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What To Expect, When


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11 replies to this topic

#1 Pam M

 
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Posted 03 April 2013 - 02:25 PM

I am first week in to gluten free diet and (ever impatient) wondered when I would start to feel better. Just feel tired, worn out, stomach achy etc.... Would be keen to hear when other people started to feel more lively!
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#2 shadowicewolf

 
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Posted 03 April 2013 - 03:33 PM

Hard to say. Right now i would guess you are still going through gluten withdrawl and as such, your body is probably throwing a fit at not having what it wants.

 

It took a while.  The main symptoms ("D" and vomiting) cleared up within a week of the diet starting, but the other things took a while.


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#3 psawyer

 
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Posted 03 April 2013 - 03:35 PM

Many people see noticeable improvement quickly, but there are numerous factors to consider.

Celiac disease damages the body, particularly the small intestine. That damage needs to heal. As soon as you stop eating gluten, you stop making the antibodies. But the existing ones take time to die off. The healing process begins. How long it will take depends on how much damage there is to heal. Younger people seem to heal more quickly than older ones.

I was 46 at diagnosis, with severe damage to my villi. I began feeling somewhat better soon, but had serious symptoms for several weeks. It was several months before I truly felt well.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#4 Lisa

 
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Posted 03 April 2013 - 06:11 PM

Hey Pam and Welcome!

 

Eating simply will help you recover more quickly. Meats, fish, fresh veggies, rice, potatoes, and fresh fruit.  Season with salt and pepper.  Shop on the perimeter of the store and stay away from processed foods, for now.

 

As you feel better, add more items to your menu, one at a time.  Avoid dairy products for a while until your body heals (it can cause you the same issues as gluten)  Dairy products can be added back sucessfully later.

 

But, to your question.  It depends on the level of your damage to your intestines.  If you caught it early, you may experience a quick recovery, if not , a delayed recovery.  But a full gluten free diet is required, so be dilegent.  And good days are ahead of you!

 

 

Feel free to ask any question.  And, again, welcome to the Club.! :)


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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#5 Pam M

 
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Posted 04 April 2013 - 03:45 AM

Many thanks all for the advice! Much appreciated. Will give it time and not be too impatient! Lactose is something I will take out as well, but was wondering whether the lactase enzyme supplements would help here? I have always tended not to use too many processed foods - but will steer clear totally for a while. Thanks again!
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#6 Pam M

 
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Posted 04 April 2013 - 04:59 AM

One other question if that's ok. Today I'm suddenly constipated. Is this normal when coming off gluten?
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#7 funkflex

 
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Posted 04 April 2013 - 12:34 PM

Well I am dealing with constipation from time to time even 5 months into GFD. A couple of spoons of flax seeds in the morning usually helps. Takes some time for it to get through the system. You may also try prunes or hot chocolate if you're into that sort of thing. Cocoa contains a lot of fibre and this helps speed things up.


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#8 Celiac Mindwarp

 
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Posted 07 April 2013 - 06:55 AM

I alternated constipation and D for about 3 weeks when I started gluten-free, having never really had it except when pregnant.

It can take a while for your body to settle.

Welcome :)

Where else could you get to meet people and discuss BMs?Keep asking questions we have all been there and it really helps the transition.
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#9 mommida

 
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Posted 07 April 2013 - 07:11 AM

I opened this post to warn of the constipation.  Keep drinking water and fluids.  Try prune juice warmed if you can't stand the taste cold.

 

If you have NO signs of diverticulitis you might try figs.  They are nature's little colon cleansers.


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Michigan

#10 Brandiwine

 
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Posted 21 April 2013 - 05:56 PM

One other question if that's ok. Today I'm suddenly constipated. Is this normal when coming off gluten?


I had some issues with constipation the first couple weeks in GFD. Be sure to get adequate fiber from fresh fruits and veggies should help, and steer clear if rice cakes seemed to give me issues in that area.
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Vegan, Gluten Free diet, sensitivity to onions, soy, allergic to Cinnamon

#11 pricklypear1971

 
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Posted 21 April 2013 - 09:02 PM

It took about 9 months for me to settle into a normal bathroom routine. C was a big gluten symptom for me, as it turned out. When I first started getting "regular" I thought I was getting D, and was irritated that I had to go more often.

Go figure.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
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DH (and therefore Celiac) dx from ND
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#12 alesusy

 
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Posted 30 April 2013 - 12:41 AM

Patience is the main thing. I don't mean resignation: I mean do not get scared if your symptoms take time to clear. Everybody's different. What I can tell you for sure is that if you manage to get really gluten-free, SOME symptoms should clear soon, in the space of a few days. My main symptom - gastro problems - is still there after 5 months gluten-free: some days are OK, some days with C and worse (rare) days with D. But mental clarity and energy are immensely improved, and the depression has lifted (and I've had more normal BM in these months than in the last ten years). Also muscolar tension (causing huge headaches) is much much better.

 

It's a long road: first your body has to get clean of the antibodies (it takes some months) then it has to start reconstructing villis and then it has to adjust. Your gut may become very sensitive to some foods: my personal basic diet is chicken and rice, lettuce and apples (I luckily adore roast chicken and parboiled rice). Stick to non processed fresh food whenever possible. I was given the same advice and didn't really follow it in the first weeks - I thought I did, but I was continually throwing in other stuff (lots of nuts, gluten-free chocolate, cravings for Coke, LOTS of gluten-free biscuits and processed crackers and processed pasta with other stuff in it - normal wheat pasta is just wheat but gluten-free pasta has lots of additives etc) because, hey, I already had cut out everything with lactose plus my beloved wheta pasta and bread and was trying to compensate. But it's really useful to give your body simple foods in the first months.

 

You may be getting some NEW symptoms you did not have before. Don't worry too much. Keep a food journal and try cutting out the foods that could be responsible. Be gentle to yourself. Personally, if by this time next year I'm still having specific problems I will go looking specifically for other health issues that may be causing them. For now, I'm fiddling with food and studying reactions...


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