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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sauerkraut-Very Bad Reaction.
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17 posts in this topic

I am not officially dignosed yet but have been trying to stick to as much gluten-free as possible. Less painful.

Anyway, I had labeled gluten free beef hot dogs and saukerkraut last night. No bread. Never had a problem with either before. But last night, about an hour after eating. I have such horrible bloating, cramps and gas pains like I never had in my life. Thought saukerkraut was ok.

I couldn't pass gas either but felt like I needed to or go to the bathroom.

Tried some yoga positions that I found on the Internet to try to move gas. After about 2 hrs of this, I was able to go the bathroom and it was not stool-like at all but very watery and I could actually see pieces of mushrooms that I had for dinner the night before. This happened several times.

This morning's was basically nothing and still have some minor bloating and pains.

What happened? This is all new to me.

Thanks

 

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Hard to know.  Could be what you ate yesterday.  Could be a touch of food poisioning.  Could be a stomach virus.  Etc.  

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Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

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what in heaven are they  PUTTING anything but salt and cabbage in a sauerkraut jar?

Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

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It was a can of store brands

Ingredients are

 

prepared cabbage

water

salt

 

That's it. Pretty sure not food posioning because hubby ate the same.

It is normal to have undigested food in "bowel movement" about 36 hrs later?

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It was a can of store brands

Ingredients are

 

prepared cabbage

water

salt

 

That's it. Pretty sure not food posioning because hubby ate the same.

It is normal to have undigested food in "bowel movement" about 36 hrs later?

Yes. Damaged intestines will do that.

One thing we should point out is - you must be eating gluten to get positive blood tests and endoscopy.

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Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

I have never seen jarred sauerkraut that contained gluten. Generally, it's just cabbage, water, salt, juniper berries and carraway seeds.

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some manufacturers use vinegar.  i have skipped buying some brands (pickles, too) because it just says "vinegar" - not distilled vinegar, so better safe than sorry?  it doesn't matter anymore; i just grow cabbage and make my own (salt.  cabbage.  the end.)  :)

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hi dont know if this helps or not,
 
i dont have any gastro problems at all - but i had the most horrible symptoms one night after a meal at my friends house. this was before i went on the gluten and dairy free diet.i retried everything i ate that night - it was the coleslaw!!! ive put it down to either the cabbage or the vinegar.

ive not tried any of them since because it totally freaked me out - thought i was dying, hot,cold, shivvery, sat on the toilet- no need to say any more lol. then i heard this gurgling groan sound ( the sort of thing you hear when watching a horror movie lol)i actually looked behind me to see where it had come from!!! then i realised it was from my stomach!!!

 

well like i said- dont know if it helps but maybe your intestines just get to a point where they cant cope any more. ive not had any problems since - touch wood!!!   you could try eating a bit of each and see which one actually caused the problem! as for undigested food it just means you are not absorbing your food properly - a symptom of damaged intestines.maybe you have reached the point where you have to change your diet in some way.hope you get the diagnosis you need - even if you dont - like me - i was negative for celiac - you could find that the diet helps.

good luck anyways :)

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Yes, I'm staying on gluten. I still eat my Thin Mint cookies. Gotta finish those girl scout cookies but 2 or 3 at a time. Pop-Tarts and do have bread, but just a bit. Just trying to not overdo it. That was actually a regular meal for us. He just happened to buy those hot dogs because they were on sale. Sabrets and it had a certified gluten-free symbol on the front.

I was getting the grugling, rumbling just about all the time. Mine is mostly on my right side after certain meals and I can pretty much trace it to breads, especially my favorite rye bread sandwiches. Yes, it's scary and annoying. Along with the stomach ache. That's the first time the bathroom trip results in that and gas has been that bad. I seen bits of food, like blueberries, once not to long ago before from blueberry pancakes but it didn't didn't seem to cause any problems.(non-gluten) That was new for me.

I'm going to try that.  A bit of each and see.

I love coleslaw, I hope I can eat that.

But I did learn some yoga moves, that was fun in the middle of the night-lol.

