Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Sensitive Is It Possible To Be?
0

9 posts in this topic

I've been gluten free for 3 months, and after having my blood sugar go insane for the first 2 months, I am finally healing and feeling good. A friend stayed with me for 3 days recently and only ate gluten containing foods twice, a sandwich and a hamburger bun. She was really careful to clean up afterward and not share utensils or double-dip into the peanut butter jar. We also ate at the mall food court (but packed our own lunches, my friend eating her wheat bread sandwich across from me. I did touch her ziploc bag briefly), then took a trip to Whole Foods. At the end of the shopping trip I began experiencing some mild gluten symptoms which have continued for 2 days so far. Is it possible for me to be that sensitive to a bread crumb? Could I have touched something at Whole Foods? Was the table at the food court contaminated? I'm new to this gluten free diet, live alone, and have not dared to eat out yet, so I'm not sure how sensitive a person can be or if maybe I did accidentally eat something (but I can't think of anything I ate that was new). Does anyone else react to such minute things?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It could be anything, so don't worry if you don't figure out every source.  If I eat in public, I try to wash my hands first and rinse them really well if I have been touching a lot of stuff before sitting down.  And my dear spouse will get extra paper napkins for me to lay out so nothing touches the table, even if it has been cleaned recently.   But you could have been reacting to something you ate at home, also.  It takes a while to figure out all the possible vectors that gluten can sneak in on. 

0

Share this post


Link to post
Share on other sites

Thanks. The napkins are a good idea. I didn't want to go overboard, but maybe it's worth it if it will keep me from reacting.

0

Share this post


Link to post
Share on other sites

It is possible to be that sensitive.  It can take awhile to figure out your level of sensitivity.  Don't assume the worst.  It is possible to get a crumb somewhere but not see it.  Many celiacs find that they need a gluten free household to avoid accidental gluten contamination, so that could be it.  Or, the table could easily have not been cleaned, or not cleaned well at the food court, and an unseen crumb could have gotten in your food somehow.  We always uses utensils (our own) when eating in public.  Even if you can get your hands well washed, you end up having to touch other things like the door and the chair before you get to touching your food.  

 

I hope that you feel better soon and can avoid this in the future.

0

Share this post


Link to post
Share on other sites

Thank you. I try and be very mindful, but I can always do better. I have to eat at a restaurant tomorrow for my sister's bachelorette party. I was already planning on bringing my own spices but now I'll bring my own silverware too.

0

Share this post


Link to post
Share on other sites




I have been gluten free for almost 3 years now and still get symptoms occasionally.  My boyfriend and I have a gluten free house hold but, as a grad student, I sometimes have to eat at school or pass out from lack of food.  Today I have been feeling awful! Distended belly, anxiety, exhaustion, blurred vision, foggy, bloated, faint, sad, etc.  I am always careful about the food I eat but, I guess I am more sensitive than I thought.  

 

How have people figured out their sensitivity level?  I thought I was ok as long as I didn't eat it directly but, who knows now.... 

0

Share this post


Link to post
Share on other sites

I have been gluten free for almost 3 years now and still get symptoms occasionally.  My boyfriend and I have a gluten free house hold but, as a grad student, I sometimes have to eat at school or pass out from lack of food.  Today I have been feeling awful! Distended belly, anxiety, exhaustion, blurred vision, foggy, bloated, faint, sad, etc.  I am always careful about the food I eat but, I guess I am more sensitive than I thought.  

 

How have people figured out their sensitivity level?  I thought I was ok as long as I didn't eat it directly but, who knows now.... 

I think most of the Super Sensitives would never eat at a school cafeteria/ food court.

I'm not extra sensitive, but I always make sure I have some safe food with me - a packet of nuts, or pack a lunch

0

Share this post


Link to post
Share on other sites

One way I knew I was extremely sensitive was when I ate a tiny bite of a gluten-free cookie, just to taste it.  It was from a company that is very responsible, has gluten-free facilities and tests to make sure that their food is under 20 ppm.  That tiny bite made me sick.  That way I knew that if I wanted to eat a whole cookie, it needed to be far under 20 ppm.  I have had this sort of experience many times.

 

I don't think that you need to be all that sensitive to get sick from a food court.  The people working there won't necessarily have good training in food preparation for people with allergies.  From what I have read, you do better at higher end restaurants.  I personally gave up on such things fairly early on due to too many bad experiences.  You would probably be wise to follow Kareng's and carry food with you, or go to carefully vetted places. 

 

I hope you feel better soon.

0

Share this post


Link to post
Share on other sites

I am pondering carrying my own table and chair.  Then I could avoid using picnic tables, but have a nicer place to eat over the summertime.  I have been told by a doctor to eat at home.  My body is being very touchy on me.  Thank God for my car oven and supply of paper utensils in the car and ready!  I bring the food, or shop at the coop for it when I go out.

 

Diana

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,678
    • Total Posts
      921,700
  • Topics

  • Posts

    • OK so been to the doctor, they've sped up my referral and I should get the appointment booking form in the post shortly. They've said stay off the gluten until I have a date for the appointment then in the weeks leading up to it go back on - thoughts? I seem to be getting some strange symptoms at the moment that have only happened since trying to remove gluten, do these sound familiar to anyone? dry forehead, just starting to go red \ itchy in places. Treating with E45-type cream tender scalp and sides of head, almost like a pulling feeling and a bit sensitive to touch. Scared this one matches the symptoms of GCA, a particularly nasty autoimmune disease that can lead to blindness  one eye watering and associated fuzzy vision at times, trying to reassure myself it isn't blurred vision due to the point above sometimes bit of a lump in throat sensation, seems to come and go Been reading that some people can't handle rice - I was OK with it whilst eating gluten but have been having it for lunch each day and seem to get worse around 4-5pm so could that be a culprit? How long after coming off gluten would I be able to say I'm at a baseline to know if feeling ill is down to "glutening" vs. blaming it on the body adjusting to the change in (lack of) gluten in food?
    • First of all, welcome to the forum! it's good to have you here. Secondly, I can really relate to the fatigue portion.  it really hadn't affected me until everything hit the ceiling medically for me.  I was constantly tired all the time, and waking feeling rested in the morning. Prone to depression and anxiety, definitely.  It drove me nuts for those first few weeks.  That's when I decided to try going off the gluten to see what happened.  I still dealt with the depression, anxiety at crazy levels, and inability to focus/concentrate, but it had gotten progressively better.  The anxiety got so bad I would have panic attacks in public areas which only ramped up the anxiety because people saw what was happening.  I would encourage you and your doctor to do a full Celiac panel before you decide to try the gluten free diet.  I had my blood work done after I was off gluten for about two months or so.  Thankfully, my levels were still high to register at least a gluten sensitivity.  Since going off gluten for almost a year now, things have started to finally appear "normal".  Whatever normal means for me now.  As I am healing from the 30 years of glutenizing, I combined both natural methods with the medical methods.  If you are interested in the different avenues of natural methods, I would be willing to share with you.  I will be praying for you as you go through this journey. Let me assure you, you are not alone in this journey.  Depending on family dynamics, they can be a great source of support.  This forum is also a great place to bounce thoughts or concerns off of.  Good luck.
    • I doubt it. I would think that would be a questions for the company that make them.    But if smoking makes you feel bad....and you are able to quit for several weeks at a time....why go back to it?
    • Hi. I've noticed that after a break of smoking (2-3 weeks) I feel bad, when I begin to smoke again.  Maybe they contain some additives with gluten??
    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,674
    • Most Online
      3,093

    Newest Member
    Miss_G
    Joined