Her blood panel is POSITIVE!!!! She's celiac! I don't know what in the world the GI is thinking. That's crazy! The GI obviously doesn't really know celiac. The constipation is tripping her up but celiacs can be constipated as much as they can go the other way and more than 50% of dx'd celiacs presented with NO GI issues.
Keep her eating gluten until you get the results of the endoscopic biopsies.
Your test results, to me, seem to indicate that you do not have celiac disease. (Everything is within normal levels.)
And, your total IgA is high. Many people with celiac disease have low total IgA levels (10-15 times more frequently than people in the general population). The total IgA is conducted because about 3% of people are IgA deficient. If you have a very low total IgA, that can invalidate the three blood tests that rely on your IgA levels.
Thank you for responding. Yes, I understand not to eat gluten.
I suppose, I wasn’t clear. I understand that there are reasons for D other than celiac disease. What I am asking is, within the context of celiac disease, is there another reason apart from villi blunting for D? My suspicion is there is not. In which case, if, after being gluten-free for six years, I get D when I accidentally ingest gluten, it is likely a sign that my SI/duodenum has not healed, which would be a major bummer. That’s basically the gyst of and background for my question.
I also think the reflex teminology is confusing in this case. I read on another testing site that the reflex tests are done when the total IgA is low. In that case they perform the IgG antibody tests and call it a reflex test. Different site though so they may not use the terminology the same way. Your total IgA is not low so that's why the reflex terminology is confusing I think.
And so we stumble forward through life...
Maybe someone else has a better explanation of the term reflex panel?
Hi! My daughters pediatrician thinks she has celiacs. These are her blood test numbers
<4.0 U/mL (negative)
4.0-10.0 U/mL (weak positive)
>10.0 U/mL (positive)
EMA was positive
gliadin Iga was 43
Gliadin igg was 40 Negative: <20.0 U
Weak positive: 20.0-30.0 U
Positive: >30.0 U
However when we took her to the G.I Dr. ( from the best hospital in MA) she was not concerned and said to do the biopsy,but seems to think all her symptoms come for her consitpation. She also has low vitamin D, but high b12. We go Monday for the biopsy. I am so confused her pedi says all signs point to celiacs.Any information you can share would be appreciated.