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Need Help Understanding All This!
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5 posts in this topic

Hi, everyone. This is my first time posting but I could really use some help and support right now. I had never had food allergies until my onion one in 2000. I got really sick overseas and when I came back home I was given two rounds of antibiotics. For 2-3 months after that I had major digestive upset that no one (doctors/tests) could figure out. I was basically told IBS deal with it. I got better, for the most part, when I figured out I couldn't have onion anymore. Then last June I was given the Celiac diagnosis along with a couple of other food allergies. I started feeling a lot better until 2-3 months ago. I just had more food allergy testing done on Tuesday and was given a bigger list...mostly vegetables, tuna, oranges, watermelon, and squash. These are things I eat all the time! Now I can't. I already found I can't have legumes, soy, gluten, bananas, buckwheat, wheat, peanuts, corn, nuts, and dairy. Why am I having all these allergies/intolerances all of a sudden, I feel soon I won't be able to eat anything! Is there a way to fix this? Thanks for any help/suggestions!

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Hi

 

Many people with celiac disease also have a leaky gut, which can cause you to develop new food allergies. Please refer to my post here.

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How were you tested for Celiac Disease? This is the test ( full panel ) that you should have been tested for Celiac:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Although other food intolerances are common, often times it's only discovered when gluten is totally removed from your diet.  It does sound like you were allergy tested.  Celiac is not an allergy, rather an autoimmune disease. And it's offen is triggered by an illness, stress, pregnancy, etc...

 

Oh ....and Welcome!

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What kind of allergies are these?  IgE?  IgG?  What kind of test was done?  What kind of Dr. did this test?

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@stri8ed thank you for the link to the other post!

@Lisa I had the full blood panel done. My doctor has Celiac and has no gluten symptoms other than the severe damage shown on his biopsy. It looked really bad when he showed me. I do have a wheat allergy but I also have Celiac which is not a food allergy. We are going to start testing for other autoimmune diseases because we don't think Celiac is the only one I have. Thank you for the welcome!

@Juliebove I had an allergist/immunologist administer the allergy tests. I had food and environmental tests done. I know the foods were IgE tests. I had them done twice, once last June and then again on Tuesday. I had way more foods show up this time than last. I am also finding I am intolerant to a lot of foods. The foods that showed up this time are all foods I eat all the time since my first allergy test, and now I can't eat those. I am so overwhelmed and running out of things to eat. Today I am in really bad pain due to consuming soy and corn, but I kind knew that would happen. I also had a pretty bad reaction to some new fish oil pills. I am allergic to tuna, but there was no tuna in them. They caused hives, dizziness, and breathing problems.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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