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Stress/ibs Or Something Else?
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I was diagnosed with coeliac disease in November 2011 having had various biopsies etc. I was diagnosed with IBS 30 years ago (approx). I was severely ill prior to being diagnosed with Coeliacs disease. (Long story short, severe anaemia, malnutrition could barely stand without a stick never mind walk down the garden). I also have under-active Thyroid, diabetes, arthritis (including degeneration of the spine) and migraine.

I saw the doctor at the hospital last month who is arranging for another biopsy to check my gut is healing and apart from the odd cross- contamination incident I have felt much better in the last few months. Strangely though, since learning I need another biopsy, I had a set back which was put down to some eye drops which were derived from wheat (I have dry eye syndrome due to my thyroid problem). It took a full 10 days to show up in my symptoms and another 10 to be free from symptoms of cross contamination. However, the last few days I have had throbbing in my stomach and intestines again and am wondering whether it is lack of fibre in my diet or the stress of knowing another biopsy is due or something else. Has anyone else had this, or even finding gluten-free/wheat free diet does not completely get rid of their symptoms. Not sure what to think right now. I should add, I still cannot eat dairy, even though I have been gluten free for sometime.

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Stress can cause IBS like symptoms.

 

The best way to figure out what is bothering you is to make a food diary. Write down everything you eat and your symptoms.  It could be that something else might be bothering you.

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I feel you! There are so many possibilities... Cross-contamination is a biggie for me, and other issues like SIBO can cause many of the same symptoms.

 

I agree that a food diary can be a big help. I'm nine months into this and still have gut issues. But when I look back at my food diary entries, I realize what I have now isn't nearly as bad it was six, seven months ago. So that's another reason for the diary — to see progress when you feel like there isn't any!

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Thanks. I've Re-started my food diary, but I'm now thinking I need more fibre in my diet, as I have found it more difficult to get enough fibre now I can't eat wheat/gluten. I have read there's a few people having problems with food intolerances since being diagnosed coeliac.

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Hi,  A lot of us do have both Celiac Disease and I.B.S., so it is sometimes difficult to sort things out. I.B.S. is associated with multiple food intolerances, especially those of us with what is now called "wheat sensitive" I.B.S. Hopefully your food journal will help you to sort things out. I've also been taking a probiotic, which has helped a ton. Best of luck to you!

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Thanks Jebby. I have started taking a probiotic too. It's so difficult wading through everything to check for gluten and then deciding how in the world you are also going to get sufficient fibre intake without wheat or gluten. You are right about the food intolerances. Although I started with those long before I was diagnosed with coeliac disease, and I now think I've developed a few more along the way. Weeding them out of my diet is a little tricky, but the food journal will help.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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