Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Fundoplication Surgery For Gerd?
0

5 posts in this topic

Saw my GI doc yesterday, and he wants me to see a surgeon for fundoplication. I am doing very well with my diet. Scope was good. Markers down, but I still have horrible reflux! I sleep almost straight up, take 60 mg of prilosec and many tums throughout the day. I've tried prevacid, nexium, and carafate. They either did nothing or had really bad side effects.

At first I was excited at the prospect. Until I read the statistics, risks, etc. Inability to burp or vomit? That is really scary to me. Difficulty swallowing, paralytic pileus? 6 wk recovery? 10-20 lb weight loss (okay, that part I can deal with). Irreversible. May not work.

Anyone have this done? Advice, please.

0

Share this post


Link to post
Share on other sites


Ads by Google:

My GERD was not able to be controlled by medications. I became intolerent to them. So then, i stopped taking them. A year has passed and now its to the point where, while i get something every day, it is managable via tums, water or food. I cannot sleep without my incline pillow.

It was quite bad. Now it is mainly controlled by my diet. No greasy, fatty, rich, or spicey.

Have you had your gallbladder checked? I've heard that it can cause it. Another thing that might be causing it is you may have a low level of stomach acid. I've heard of that doing it as well.

I would explore other options at this point.

0

Share this post


Link to post
Share on other sites

Have you had 24 hour impedence ph probe or a barium study?  These tests will tell you alot about your GERD.  My daughter had a Nissen and its a good thing she did.   She was refluxing all the time and it wasn't just acidic on all medications used to control GERD.  At the time she was Gluten free, Grain Free, and Dairy Free.  She only ate about five foods and still was vomiting every time something entered her stomach.  She had a structural abnormality and no medicine would work or would ever have.  She had it done robotically with very little scarring.  Would I make the same decision again?  Yes, absolutely.  

0

Share this post


Link to post
Share on other sites

Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

0

Share this post


Link to post
Share on other sites

Hi, I am doing everything I am supposed to do.  Yesterday, I went to lunch with my hubby, and I was having a salad, not a speck of bread around us, or cheese anywhere.  Everything should have been good for me.  I used oil and vinegar dressing.  Drank water.  Had blood work done that morning, so not even my 1 cup of coffee for the day was had.  I was clean, inside.  My esophagus closed up on me with the first bite.  I had to stand up and try to walk it off, I was trying to stay calm and breath, through my nose, and calm it all down.  I thought I would burp and it would pass, no I had to spit it up in the bathroom, twice, before I was over it.  Then I went back and when the trembling passed, I was able to eat.  WHAT happened?  Was it a cc reaction?  Is that my Esophagitis flaring up, but why, what did I do wrong?  Before being Gluten Free this used to happen a lot, it stopped when I gave up gluten foods.  My Endoscopy dx has me with Grade 2 Esophagitis, Chronic Inactive Gastritis, Peptic Duodenitis, Hiatal Hernia, Gastric PH 1. Gluten Intolerant/Sensitive as no Celiac Sprue was found. Guess I need to list these things in signature huh.  

 

I  am not using the prilosec the doctor wanted me to use nore the gaviscon, they did not make sense.  Trying Betaine HCl and its working, the Prilosec was not.  Tried the Gaviscon as well and it just made symptoms come back again, so no Gaviscon either.  I may try the slippery elm. 

 

Anyway, any ideas are welcome, as I do not want this to happen again.  It hurts, terribly, if I can avoid it, I will.  Scale of 1-10 pain 8

 

I posted this in two areas looking for answers, I hope someone can offer something.

You might try getting a 24 hour PH impendence probe to check your refluxing.  Medications did not work for my child.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,612
  • Topics

  • Posts

    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
    • Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined