG) IgA checked to see how it was going.  4 months ago it was 94 (above 10 was positive).  Now it is 3 (0-3 is negative).  Is it even possible that my score has gone down that much? I though it would have gone down by half at the most.

The reason that I'm skeptical is that my son had a low positive at this lab before he was diagnosed (a 4, a weak positive according to their scale).  Our pediatrician had it checked again at a different lab and the score came back 51 (which was a much higher positive.  The doctor was shocked that there was such a difference between the two scores, and thought it really shouldn't be possible, but we kinda shrugged it off, and the kids are going to the other lab.  My doctor wanted me to stick with lab for now so the results would be comparable, but I really am skeptical I could go down that much.

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is very possible for numbers to go down that much.  It all depends on how strict you are with the diet, how long you were symptomatic or suspected a problem, and how fast a healer you are.  There are many variables and that's why it's almost impossible to compare your results to other peoples results.  Were you very symptomatic before start of the diet and have you noticed improvements?  It looks to me like you have done a really good job with the diet!

1

Share this post


Link to post
Share on other sites

It hard to say how long I had it before diagnosis. About 6 months before I started having itchy eczema in my scalp that began to spread all over my body, my tongue was very sore and irritated, and my iron dropped very low. I also started to have hair fall out.  I was reading an article about the low iron and it mentioned celiac disease as a possible cause, and I remembered my dad had been diagnosed shortly before he died, so I went and got the test. I've had low iron and tongue problems for years (doctor said it was geographic tongue) just during pregnancy though.  Those symptoms are both more frequent during pregnancy, and they went away when I wasn't pregnant.  So it's possible that I had problems before 6 months ago, but 6 months ago is when the symptoms got really bad.  I've been careful on the diet, no cheating, but I still go out to eat and I have thought at times there was some cross contamination symptoms (my eczema flared up)  My symptoms have improved, but the eczema isn't gone on my scalp, and I'm not sure if I'm still losing hair (but some has grown back too). Things are much better, but I hoped all my symptoms would be gone when my (TtG) IGA was normal.  (My iron is up too, BTW, though it still on the low normal side.)  I had my TSH checked to make sure it wasn't a Thyroid problem but that came back normal too.

0

Share this post


Link to post
Share on other sites

It takes a lot longer for symptoms to disappear after your blood work becomes normal.  That is the norm for most Celiacs.  My blood work was normal at the 1 year mark but it took 3 years for all of my symptoms to go away and my nutritional deficiencies to get better.  It's a long process.  Usually people that have skin issues from Celiac notice a longish recovery as it takes awhile for skin lesions to heal and not come back.  It took a long while for you to get bad and it will take a long while to get better.  It 's more like a slow, steady recovery that most people experience.

 

The tongue problem.....I had that also and it goes with Celiac.  It's one of those funky symptoms most doctors miss entirely.  It may have gone away when you were pregnant because pregnancy is an immuno-suppressant and when your immune system is suppressed, even a little, it suppresses symptoms.  You feel better but things come back with a vengeance post delivery.  That will go away with time.

 

You may want to prod your doctor to have a full thyroid panel done as just testing the TSH is not good enough.  You really need to be testing the 2 thyroid hormone levels, T3 and T4.

It's also helpful to test thyroid antibodies but many doctors skip that and just test the TSH to save money.  Bad idea because you can be positive on some of the tests and not on the others, not to mention that the TSH is a pituitary test and not a thyroid test.  Each test is valuable because it's testing certain aspects of thyroid function.  Thyroid disease is huge with Celiac....I have Hashimoto's myself.

 

Be careful with the diet and watch the number of times you eat out until healing is well under way.  Not that you can't go out but pick restaurants wisely and try to limit the times you do go out because it is a risk every time you do so.  But if you have been feeling better overall and your iron levels are coming up, I'd say you are doing a good job.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,895
    • Total Posts
      919,536
  • Topics

  • Posts

    • Test Results
      Update: I am about at my wit's end. I won't be able to see my new doctor until July 17 to get a referral to a GI doctor, so I continue to eat gluten and the effects continue to worsen. Today my boss, whom I have been working with for 12 years, and I had a meeting where he said he's noticed a change in many things, such as speech, not articulating well, forgetfulness, and other things that are affecting my work product. I finally told him I know there is something wrong with me medically and I've been trying to get to the doctor to no avail. I recall those four weeks early in the year when I tried out gluten free and was beginning to feel much better- more present, more sharp, and then went back on gluten in preparation for the blood test.  I just don't think I can do this gluten thing any longer and am thinking of going cold-turkey gluten free.  I'm 54 years old, am beginning not to care about a diagnosis because I just want to feel better and be able to do what I need to do. Because of how I felt going off of gluten earlier in the year, and eating gluten free when I was on the McDougall plan years ago, and how I feel while doing this gluten challenge, I am pretty convinced that my issue is gluten.  Any words of encouragement would be welcome.  If you've done gluten free and never looked back, tell me about it. 
    • Gardasil
      "I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil Thank you I have a young daughter and have wondered this exact question posed by the poster and your response has given me great pause about this issue which may come up in years to come. I am sorry to hear this wreak havoc on your life, but simultaneously thank you for sharing this detail to help those of us that have likely been decades misdiagnosed celiacs now raising children. Thank you.
    • Gluten does WHAT to the brain?
      "Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me" My sympathies that is just tragic, as this story is.  I hope you are at peace knowing you are aware of your celiac and help so many lost, scared, and confused celiacs here. It can never bring back your brother but I hope it can give soften some of what you feel that was/is beyond your control. His suffering and your loss has made you a better advocate to yourself and in your work helping us. I don't like my body or my  brain on gluten either. I do fear that people overlook the toll inflammation takes on the brain. It likely may explain decades of mental illness that was brain based inflammation unknown until changes in technology advancement catch up. However consuming gluten to study how one enters psychosis may not be the best method. Do no harm.  
    • Gardasil
      I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,942
    • Most Online
      1,763

    Newest Member
    dl2z12
    Joined