My philosophy has always been that if they are not going to diagnose I am just not going to eat it anymore because I know it makes me quite sick.
Been off of it (gluten) for 10 years, (not officially diagnosed) and last December ate thru a few bags of corn chips and a box of new pecans.... and blew up in a nasty rash. Holy Moley, what the &^%$#@* !!! Was almost tempted to go to a dermatologist until I remembered Takala's Rule: "If they can Screw It Up, They Will. I came to my senses and reluctantly gave the rest of the corn chips to the spouse, and stopped eating the pecans, and self treated the rash, it cleared up. I'm still not sure which it was, but those were the 2 newer food items I'd been eating. The medical profession would want several thousand dollars to get to the point where MAYBE they could tell me to stop eating gluten, and why waste the money at this point.
Are you allergic to corn? I love corn chips and ? why they wouldn't be gluten-free. Maybe processed by CC from the factory? I have seen corn chips that listed wheat but also found them w/o wheat. Is there something I should be looking for on ingredients label?
I haven't had a blood test one that showed Celiac nor have my biopsies come back with DH. My PCP told me today (ck up) that it is DH due to being gluten-free and Dapsone with excellent results. My GI, Dermatologist and she agree it's DH. She said why have the EGD for a biopsy as they already have dx and not to waste my money on co-pays.
Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995 / Fatty liver biopsy 2001 ~ Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 Chemotherapy in 2008 ~ Breakout of rash from scalp to sole of feet. February 28, 2012 until present
Iron deficiency anemia - July of 2012 / Osteoarthritis. September 2012 2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012 Started Dapsone and Gluten-Free diet on October 20, 2012 ~ Diag DH 2012. Not taking Dapsone due to sulfa reaction. Biopsy in July 2013 indicates Lupus but my doctors do not agree on cause of rash for various reasons.