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Fundoplication Surgery For Gerd?
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Saw my GI doc yesterday, and he wants me to see a surgeon for fundoplication. I am doing very well with my diet. Scope was good. Markers down, but I still have horrible reflux! I sleep almost straight up, take 60 mg of prilosec and many tums throughout the day. I've tried prevacid, nexium, and carafate. They either did nothing or had really bad side effects.

At first I was excited at the prospect. Until I read the statistics, risks, etc. Inability to burp or vomit? That is really scary to me. Difficulty swallowing, paralytic pileus? 6 wk recovery? 10-20 lb weight loss (okay, that part I can deal with). Irreversible. May not work.

Anyone have this done? Advice, please.

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My GERD was not able to be controlled by medications. I became intolerent to them. So then, i stopped taking them. A year has passed and now its to the point where, while i get something every day, it is managable via tums, water or food. I cannot sleep without my incline pillow.

It was quite bad. Now it is mainly controlled by my diet. No greasy, fatty, rich, or spicey.

Have you had your gallbladder checked? I've heard that it can cause it. Another thing that might be causing it is you may have a low level of stomach acid. I've heard of that doing it as well.

I would explore other options at this point.

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Have you had 24 hour impedence ph probe or a barium study?  These tests will tell you alot about your GERD.  My daughter had a Nissen and its a good thing she did.   She was refluxing all the time and it wasn't just acidic on all medications used to control GERD.  At the time she was Gluten free, Grain Free, and Dairy Free.  She only ate about five foods and still was vomiting every time something entered her stomach.  She had a structural abnormality and no medicine would work or would ever have.  She had it done robotically with very little scarring.  Would I make the same decision again?  Yes, absolutely.  

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Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

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Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

You might try getting a 24 hour PH impendence probe to check your refluxing.  Medications did not work for my child.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
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