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hi,

 just had another thought on the matter- i wonder if the manufacturer of the sausages has modified the recipe recently - maybe you could email them. sometimes its easy to get hung up on the gluten. even though they were gluten free they could of added a new herb or spice to the mix - its just a thought!

 

with my own experience with coleslaw  i tried 2 different types a value brand and a luxury brand - it was the value brand that caused the problem - it was the one that had more fillers, preservatives ect.   its still put me off coleslaw for life though lol

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If you're still eating gluten in preparation for your biopsy, then you could have your explanation right there. Even though the sauerkraut should have been perfectly safe, because your intestines are damaged (if you indeed do have Celiac) they decided: Nope, can't digest this stuff today! Sausages can also be hard on a damaged gut, even if they're perfectly gluten-free. 

Hopefully after your biopsy and some healing time you'll be able to handle it again.

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I am not officially dignosed yet but have been trying to stick to as much gluten-free as possible. Less painful.

Anyway, I had labeled gluten free beef hot dogs and saukerkraut last night. No bread. Never had a problem with either before. But last night, about an hour after eating. I have such horrible bloating, cramps and gas pains like I never had in my life. Thought saukerkraut was ok.

I couldn't pass gas either but felt like I needed to or go to the bathroom.

Tried some yoga positions that I found on the Internet to try to move gas. After about 2 hrs of this, I was able to go the bathroom and it was not stool-like at all but very watery and I could actually see pieces of mushrooms that I had for dinner the night before. This happened several times.

This morning's was basically nothing and still have some minor bloating and pains.

What happened? This is all new to me.

Thanks

If you do have Celiac and you are still eating gluten foods than your digestive system can't begin to heal and is probably getting more damage, for a gluten free diet to work for Celiac you have to completely cut out the gluten. I understand you may want to get positive test results first but if you do have Celiac these symtoms make sense, if your intestine is damaged it won't properly digest foods and the cabbage could set off some discomfort because it is a very gassy food, I would stick to mild, simple foods until you have time to heal some and try the cabbage again then.

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I agree, if you are sensitive to gluten and are eating it, all bets are off.

I have has reactions 24 hours after eating from cross contamination.

24 hours.

Now, in retrospect I NEVER could have connected my stomach upset with gluten, without going gluten-free for a long period (then experiencing a glutening). I mean, who in the hell gets sick from what they ate 24 hours later (unless its some sort of food poisoning)?

In short - until you go gluten-free and heal for a year or so...assume reactions are associated with intestinal damage caused by Celiac unless you notice an obvious pattern (like eating cheese always makes you sick).

Celiac damaged intestines are like 2 year old kids - completely unpredictable and guaranteed to be stubborn and throw a fit.

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I agree, if you are sensitive to gluten and are eating it, all bets are off.

I have has reactions 24 hours after eating from cross contamination.

24 hours.

Now, in retrospect I NEVER could have connected my stomach upset with gluten, without going gluten-free for a long period (then experiencing a glutening). I mean, who in the hell gets sick from what they ate 24 hours later (unless its some sort of food poisoning)?

.

My reaction to gluten is  26 hours later ,,, almost to the min.,,,, that was very helpful knowledge ( once I figured it out  :P  )

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My reaction to gluten is 26 hours later ,,, almost to the min.,,,, that was very helpful knowledge ( once I figured it out :P )

Mine was right at 22 1/2 hours. Now I think it's gone to 5 minutes. Seriously. What kind of ride am I on???

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Mine was right at 22 1/2 hours. Now I think it's gone to 5 minutes. Seriously. What kind of ride am I on???

 The fun filled roller coaster ride that is celiacs ,,, all the ups,downs , twists and turns you never invisioned in your dreams ( or nightmares :P  )

 

The bad days do get further and further apart , the good days happen more and more often B)

 

 

** need to note *** I did have an immediate ( and I do mean immediate) reaction once. I bit in to a Twizzlers and immediately got a head rush. I knew something was wrong so I spit it out ,lol my coworkers must have thought I was nuts.  :lol:  I looked at the ingredient list and sure enough wheat was the first ingredient :ph34r: 

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